Movement Monitors for Epilepsy Patients in Need

by Chelsea Hutchison Foundation
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Movement Monitors for Epilepsy Patients in Need
Movement Monitors for Epilepsy Patients in Need
Movement Monitors for Epilepsy Patients in Need
Recent movement monitor recipients
Recent movement monitor recipients
We have some upcoming events to tell you about.  We hope you are able to join us. We are within days of providing our 50th seizure-response dog grant and have just provided our 129th monitor !!! Thank you for your amazing support! We could not do this without your help!
 
"Shortly after Lily was diagnosed, I learned of the Emfit night time movement monitor! I reached out to the Chelsea Hutchison Foundation, and without hesitation, they provided us with the monitor that Lily needed so badly! With the blessing of this monitor, we can feel secure when we lay Lily down for a nap, or bed at night! It will sound an alarm if Lily seizes in her sleep, and allow us time to get to her with her emergency medication (Heidi, El Paso, TX)
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Meet Becca
  
Soon-to-be SmartWatch Recipient!

Rebecca, or Becca, is a bright 15-year old teen who has the energy of 10 others combined.   She is determined to raise epilepsy awareness and educate those around her.  She began having seizures when she was seven, but it has not stopped her in the slightest.  To get a little insight as to this determined young lady, https://www.youtube.com/watch?v=oVp4il8oX6s to view Becca's video, "My Story about Epilepsy".

"When I turned 13, I decided to spread the word about Epilepsy.  I was in the 7th grade and I asked my Mom and the school Principal if I could have everyone at school wear purple in November.  I made purple ribbons that year and a poster.  It was displayed in my school library for a year."  

Once again, Becca has formed a team for Chelsea's Walk - Rebecca's Cougar Team.  Her fundraising goal is $5,000, and we would not be surprised at all if she reaches that.  Last weekend, she held "Rebecca Helsley's 1st Annual Bike Ride, Yard and Bake Sale" in Baker, West Virginia.  She raised in excess of $200 and is providing those funds to Rebecca's Cougar Team.  We hope to personally be able to attend the Rebecca Helsley's 2nd Annual Bike Ride.   

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Chelsea's Epilepsy Walk
for SUDEP Awareness 

   Sunday, September 22, 2013

Register at ChelseasWalk.org.  Organized walks will take place in Colorado, Virginia (2), Kansas, Missouri and Illinois. Start pulling your teams together!  If you aren't near one of our organized walks, consider showing your support by registering as a virtual walker and/or creating a virtual team or fundraiser to participate.   Consider orchestrating your own group of friends to walk as a group in your own home town to raise awareness - we will provide the t-shirts!  We are looking for volunteers for all walks.  We have some amazing rewards for those who are willing to raise pledges for Chelsea's Walk. Please contact us at ChelseasLegacy@aol.com if you are interested.  

For more information or to register, volunteer or sponsor Chelsea's Walk, go to www.ChelseasWalk.org

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Epilepsy Awareness Day at Disneyland Resort 2013

   Select Chelsea Hutchison Foundation as your

   designed 501(c)3 Charity!

The Epilepsy Foundation is proud to present Epilepsy Awareness Day at Disneyland Resort on November 7, 2013 - during National Epilepsy Awareness Month. This will be the first official day at Disneyland Resort honoring a population impacted by a medical condition. The family fun day at the "happiest place on earth" will be all about celebrating the strength and unity of the epilepsy community - and also help us raise national attention about epilepsy.

Attendees can buy tickets at www.EpilepsyAwarenessDay.organd designate part of the ticket price to support a 501(c)3 charity dedicated to helping people who live with epilepsy.  CHELSEA HUTCHISON FOUNDATION IS ONE OF THOSE APPROVED 501(c)3 CHARITIES THAT YOU CAN DESIGNATE!   Please help us spread the word and ask your friends to select Chelsea Hutchison Foundation when ordering tickets.  We plan to be there that day!!!

Tickets include an official event day purple shirt and swag bag, each with special Disney artwork.

