SUDEP (Sudden Unexpected Death in Epilepsy) is thought to cause over one third of deaths in children diagnosed with epilepsy. Despite being so common, most families, friends and teachers are not aware of the very real possibility of death for individuals living with epilepsy; thus, simple preventative measures are not taken. Due to the prevalence of epilepsy in the United States, the potential for SUDEP coupled with insufficient knowledge about its prevention affects us all.
Movement monitors can alert a parent or caregiver of a seizure and allow them an opportunity to administer life-saving measures if necessary. To date, CHF has provided 107 seizure-response dog grants and over 530 life-saving movement monitors. We received 10-20 requests a week for help. Epilepsy affects over 3 million Americans of all ages - 65 million people worldwide. This is more than multiple sclerosis, cerebral palsy, muscular dystrophy and Parkinson's disease - COMBINED!
This particular project will provide seizure patients with movement monitors in the coming year, decreasing the risk of each seizure and greatly increasing the likelihood of surviving a life-threatening episode for people living with epilepsy. This project will also raise awareness about SUDEP to encourage further support of individuals living with epilepsy, their families, and their communities. 50,000 Americans die from seizures and seizure-related causes every year in the United States.
This project has provided additional documentation in a PDF file (projdoc.pdf).
STOMP Out Epilepsy and SUDEP Awareness Walk