Giving Kids a Smile Like Yours In Colombia

by FISULAB - CENTRO DE REHABILITACION PARA NINOS CON LABIO Y PALADAR FISURADO
Play Video
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia
Giving Kids a Smile Like Yours In Colombia

Recently we wanted to del ve into the world of our young people. We have carried out working groups to learn about their experiences and their perceptions around the socio-emotional aspect and the impact of being born with CLP when facing difficult stages such as adolescence. Based on these experiences, we want to develop a program  to provide the youngest with better tools to face growth and the passage through the different social spaces that are implicit in it.

 It is well known that children with cleft lip and palate are at high risk of having alterations in their socio-emotional development. Low self-esteem and adjustment problems are some of the issues that are frequently mentioned. Since its inception, Fisulab, aware of this situation, has worked comprehensively with patients and families to develop and strengthen social skills and self-esteem. Despite the efforts, we have detected that adolescence represents a greater challenge than what was foreseen for them. Adolescence is a difficult but necessary period to go through to consolidate ourselves as adults. During this period, young people strengthen their personalities, discover their interests, and prepare to join the world of adults. It is a stage full of confusion and challenges where it becomes very important to fit into the groups. We have detected, among patients with CLP, many cases in which it even seems that all the previous work has been lost in the intricacies of facing society from the position of the adolescent.

From group work sessions with adolescents and young adults, we have understood that being born with a cleft lip and palate is like living on a roller coaster, as described by a young woman, with emotions that fluctuate strongly. Many of the experiences that any young person goes through, those who have been born with the condition, feel that it is worse for them. They mostly feel forewarned when they are going to face a social group. They feel judged on first impression and are afraid to interact with others. They believe that those who do not have that condition are in a bubble of privilege.

They thank the pandemic for the use of face masks; They say that for them it was a time that allowed them to go unnoticed, at least from the moment of the first impression.

Despite these feelings, most of them have managed to develop their life project according to their interests, and all this is thanks to the support of their family and the opportunity of  having received a comprehensive treatment for which they feel grateful and fortunate. They can look back and understand that all these experiences left them with deep learning that makes them stronger to face the world.

The general result of the meetings has been a powerful space that they appreciate. They mention that these meetings between peers allow them to talk with those who have had similar experiences and this is proven  very positive. It allows them to share, learn, release, and grow around their condition. Some had never had this type of experience and ask to establish them as routine spaces.

Share on Twitter Share on Facebook

MOTIVATION IS WHAT MAKES YOU START, COMMITMENT IS WHAT KEEPS YOU GOING

 

The commitment of our patients is very important for the progress of their treatment, which is why we take advantage of a year end farewell full of games and activities focused on commitment. We managed to identify what they need to put on the shirt, looking for possible solutions so that nothing hinders their progress.

 

Finally, they wrote down their commitments and signed their shirts with their own handwriting, some with drawings, others with words. A great day to reach great achievements in 2022 

 

At the end of the day we had the opportunity to share with each of them a gift, a snack and a nice Christmas present.

 

The result was achieved with total satisfaction by being able to provide our children with a space of trust and respect where they can share emotions, interests and motivations that stimulate their cognitive and social development wich is so important in everyone's life.

 

This is how we close a new year after 21 efforts and achievements

 

Our choir also shone this Christmas season, when our FISULAB choir had its presentation at the Christmas Carols Concert 2021, a virtual event held in the United Kingdom. The result was very satisfactory, showing great progress in each of the members thanks to their commitment in each of the rehearsals. Today we say with pride, what a great presentation.

 

 

 

 

A DAY FULL OF HAPPINESS AND SATISFACTION

  

Sharon arrived in Fisulab in 2010 when she was 11 years old, from that moment she began the arduous and long journey of her treatment. She was diagnosed with a left unilateral cleft lip and palate sequela, where she identified with some speech difficulties that affected her communication.

 

She started her treatment from speech therapy and orthodontic support during all these years; In the middle of this process she underwent osteogenic surgery which contributed a lot to her treatment.

 

Today we want to share with you with great happiness the culmination of her treatment, managing to overcome her speech difficulties, improve her physical appearance, her bite, the appearance of her teeth, but above all, improve her way of relating to the world.

