Movement Monitors for Epilepsy Patients in Need

Greetings, we wanted to update you on what we've accomplished over the past quarter.  We continue to work hard to be able to grant comfort and hope to those struggling with epilepsy/seizures.

To date, we have had assisted over 1,200 families with, what we believe to be, life-saving movement monitors. These monitors are expensive and are not covered by insurance.  The peace they bring to families is so needed. While there are never any guarantees, having a line of defense in place allows families to breathe just a bit and possibly get a few more minutes of sleep each night. Here are photos of our most recent recipients.

In addition, three of our service dog recipients graduated in July and are now working teams.  All three received their service dogs through Domesti-Pups out of Lincoln, NE.  Reports from all three recipients and their families are that the matches were perfect and the dogs are already alerting and responding to their handler's seizures.  To date we have had the privilege of assisting 152 families pay for their new life partners.

Next month, Chelsea Hutchison Foundation is hosting 28 families with all major expense paid trips to Epilepsy Awareness Day at Disneyland which includes a 2 day expo with over 100 vendors, hospitals, epileptologists and epilepsy centers. Our families will have face to face opportunities to speak with some of the top specialists in the United States. The friendships that are created through this week are many times life long friendships and provide much needed support of understanding.

We will be closing this project in the new few months and will be creating a project that includes updates on all of our projects. We appreciate you and your support over the years and hope you will continue to follow us and support us there. We will make sure you know when the change is made.

Respectfully,

Julie Hutchison

President, Co-Founder and

Chelsea's Mother

Links:

• Chelsea Hutchison Foundation Website

As we near summer, we wanted to provide you with an update on how our project is going with providing Movement Monitors to those experiencing seizures.  We are very excited to share with you that we have had the privilege of providing more than 1200 lifesaving monitors to the Epilepsy Community!  That is 1200 individuals and families that can have a little Comfort and Hope knowing that their monitor is working to help save them against SUDEP (Sudden Unexpected Death in Epilepsy).  We believe that these monitors save lives.  We believe that having these monitors help our community to stay vigilant and do everything they can to help prevent SUDEP.   

We provide several different monitors, depending on the types of seizures that individual has.  We offer a nighttime movement camera that alarms after a specified intensity of movement and time.  We offer watches that detect repetitive motion and alert contacts the user has chosen through their cell phone.  We offer a pad that goes under the mattress that detects repetitive motion, as well as if the user gets out of bed, and alarms.  We also offer a wearable pulse oximeter/heart rate monitor that alerts when specific parameters are reached.  All of the monitors have the ability to be customized to the individual!  We hear frequently from families that they feel that the monitor they have for their child/family member has saved their life.  Many tell us how much it means to have a "backup" set of eyes watching their loved one.  And because of you, we have been able to continue doing this.  We could not be more thankful!

Links:

• To learn more about the Chelsea Hutchison Foundation, click here