Physical Health United States Project #12369

Movement Monitors for Epilepsy Patients in Need

by Chelsea Hutchison Foundation

Movement Monitors for Epilepsy Patients in Need

Project Report | Feb 4, 2021
Remembering Chelsea's Good Work!

By Julie Hutchison | President, Co-Founder and Chelsea's Mother

While this pandemic has slowed things down, the requests for life-saving seizure monitors have not. We are grateful to have been able to provide well over 1,000 monitoring devices across the US. We've also filled requests from the UK, Canada and Australia.

Parents contact us daily, desperate for sleep. When you have a child or loved one who suffers seizures without any advance warning, it becomes incredibly frightening. While there are not guarantees, these lines of defense reduce the stress levels that come with this frustrating diagnosis.

"Our family has been greatly blessed by the Chelsea Hutchison Foundation. After reading about Chelsea and how her memory continues to live through her parent's love for her and their advocacy for Epilepsy and SUDEP, I learned that CHF could possibly help protect our daughter through their assistance in providing our family with a seizure monitor. Julie made the process so simple and we are so grateful for the donations and fundraisers that make it possible for families like ours to rest easier at night.
Our daughter has also been chosen to attend EADDL this November and we are so thankful for this amazing opportunity. The Chelsea Hutchison Foundation has been life-changing for my daughter and our family."

One in 10 people will have a seizure in their lifetime. One in 26 will be diagnosed. 3.4 million Americans suffer from epilepsy.

Thank you for your support of this important project. We are so grateful and I know these families are too!

Links:

Foster's Story

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Oct 8, 2020
Remembering Chelsea's Good Work!

By Julie Hutchison | President, Co-Founder and Chelsea's Mother

Jun 12, 2020
Remembering Chelsea's Good Work!

By Julie Hutchison | President, Co-Founder and Chelsea' Mother

While COVID-19 has dramatically affected our fundraising efforts, The Chelsea Hutchison Foundation has been able to continue our mission of providing tangible assistance to those who suffer with epilepsy and seizures. While not at the same pace as earlier in 2020, our extremely low overhead has allowed us this opportunity.

Soon we will reach 1,000 monitors provided - this means 1,000 families sleep better knowing there is a line of defense in place for their loved one. We believe (and hear this everyday) that monitors save lives. These monitors are STILL not covered by insurance, but top epileptologists from across the United States send their patients to us for help.

"I can't say enough about the CHF! When we were at our lowest, and lost as to how to help our son, they pointed us to the help we needed and walked beside us until we found answers. Starting with a listening ear, to finding us a Smart Watch Monitor, to guiding us to a Service Dog Company, then a trip to Epilepsy Awareness Day at Disneyland, where we found a Specialist, they have been there each step of the way. They work tirelessly in their daughter's honor to help others to not have to experience the same loss that they've been through." Jennifer R.

"The Chelsea Hutchison Foundation is a life raft in the turbulent seas of living with epilepsy; whether you are a caregiver, a sibling, or a person with the diagnosis. The monitors and service dogs that they assist with in acquiring are critical in surviving epilepsy medically, but the community they build amongst the various people living with epilepsy is critical socially and emotionally. My family has benefitted greatly from the passion they bring to helping people in the community, and I'm not sure we'd be where we are without them." Gene N.

For those of you interested in knowing about the different monitors available, here are the links.

Emfit Movement Monitor

SAMiAlert

Inspyre by Smart-Monitor

PulseGuard

Embrace by Empatica

Thank you for your continued support. Enjoy seeing the faces of those who benefit from your kind donations.

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