 

We congratulate Sharon for this great achievement, people like her are an example for all, because with perseverance and effort everything is achieved.

Share on Twitter Share on Facebook
talent show
talent show

Each year, we unite and celebrate our condition with our pairs throughout South America. All of the foundations that treat this condition on this side of the continent gather around the "Cleft Lip and Palate week" in order to create awareness around this condition and about the importance of an integral treatment in all of our patient's processes.  

We maintain our virtuality in a lot of our events but we mixed it with some face to face events like our now well know talent show, in which many of our kids took the opportunity to show us what we are able to do when we bring out our hidden talents and our inner strength. This was a space that allow all of our patients to show themselves as capable and very talented human beings.

This show was so successful that we had to postpone our closing time due to new kids wanting to participate.  

talent show 2
talent show 2
talent show 3
talent show 3
talent show 4
talent show 4
talent show 6
talent show 6
Share on Twitter Share on Facebook

4 years ago, the world knew Jeronimo our patient when he won the "GlobalGiving photo contest" in the health category. He was just a baby who was about to enter surgery, his first step into a long recovery and an integral treatment that would start with his first therapy but that would go on into a process that includes speech therapy, psychology sessions, among other areas that treat all of our patients. 

4 years later Jeronimo has become a strong little man who has overtake a lot of the challenges that come with his condition. His mother tells us that at the beginning she was very scared and she even cried a lot when she found out that her son was going to be born with cleft lip and palate. 

Later on, she realized that the fact that her son was born no matter his condition was a blessing for her and that with the help of FISULAB, he is just a normal kid that loves to play, goes to school with his friends, and does what every normal kid does.

She recognizes that her son's surgery was just the start of a long treatment and her whole family is commited to complete these steps side by side with will and discipline. 

Jeronimo and his family are glad to share their smiles with the whole world around them.

Share on Twitter Share on Facebook

It's been almost a year since we last met face to face I Fisulab. 

We had some rough months keeping up the hard work for both our patients and our team, but thanks to our very generous donors, and our very committed team, we managed to come through.

According to our government regulations, we are now able to go back together with a lot of biosecurity measurements.

Since a while ago we have now opened our doors and we are coming back together to our foundation. Our efforts through virtuality were enormous  and we managed to accomplish big things in our patients treatments, but the feeling of seeing ourselves back again is uncomparable with masked hugs and keeping our numbers limited, our patients and doctors are now working together to be able to perform the procedures we were not able to do before.

Links:

Share on Twitter Share on Facebook
 

About Project Reports

Project Reports on GlobalGiving are posted directly to globalgiving.org by Project Leaders as they are completed, generally every 3-4 months. To protect the integrity of these documents, GlobalGiving does not alter them; therefore you may find some language or formatting issues.

If you donate to this project or have donated to this project, you will get an e-mail when this project posts a report. You can also subscribe for reports via e-mail without donating.

Get Reports via Email

We'll only email you new reports and updates about this project.

Organization Information

FISULAB - CENTRO DE REHABILITACION PARA NINOS CON LABIO Y PALADAR FISURADO

Location: Bogota, D.C., Bogota - Colombia
Website:
Facebook: Facebook Page
Project Leader:
Pilar Echeverri
Bogota, Cundinamarca Colombia
$33,552 raised of $40,000 goal
 
483 donations
$6,448 to go
Donate Now
lock
Donating through GlobalGiving is safe, secure, and easy with many payment options to choose from. View other ways to donate

FISULAB - CENTRO DE REHABILITACION PARA NINOS CON LABIO Y PALADAR FISURADO has earned this recognition on GlobalGiving:

Help raise money!

Support this important cause by creating a personalized fundraising page.

Start a Fundraiser

Learn more about GlobalGiving

Teenage Science Students
Vetting +
Due Diligence

Snorkeler
Our
Impact

Woman Holding a Gift Card
Give
Gift Cards

Young Girl with a Bicycle
GlobalGiving
Guarantee

Sign up for the GlobalGiving Newsletter

WARNING: Javascript is currently disabled or is not available in your browser. GlobalGiving makes extensive use of Javascript and will not function properly with Javascript disabled. Please enable Javascript and refresh this page.