Movement Monitors for Epilepsy Patients in Need

by Chelsea Hutchison Foundation
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Movement Monitors for Epilepsy Patients in Need
Movement Monitors for Epilepsy Patients in Need
Movement Monitors for Epilepsy Patients in Need
SAMiAlert Monitor in action
SAMiAlert Monitor in action

Thank you for your continued support of this wonderful project.  We wanted to give you an update on all that is going on at The Chelsea Hutchison Foundation.

Night-time movement monitoring devices save lives – no question.  While there are no guarantees, obviously, we hear reports from families on a regular basis that supports our beliefs.  Parents and caregivers breath a sigh of relief knowing there is a line of defense in place in the prevention of SUDEP - an acronym for Sudden Unexpected Death in Epilepsy.  To date, we have provided 412 monitors across the United States.  We thought you'd enjoy seeing the faces of some of most recent monitor recipients.

"Thank you, thank you, thank you, a million times over! Something told me to leave the monitor up by me tonight. I realized I hadn't heard a breath I looked and his face was twitching all over the place. I caught a seizure before the alarm even did!"

"There are not enough words to express the millions of Thanks! We received our Sami today. Thank you so very much for this amazing SamiAlert."

We have many exciting events coming up this year.  Our spring gala takes place in the Denver Metro area on April 22, 2017.  The evening will be filled with good food, good friends, wonderful auctions and entertainment by Colorado Casino Nights and Spinphony Electric Strings.  For more information, visit Casino Royale Gala 2017

On June 3, 2017, the 2nd Annual Epilepsy Awareness Day at Elitch Gardens will take place.  This event offers highly discounted admission tickets for those who wish to attend.  We will paint this park with purple to raise some awareness and create community for those who feel so isolated living with an epilepsy diagnosis.   We will also be holding the 2nd Annual Purple Duck Chase in Elitch Gardens Lazy River.  Sponsor ducks from anywhere for a chance to win some wonderful prizes.

The 8th Annual STOMP Out Epilepsy and SUDEP Awareness Walk will take place in September.  Stay tuned for a number of locations across the United States.  If you aren't near one of our organized STOMPS, you can register as a virtual walker and STOMP in your own community.  We will have more details in our next update.

This past November, The Chelsea Hutchison Foundation hosted 7 families to attend the 4th Annual Epilepsy Awareness Day at Disneyland and the one-of-a-kind Epilepsy Expo.  The Expo offers a wealth of information  - exposure to professionals, treatment options, education, and hope.  That alone is invaluable to these families -  to have all of this available to them, in one place. There is so much information under one roof - it's amazing!  Many times in their daily lives dealing with a child living with Epilepsy, there is such isolation - and not only for the parents - but the kids as well.  Our Disney families meet and instantly bond with the other families who understand the struggles, the fear, the endless search for answers.  If you are interested in donating to this program we fondly call Chelsea's Wish, please click here for more information.  This event is life-changing for those who attend.

Here are links to other fundraising pages we currently have on GlobalGiving.org.  Please take a moment and check them out.

Seizure-Response Dogs

Weighted Blankets for Epilepsy Patients

As always, thank you for your continued support!  Chelsea's work is reaching new levels and we are grateful to you for helping us!

Recent Monitor Recipients
Recent Monitor Recipients
Recent Monitor Recipients
Recent Monitor Recipients
Recent Monitor Recipients
Recent Monitor Recipients
Recent Monitor Recipients
Recent Monitor Recipients
Recent Monitor Recipients
Recent Monitor Recipients
Recent Monitor Recipients
Recent Monitor Recipients
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We are so lucky to have your support.  Please accept a huge “Thank you!” from all of us at The Chelsea Hutchison Foundation (“CHF”) for your generous support.  Your contribution has played an essential part in providing life-saving, hope-sustaining support to families across the country!

Thanks to the generosity of donors like you, 391 families are sleeping a little better knowing there is a line of defense in place, watching their loved one while they sleep.  Chelsea passed away in her sleep during the middle of the night and we, as her family, believe if we had known to monitor her at night, we may have had the opportunity to save her life. 

Enjoy seeing the faces of our most recent monitor recipients.

The Chelsea Hutchison Foundation grants comfort and hope to those affected by epilepsy through providing monitoring resources, vital information, and a safe haven for conversation and community.

