As we near summer, we wanted to provide you with an update on how our project is going with providing Movement Monitors to those experiencing seizures. We are very excited to share with you that we have had the privilege of providing more than 1200 lifesaving monitors to the Epilepsy Community! That is 1200 individuals and families that can have a little Comfort and Hope knowing that their monitor is working to help save them against SUDEP (Sudden Unexpected Death in Epilepsy). We believe that these monitors save lives. We believe that having these monitors help our community to stay vigilant and do everything they can to help prevent SUDEP.
We provide several different monitors, depending on the types of seizures that individual has. We offer a nighttime movement camera that alarms after a specified intensity of movement and time. We offer watches that detect repetitive motion and alert contacts the user has chosen through their cell phone. We offer a pad that goes under the mattress that detects repetitive motion, as well as if the user gets out of bed, and alarms. We also offer a wearable pulse oximeter/heart rate monitor that alerts when specific parameters are reached. All of the monitors have the ability to be customized to the individual! We hear frequently from families that they feel that the monitor they have for their child/family member has saved their life. Many tell us how much it means to have a "backup" set of eyes watching their loved one. And because of you, we have been able to continue doing this. We could not be more thankful!
We start this New Year with such gratitude, as we have had the amazing opportunity to grant Comfort and Hope to more and more individuals living with Epilepsy. Movement monitors alert caretakers nearby that their loved one is having a seizure. For some of the monitors, they alert contacts chosen via a cell phone, allowing the person freedom and independence. They alert to seizures while sleeping, allowing someone to check on them and ensure they are safe. All of the monitors we provide have the potential to save a person's life. The risk of SUDEP (Sudden Unexpected Death in Epilepsy) is a huge worry and reality for both the person living with Epilepsy, as well as those who love them and/or care for them. We believe, and have born witness to many stories supporting such, that thse monitors are a line of defense against it. None of these monitors are covered by insurance.
With your help, we have been able to grant almost 1200 of these devices to the Epilepsy community. We hear time and again from these recipients that they feel some peace and relief knowing they have their monitor. Parents reaching out and telling us story after story of being able to be with their child while seizing, only because of the alerts they received. We pride ourselves on being up to date on the latest information regarding any of these devices, and then being able to put the devices into the hands of our community. Every dollar you contribute to this project goes directly to these monitors. We are so grateful for your support!
With the arrival of Fall, we have been looking back over the summer and how we have been able to help our community of Epilepsy Warriors. Thanks to your support, we hav been able to order and send out over 1,100 movement monitors to those affected by Epilepsy. These life-saving movement monitors provide alerts to loved ones when they detect a seizure. We are so honored to work with families to provide these important resources, when insurance will not cover. We work in conjunction with some patient's doctors and families to protect this community.
We are humbled by your generosity, that allows us to continue our mission of educating people about SUDEP (Sudden Unexpected Death in Epilespy), as well as to provide these monitors.
It is time for another update for this project. We appreciate your contributing to this wonderful project - you are truly saving lives.
Almost 1,100 monitoring devices have been placed by The Chelsea Hutchison Foundation. New monitoring devices and improved software is a constant. The peace these monitors bring to families is priceless. Sadly, they are not covered by insurance companies at this time.
The photos shown here are of those who have received monitors since our last update. I hope you enjoy seeing the difference you are making.
We have the most amazing volunteer staff available. The Chelsea Hutchison Foundation hosts Chelsea's Bingo twice a week - all year long. In addition, we host an annual 5K/Family Fun Walk called STOMP Out Epilepsy and SUDEP, Epilepsy Awareness Day at Elitches, which includes a Purple Duck Chase down the Lazy River and an annual gala event.
While this pandemic has slowed things down, the requests for life-saving seizure monitors have not. We are grateful to have been able to provide well over 1,000 monitoring devices across the US. We've also filled requests from the UK, Canada and Australia.
Parents contact us daily, desperate for sleep. When you have a child or loved one who suffers seizures without any advance warning, it becomes incredibly frightening. While there are not guarantees, these lines of defense reduce the stress levels that come with this frustrating diagnosis.
"Our family has been greatly blessed by the Chelsea Hutchison Foundation. After reading about Chelsea and how her memory continues to live through her parent's love for her and their advocacy for Epilepsy and SUDEP, I learned that CHF could possibly help protect our daughter through their assistance in providing our family with a seizure monitor. Julie made the process so simple and we are so grateful for the donations and fundraisers that make it possible for families like ours to rest easier at night. Our daughter has also been chosen to attend EADDL this November and we are so thankful for this amazing opportunity. The Chelsea Hutchison Foundation has been life-changing for my daughter and our family."
One in 10 people will have a seizure in their lifetime. One in 26 will be diagnosed. 3.4 million Americans suffer from epilepsy.
Thank you for your support of this important project. We are so grateful and I know these families are too!
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