By Julie L Hutchison | President, Co-Founder and Chelsea's Mother
Thank you for your continued support of this wonderful project. We wanted to give you an update on all that is going on at The Chelsea Hutchison Foundation.
Night-time movement monitoring devices save lives – no question. While there are no guarantees, obviously, we hear reports from families on a regular basis that supports our beliefs. Parents and caregivers breath a sigh of relief knowing there is a line of defense in place in the prevention of SUDEP - an acronym for Sudden Unexpected Death in Epilepsy. To date, we have provided 412 monitors across the United States. We thought you'd enjoy seeing the faces of some of most recent monitor recipients.
"Thank you, thank you, thank you, a million times over! Something told me to leave the monitor up by me tonight. I realized I hadn't heard a breath I looked and his face was twitching all over the place. I caught a seizure before the alarm even did!"
"There are not enough words to express the millions of Thanks! We received our Sami today. Thank you so very much for this amazing SamiAlert."
We have many exciting events coming up this year. Our spring gala takes place in the Denver Metro area on April 22, 2017. The evening will be filled with good food, good friends, wonderful auctions and entertainment by Colorado Casino Nights and Spinphony Electric Strings. For more information, visit Casino Royale Gala 2017
On June 3, 2017, the 2nd Annual Epilepsy Awareness Day at Elitch Gardens will take place. This event offers highly discounted admission tickets for those who wish to attend. We will paint this park with purple to raise some awareness and create community for those who feel so isolated living with an epilepsy diagnosis. We will also be holding the 2nd Annual Purple Duck Chase in Elitch Gardens Lazy River. Sponsor ducks from anywhere for a chance to win some wonderful prizes.
The 8th Annual STOMP Out Epilepsy and SUDEP Awareness Walk will take place in September. Stay tuned for a number of locations across the United States. If you aren't near one of our organized STOMPS, you can register as a virtual walker and STOMP in your own community. We will have more details in our next update.
This past November, The Chelsea Hutchison Foundation hosted 7 families to attend the 4th Annual Epilepsy Awareness Day at Disneyland and the one-of-a-kind Epilepsy Expo. The Expo offers a wealth of information - exposure to professionals, treatment options, education, and hope. That alone is invaluable to these families - to have all of this available to them, in one place. There is so much information under one roof - it's amazing! Many times in their daily lives dealing with a child living with Epilepsy, there is such isolation - and not only for the parents - but the kids as well. Our Disney families meet and instantly bond with the other families who understand the struggles, the fear, the endless search for answers. If you are interested in donating to this program we fondly call Chelsea's Wish, please click here for more information. This event is life-changing for those who attend.
Here are links to other fundraising pages we currently have on GlobalGiving.org. Please take a moment and check them out.
Weighted Blankets for Epilepsy Patients
As always, thank you for your continued support! Chelsea's work is reaching new levels and we are grateful to you for helping us!
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