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Physical Health Ukraine Project #54000

Supporting Rare Disease Patients

by CF Orphanni Synytsi

Project Report | Aug 8, 2022
Four patients received oxygen concentrators

By Tetiana Zamorska | Executive Director

Artem (16 y.o.) from Volyn region

Our dear Donors,

We are happy to share our news with you on the project progress in supporting Ukrainian rare (orphan) diseases patients.

Thanks to Your donations, four donees of the Foundation received recently a life-saving medical equipment - oxygen concentrators.

They are Ukrainian patients living with a rare diagnosis Pulmonary Hypertension. This disease affects the heart and lungs, and significantly changes the quality of life. Its treatment is expensive and lifelong, and includes the oxygen therapy. In severe cases patients need a heart-lung transplantation.

We sent oxygen concentrators to Artem (16 y.o.) from Volyn region, Yulia (36 y.o.) who was forced to flee from Bucha to the western part of Ukraine in the first days of the war, Olena (26 y.o.) from Zhytomyr, and Inna (52 y.o.) from Kyiv region.

We are also happy to share with you the words of gratitude of Artem`s mother: "Thank you very much! This is a great help for us, may the God bless you!”

Because of the war and its impact, rare diseases patients in Ukraine became more vulnerable.Now, with oxygen concentrators, they have 24-hour access to the respiratory in-home care they need.

Your participation in our project https://goto.gg/54000 makes great encouragement for patients who remained in Ukraine in these hard times. Your support can significantly improve their health and quality of life in the conditions of humanitarian crisis and war in Ukraine.

Warm regards,

CF Orphanni Synytsi

Yulia (36 y.o.) from Bucha (Kyiv region)

Olena (26 y.o.) from Zhytomyr

Inna (52 y.o.) from Kyiv region

Links:

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Apr 15, 2022
A concentrator for a baby with rare disease

By Tetiana Zamorska | Executive Director

Apr 8, 2022
An oxygen concentrator delivered before the war

By Tetiana Zamorska | Executive Director

We are extremely grateful to donors - from Ukraine and abroad - for the support of Ukrainian orphan patients!

A few days before the start of russia`s military invasion, our Charitable Foundation Orphanni Synytsi managed to purchase a 5-liter oxygen concentrator thanks to the funds received from the international charitable platform GlobalGiving and the Ukrainian Philanthropic Marketplace dobro.ua.

This concentrator was delivered to a 26-year-old girl Yulia with a rare (orphan) disease Pulmonary Hypertension. This disease affects the heart and lungs, reduces blood saturation. Its treatment is expensive and lifelong. In severe cases, a lung and heart transplantation is required.

Yulia is from Chernihiv region. After being diagnosed with a rare diagnosis, the young girl became an active member of the Association of Patients with Pulmonary Hypertension (Ukraine). Last year Yulia participated actively in the charity fair of our Foundation for fundraising for oxygen concentrators. Yulia gave her paintings (on the photo below).

Before the war, we posted on our page that we had delivered to Yulia the concentrator, a medical equipment critically needed for daily oxygen therapy at home. And later we planned to publish a post of gratitude to our donors with a photo of Yulia with this concentrator. But russia's military invasion changed all plans at once…

The war caught Yulia in Kyiv, where she lived and worked at the time. She received the concentrator 5 days before the war started. Because of the danger and missile attacks on the capital and other Ukrainian territories, the girl was forced to flee the country.

Thanks to the support of the European community for people fleeing Ukraine, Yulia is now safe in Italy, where she has received temporary shelter and access to specialized medical care for patients with pulmonary hypertension. Italian TV channel TG2Medicina33 filmed a story about Yulia at the Monaldi Hospital (Naples) - www.fb.com/tg2rai/videos/388905946014564.

Yulia`s paintings

Links:

post about Yulia on the FB page of CF Orphanni Synytsi

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