The event is presented in cooperation with the Epilepsy Foundation of Greater Los Angeles and the Epilepsy Foundation of San Diego County.

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We just can't thank you enough for supporting The Chelsea Hutchison Foundation.  Because of you and others like you, we have just fulfilled (3) additional seizure-response dog grants, bringing our total to 48.  In addition, we were able to pay for (10) Emfit, (4) SmartWatch and (3) SAMiAlert monitors, brining our grant total of monitors provided to 122. We could not do this without your generous support!

"Just this past week, Connor did his first trip all on his own, by train. I can truly tell you that I never ever would have been able to let him do this without knowing he had that SmartWatch monitor. It was a huge independence move for him, and I am happy to say it all went well. The monitor is going to be something that changes all of our lives..." (Amy, Olymbia, WA)"

Registration is now open for the 4th Annual Chelsea's Epilepsy Walk for SUDEP Awareness. Organized walks will take place in Colorado, Virginia (2), Kansas, Missouri and Illinois. If you aren't near one of our organized walks and wish to participate, you will be able to register as a virtual walker and/or a virtual team and participate.  Register at ChelseasWalk.org. 
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Thank you for your support of our mission to grant comfort and hope to those living with seizure disorders/epilepsy.  With the generous support of you and others, we have just paid our 45th seizure-response dog grant.  In addition, we have provided 112 life-saving monitors for those in need.  We have a lot of work to do as epilepsy affects over 3 million Americans of all ages - more than multiple sclerosis, cerebral palsy, muscular dystrophy and Parkinson's disease, combined.  Almost 500 new cases of epilepsy are diagnosed every day and up to 50,000 American's die from seizures and seizure-related causes every year in the United States.

On Friday, April 26, 2013, Chelsea's Caribbean Beach Party Gala will be hosted by the Chelsea Hutchison Foundation at The Island Event Center in Denver, Colorado.  This is the Foundation's 4th annual gala and promises to be a fun-filled evening with Caribbean dinner buffet, live music, dancing, entertainment and auctions - all on a sand-floor event center.  Live music will be performed by Tunisia Band, who performed at both political conventions in 2012.  It is a real honor for us to welcome them.  Special guests include Shanna Wilkinson and her amazing seizure alert/response dog, Holly.  Holly received the National Hero Dog Award in the Service Dog Category in 2012.  Dan Mitchell of 99.5 The Mountain is the evening's emcee.  

The Chelsea Hutchison Foundation is a Colorado non-profit corporation formed to help individuals, particularly children and young adults, who have epilepsy.  The main focus is to raise funds to provide grants for seizure-response dogs. These trained service dogs may be able to detect an oncoming seizure and provide warnings and/or respond after the onset of a seizure. The Foundation also provides Emfit movement monitors and grants for SmartWatch monitors for those in need.  Emfit monitors are the latest technology for monitoring an individual who, during sleep, may experience seizures which a caregiver or family should be alerted to.  The SmartWatch is a patented, intelligent, motion detecting and alerting wristwatch.  SmartWatch is a fully portable non-invasive device that continuously monitors movement, analyzes the information for abnormalities, issues alerts and securely records seizure events.  To date, we have provided grants for 44 seizure-response and have provided over 100 monitors.

The Foundation is named for Chelsea, who died in her sleep during a seizure in April of 2009. SUDEP (Sudden Unexpected Death in Epilepsy) was the cause of her death.   During the 6 years that Chelsea had seizures, no one ever told us a seizure could take her life, other than through an accidental fall or drowning. As a result of that omission, the Chelsea Hutchison Foundation informs those living with epilepsy of the risks and raises awareness of SUDEP so that no other families are blind-sided. For more information, please visit our website. www.ChelseaHutchisonFoundation.org or contact us directly at ChelseasLegacy@aol.com

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Organization Information

Chelsea Hutchison Foundation

Location: Littleton, CO - USA
Website:
Facebook: Facebook Page
Twitter: @ChelseasLegacy
Project Leader:
Julie Hutchison
Littleton, CO United States
$3,921 raised of $10,000 goal
 
93 donations
$6,079 to go
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