Movement Monitors for Epilepsy Patients in Need

by Chelsea Hutchison Foundation
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Movement Monitors for Epilepsy Patients in Need
Movement Monitors for Epilepsy Patients in Need
Movement Monitors for Epilepsy Patients in Need
Meet Maddy!
Meet Maddy!

Greetings!  We are so grateful for your support and wanted to show you some of Chelsea's good work.  Your support means the world to us and to those we serve!

We thought you might enjoy seeing this darling video created by the sister of one of our recent recipients.   Click here to meet Yalianna and Ethan.

Meet Matty, one of our most recent Monitor Recipients.

Maddy is an easy-going, pragmatic and "don't worry about a problem before you have it" kind of kid.  That is how her Mom, Lisa, described her 16-year old daughter before their world changed in July of 2017 when she had her first seizure while away at a Young Life camp for teens.

At home Maddy's world had become a danger zone for her; as she was having more tonic clonic seizures.  Every hard surface, counter, and everything in between would become a hazzard and it was hard to know when a seizure would strike.  An ambulatory EEG was done that captured a seizure while Maddy was on FaceTime with a friend.  When she came out of her seizure, she said her head felt huge and she was dizzy.  It was at that moment that her family realized that she had been having seizures in the mornings and during sleep that they didn't know about.  This is what set them on their journey to find monitoring devices and lead them to CHF.

They went to the neurologist the following morning. The EEG was reviewed and Maddy was diagnosed with Myoclonic Juvenile epilepsy. From there they began their medication journey one that would change their lives even more. Maddy, a straight A student began to have memory problems, was writing letters backwards and her personality was changing to where she didn't even recognize herself; this affected her deeply and caused great concern for her parents.  In December, her medication was changed and things are much better now. Maddy's mood has stabilized and seizures have been kept at bay.

Maddy has been in competitive cheerleading for 10 years and most recently a varsity cheerleader for her high school. After having to give up so much, Maddy's parents decided she did not have to give up her love of cheerleading. Her high school teammates and coaches make sure she is safe and they have a seizure emergency plan in place for her. Cheering and competing with her team is the one place where Maddy, even for a few hours, can just be a regular teenage girl and not have to worry about her epilepsy. Maddy was recently awarded the Falcon Award by her coach. This is an award that is given to a team member who displays outstanding character, not only some of the time, but all the time.   Whether on the mat, in the classroom or just every day, Maddy would simply show up each day with a smile and positive can-do attitude.   Maddy wants others with Epilepsy to keep fighting, chase the fear and continue to do what makes their heart happy. 

Maddy is a recipient of the Emfit MM and Smartwatch monitor by Smart-Monitor granted by CHF.  Maddy's family loves the security and relief they feel having the Emfit MM at night and Smartwatch during the day when they can't be with her. They state it has given her some freedom and confidence back. 

SAMiAlert Monitor, Night-time Monitoring Device

SAMi® is a sleep activity monitor for caregivers and individuals who need to watch carefully for unusual movements at night. During sleep, audio-video information from a remote infrared video camera is sent to an app that runs on an iOS device such as an iPhone or iPod Touch. The SAMi app records and analyzes the video for unusual activity. When an unusual event is detected, it sounds an alarm and records live audio and video from the SAMi network camera. Within seconds, the individual or caregiver can take any necessary action.

Recent Testimonials

"I am a RN and was searching... surfing... one nigh, desperate to find answers for our teenage son when the good Lord took me to “Chelsea”.......I had already emailed Domesti-PUPS without going back to their site...... then The Chelsea Hutchison Foundation (CHF) responded right back to me! I could not believe someone sooo busy took the time to respond and kept writing me.  I learned more in a couple emails than I have in 4 years!! And then I saw CHF on Domesti-PUPS website!! The good Lord was moving all the pieces in place!! We are soooo grateful to CHF and Chelsea will now be in our hearts always and forever too....."  (soon to be seizure-response service dog grant recipient).

"This foundation was built on tears and an abundance of love. It's more than apparent. The love and compassion they show from the second you write them is instantaneous. Thank you so much for all you have done for our family. I hope to be a huge part of this amazing organization. I never expected what I received and I'm in awe. From the bottom of our hearts thank you for the huge piece of mind you have given us." (recent monitor recipient)

Upcoming events
Casino Royale Gala 2018 - Centennial, CO
Epilepsy Awareness Day at Elitch Gardens 2018 - Denver, CO
STOMP Out Epilepsy and SUDEP - coming to 9 Locations across the United States in September 2018.

The Chelsea Hutchison Foundation is a Colorado nonprofit corporation formed to provide help and support to individuals, particularly children and young adults, who have epilepsy. Chelsea touched many lives during her short 16 years here, and we are amazed at how many people she continues to touch through the foundation even after her passing.  Her generous heart longed to see love and care come to others.