Our main goal is to raise awareness of SUDEP and to make a positive difference in the lives of individuals and families living with epilepsy.

We raise funds to provide education about SUDEP and to provide seizure response dog grants and movement monitors that help to protect against SUDEP.

We stay up-to-date on current trends in medical technology in order to be able to provide the most effective devices as they become available.

We respect the value and quality of life of every person living with epilepsy.

We are dedicated to providing opportunities that allow individuals and families greater independence, increased confidence, ability to enjoy social environments, and community understanding.

Here are links to our other project on Globalgiving.org.  We hope you will take a moment to check them out.

Seizure-Response Service Dogs

Make a Dream Come True

Weighted Blankets

Your gift to the Chelsea Hutchison Foundation has kept us going on our mission to bring comfort and hope to individuals and families for whom struggling with epilepsy is a daily reality, and has allowed us to give relief directly to those who need it most. We are grateful, truly.

 Warmly,

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We wanted to update you on this project.  This is an ongoing project as we receive 10-15 requests a month from families who are desperate for a night's sleep.  Since we started providing monitors to those in need in 2010, we have had the priviledge of providing 363 across the US, some in Canada and even one in Australia.  We currently have eight families in line to receive them as funds arrive.  

So many of our families are sleep deprived, afraid they might miss a loved one's seizure while sleeping.  These monitors provide families with a line of defense in preventing SUDEP (Sudden Unexpected Death in Epilepsy) and allow for some sleep at night.  Epilepsy affects over 3 million Americans of all ages.  Almost 500 new cases of epilepsy are diagnosed every day and it is estimated that up to 50,000 Americans die from seizures and seizure-related causes every year in the United States.  

"Without my SAMiAlert Monitor, my son may not even have his diagnosis.  The symptoms we saw were too vague to call seizures.  We suspected nocturnal seizures for a long time, but could not prove he was actually having them.  When we finally learned about movement monitors, we obtained one immediately.  After hooking it up, within a few days, we had several seizures recorded of various types."

"We knew our daughter was having a lot of seizures, so we were blessed with a monitor through The Chelsea Hutchison Foundation.  We did not know until we received the monitor that she was having multiple seizures every night right around the same time."

We appreciate your support more than we can express in words!  We have a few other Globalgiving projects we'd like to share with you.  

Seizure-Response Service Dogs

Epilepsy Awareness Day at Disneyland

Weighted Blankets

A Seizure-Response Service Dog for Zachary

A Seizure-Response Service Dog for Parker

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2015-16 Monitor Recipients
2015-16 Monitor Recipients

It is time for another update from The Chelsea Hutchison Foundation on this project.  We are so grateful for your support of this very important project. Monitors save lives - we hear it every day!!!

To date, we have provided 353 life-saving movement monitors.  Our demand is huge as when families learn these are available, they are desperate to get a decent night sleep by having these lines of defense in place.  It is hard to keep up with the requests.  We work tiredlessly to be able to support these families.  The stories we hear and the feedback we receive is amazing.

"The CHF is an amazing foundation!!  We are so grateful for their help in getting our daughter a seizure monitor.  No family should have to lose their child to SUDEP (Sudden Unexpected Death in Epilepsy) and thanks to CHF, more and more families are decreasing the chances because of the seizure monitors they are purchasing for families.  We will forever be grateful to CHF!"  Heather L.

"The Chelsea Hutchison Foundation connected my son Connor Doran with support for his Epilepsy. They sponsored him so we could afford a Smart Monitor and have helped him become independent and confident! We have now connected many other people with CHF to get them the support and help they need to live a full and safer life."  Dare To Dream, Amy and Connor, America's Got Talent Top 12 Indoor Kite Flier

Enjoy seeing the faces of our 2015-2015 monitor recipients.  You will see that epilepsy does not discriminate.  One in 26 will be diagnosed with epilepsy in their lifetime.  Epilepsy affects over 3 million Americans of all ages - more than multiple sclerosis, cerebral palsy, muscular dystropy and Parkinson's disease - combined.  Almost 500 new cases of epilepsy are diagnosed every day and, like Chelsea, it is estimated that up to 50,000 Americans die from seizures and seizure-related causes every year in the United States.

We have some exciting events coming up.  The Epilepsy Awareness Day at Elitches and the   Purple Duck Chase, both at Elitch Gardens in Denver, CO is June 4, 2016.  This event was inspired by Epilepsy Awareness Day at Disneyland which takes place in November in Anaheim, CA.  Our hope is to be able to send families to participate in both events this year.  STOMP Out Epilepsy and SUDEP Awareness Walk/Run will take place in 10 locations across the United STates this September.  We'd love to see you at any of these events!


Thank you again for your continued support.  

2015-16 Monitor Recipients
2015-16 Monitor Recipients
2015-16 Monitor Recipients
2015-16 Monitor Recipients
2015-16 Monitor Recipients
2015-16 Monitor Recipients
2015-16 Monitor Recipients
2015-16 Monitor Recipients
2015-16 Monitor Recipients
2015-16 Monitor Recipients
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It is time for another update from The Chelsea Hutchison Foundation on this project.  I can't tell you how much we appreciate your support of our work and you are truly making a difference in the lives of those who struggle.  We receive 10-15 requests a week for help and the support we receive from you helps us keep up with requests.  We currently have 25 requests in hand.

To date, we have provided over 330 life-saving movement monitors.  The photo shown is that of a SAMiAlert monitor in place.  Should this child experience unusual movement or a seizure during the night, the camera will record the episode and alarm this parents.  You can't even believe the peace this brings to a Mother, Father or caregiver.  It is hard to keep up with the requests.  We work tiredlessly to be able to support these families.  The stories we hear and the feedback we receive is amazing!  

"The Chelsea Hutchison Foundation has made a great impact on our life. By providing a sleep moment monitor for my son, it has given my son more independence. They are dedicated to raising awareness . Through the foundation we were given the opportunity to go Disneyland during the Epilepsy Awareness Day. We met so many people and now have life long friends all thanks to CHF."  April L. 

"This organization helped fund our SAMi alert system for my daughter with intractable epilepsy. We couldn't afford a system like this without this wonderful organization! After getting the system I was able to notify her doctor she was having hour long seizures during her sleep. Without this system we would have never known! Thanks so much Chelsea foundation!"  anonymous

"The Chelsea Hutchison Foundation has been wonderful with helping on advice for our son (9). They also were amazing with working a way for us to receive a SAMi video monitor. This has been an extreme help, not only did they assist with our costs involved, but more importantly helped with peace of mind and as parents we are able to sleep better at night, in the event our son has a seizure. We are greatful for their assistance in memory of their daughter. Thankful for all they do!  Annmarie L.

"This is a family-based foundation that was created after the loss of a beautiful girl (their daughter) named Chelsea. They have made it their mission and Chelsea's legacy to ensure no more lives are lost to SUDEP. During the time when I had recently given up my full-time employment (and bread-winner role in my household which made the medical bills that much more overwhelming) to care for our infant daughter with epilepsy, The Chelsea Hutchison Foundation subsidized the cost of Emfit, a movement monitor to detect seizures during my daughter's sleep. This not only took away from some financial stress, but provided an invaluable gift of peace of mind so I was able to sleep at night once again."   Juliann B.

February 8, 2016 was International Epilepsy Awareness Day and in honor of this date, we have been featuring individuals who have epilepsy and their journies.  Click here to read what this is like for some very special people!

We have some exciting events coming up.  Fly Me to the Moon is May 7th in Lone Tree, CO - our 7th Annual Spring Gala.  The 1st Annual Epilepsy Awareness Day at Elitch Gardens is June 4, 2016 in Denver, CO.  This event was inspired by Epilepsy Awareness Day at Disnleyland which takes place in November in Anaheim, CA.  Our hope is to be able to send families to participate in both events this year.  Details are coming together for our 7th Annual STOMP Out Epilepsy and SUDEP Awareness Walk/Run this September.  It is possible that we will have orchestrated STOMPS in 12 different locations across the United States.  We'd love to see you at any of these events!

Here are links to a few smaller projects we have on GlobalGiving that we thought you might be interested in.

A Seizure Response Service Dog for Zarek

A Seizure Response Service Dog for Chelsi

A Seizure Response Service Dog for Chelsea

Thank you again for your continued support.  

 

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Organization Information

Chelsea Hutchison Foundation

Location: Littleton, CO - USA
Website:
Facebook: Facebook Page
Twitter: @ChelseasLegacy
Project Leader:
Julie Hutchison
Littleton, CO United States
$3,921 raised of $10,000 goal
 
93 donations
$6,079 to go
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