In her memory, The Chelsea Hutchison Foundation is designed to assist people living with epilepsy.  Funds raised by this foundation provide grants for fully trained seizure-response dogs and for, what we believe to be, life-saving movement monitors to those in need.  We educate the public about SUDEP (Sudden Unexplained Death in Epilepsy) and provide support to those who have been affected by SUDEP.  The Chelsea Hutchison Foundation exists to raise awareness of SUDEP and to grant comfort, hope, and positivity to individuals and families living with epilepsy. 

To date, The Chelsea Hutchison Foundation has had the privilege of providing 107 seizure-response dog grants and has provided over 530 nighttime and daytime movement monitors for those in need.  We have awarded 44 families with wish trips to the one-of-a-kind Epilepsy Awareness Expo and Day at Disneyland. The Expo offers a wealth of information and exposure to professionals, treatment options, education, and hope.

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If you are inclined to donate on this wonderful day, please consider a donation to The Chelsea Hutchison Foundation and this project.  We would be so grateful.
Thanks to the generosity of donors like you, 104 families have received grants for seizure-response dogs and almost 500 life-saving monitors have been provided.  Through Chelsea's Wish, we have had the honor of granting 44 families with all-expense paid trips to participate in the life-changing Epilepsy Awareness Expo and Day at Disneyland.
We recently returned from Epilepsy Awareness Day and Expo at Disneyland at which we hosted 14 families from across the United States - 51 people in all. 
One of our recipients says what these trips mean best.  "I'm the single mother of an 11yr old little angel.  She is epileptic, had her first seizure at 3 and on the 29th of this month will be 1 year tonic-clonic seizure free, even though she has other types. We have been so incredibly blessed by The Chelsea Hutchison Foundation (CHF) this year. My daughter and her dog Fin were CHF's dog grant recipient #100. What a huge accomplishment for CHF and life changer for us! She was also a lucky winner of one of the trips to Epilepsy Awareness Day at Disneyland from Chelsea's Wish, by The Chelsea Hutchison Foundation. Just when you think your heart is full, it starts overflowing and you completely comprehend the meaning of sisterhood. We met other families that do the same thing we do everyday. They understand my thoughts, they get my fears and no one had to say a word.....we all just completely appreciated each other. I've never belonged more to a group of strangers that I claim as family before in my life!! I don't stress as hard. I know I'm going to be ok. We came home, and My daughter has been sick. We've had to change her meds to try and get a grip on what's going on, 5 seizures in 2 weeks is unacceptable for us......but I can breathe while I'm doing this because I have a support system behind me like no other!!  Thank You for giving me peace of mind, confidence, a new outlook, a fresh perspective, lifetime sisters, a MUCH NEEDED break with my baby for her to just be herself for a week, friend's that I can consult that are doing the same thing I am." 
We thank you for your support in the past and wish you a very happy holiday!
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We are excited to tell you about the progress we have made.  The Chelsea Hutchison Foundation is receiving 10-15 requests a week for help and we have been able to keep up with those requests.  It is a wonderful feeling to be able to bring a little peace to those who are so stressed, waiting for the next seizure to occur.  Through you, and the kindness of those who support our mission, we are excited to let you know that we have now had the privilege of providing over 480 (what we believe to be) life-saving movement monitors across the United States.  Enjoy the beautiful faces of some of our most recent recipients.

"Our monitor has already caught two seizures while we were asleep.  I can never thank you enough!"  Allison S.

In just a few short days, through Chelsea's Wish, we will be hosting 14 families from across the US at Epilepsy Awareness Expo and Day at Disneyland.  These trips are life-changing for our families. 

We made the news and wanted to share.  Here is our story as told by CBS Denver, Foundation Pairs Girl, Goldendoodle Together To Help Manage Epilepsy.  In addition, here is an article written by The Denver Post, How the Chelsea Hutchison Foundation is saving lives through dogs and monitors.

STOMP Out Epilepsy and SUDEP Awareness walks took place across the United States last month.  It was a huge success for the Foundation as we stomped in Colorado, California, Nebraska, Illinois, Louisiana and West Virginia.  We host Chelsea's Bingo twice a week in Aurora, Colorado to help fund our projects.  It is a big commitment, but we will do what we need to to be able to grant comfort and hope those those who suffer from epilepsy.

Thank you for believing in us!

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Thank you for your support of this project.  Meet Ethan - one of our most recent monitor recipients.  We are happy to report that we have now provided 450 life-saving monitors for this in need.  

"My heart is overwhelmed with gratitude.  Thank you is simply not enough.  You have made an enormous difference in the life of our daughter." - Laura - Connecticut

We thought you night be interested in a page we have as we are raising funds for a young girl named Alli and her service dog, Cosmo.  Cosmo has just started training and is expected to be working hard for Alli sometime late next year.  For more information on Alli and Cosmo, click here.

Many exciting things are happening for The Chelsea Hutchison Foundation. We were just awarded a very large monthly grant through Google Ads which will help us reach more people who need our help, as well as donors who believe in what we do.  You will probably be seeing much more about us in the next year!  When you have the chance, take a look at our new website

Our 8th Annual STOMP Out Epilepsy and SUDEP Awareness Walk/Run takes place next month in several locations across the United States.  If you are interested in seeing those locations, please check out Chelsea's STOMP.  Even if you are not near one of our locations, you can show your support by becoming a virtual walker and receiving one of our branded STOMP tshirts!

Last month, we awarded 11 families with wish trips to Disneyland.  This brings the number of families granted wish trips to 41.  This project, fondly called Chelsea's Wish, brings families from across the United States to Epilepsy Awarness Day and Expo at Disneyland each November.  Many families dealing with the stresses of epilepsy and seizures are exhausted, both emotionally and financially.  Many of our families are single-parent or one-income families because of the care needed.  They deserve a break! The  Chelsea Hutchison Foundation grants comfort and hope!

As always, we truly appreciate your support.  When you support our projects, your donated dollars go directly into helping those in need and not salaries.

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Thanks to you and others just like you, we have had the privilege of providing 420 life-saving movement monitors to those in need across the United States.  You might wonder why we provid these, believing insurance should cover them.  You are correct, insurance SHOULD cover them, but sadly they don't.  They are not FDA approved due to the size of these companies that produce the monitors and the red tape and expense with doing so.  This fact keeps them from being on the radars of many medical professionals as well.  Way too many families learn of these monitors after it is too late - much like our family.  We receive messages weekly from family who have these monitors in place who believe because they were notified of a night-time seizure, they were able to intervene and their loved ones survived. Our family truly believe that if we had known to monitor Chelsea, and had the opportunity to attend to her, our outcome might be different.  Most SUDEP (Sudden Unexpected Deaths in Epilepsy) losses are unwitnessed and unattended. Can you imagine the lives that are saved daily by these amazing monitoring devices?

Enjoy see the faces of just a few of our most recent monitor recipients.

"Your SAMi-Alert Monitor literally saved my daughter's life.  I was sound asleep.  My daughter had a very bad tonic clonic seizure.  We no longer have her seizure medication due to insurance, so she is having 100's of seizures a day, staying in bed most of the time and sleeping.  When her alarm when off and woke me up, she was purple by the time I got upstairs to her.  She had aspirated and was not breathing."  Claude F. - Tennessee  

"Thank you and everyone that donates their time and efforts.  We have a piece of mind when our daughter goes places now and it is thanks to you guys."  Emily L. - Utah

"Thank you so much for the SmartWatch.  My freedom is extremely important to me and for those that don't know my story, it'll keep my son and I together instead of apart.  You guys have truly been a blessing in my life.  This epileptic momma can be a mom to her kid with this by my side!"  Samantha C. - Florida

In addition to our Global Giving projects, we raise funds year around through several events.  Last month we held our 8th Annual Spring Gala Casino Royale Gala that proved to be a record breaker for us.  We host Chelsea's Bingo in Aurora, Colorado on Sunday and Thursday evenings each week.  It is a big job, but has proven to be a great fundraising tool for us.  Epilepsy Awareness Day at Elitch Gardens take place in Denver on June 3.  Also happening that day is the Purple Duck Chase.  Anyone anywhere can sponsor ducks for $5 each or 5 for $20.  Join in the fun!

Our 8th Annual STOMP Out Epilepsy and SUDEP Awareness Walks take place this September.  For more information and locations nearby, click on the link.

Every year, through Chelsea's Wish, a project within The Chelsea Hutchison Foundation, we sponsor families who deal with the impact of seizures and epilepsy to participate in Epilepsy Awareness Expo and Day at Disneyland. To date, we've provided 27 families with all-expense paid trips to particpate. This year our goal is to send 10 families and we are currently accepting nominations.  To contribute to this wonderful event that brings an isolated community together, please click here.  For more information on qualifications and how to nominate your family, please go Chelsea's Wish

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Organization Information

Chelsea Hutchison Foundation

Location: Littleton, CO - USA
Website:
Facebook: Facebook Page
Twitter: @ChelseasLegacy
Project Leader:
Julie Hutchison
Littleton, CO United States
$3,921 raised of $10,000 goal
 
93 donations
$6,079 to go
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