Supporting people living with rare (orphan) diseases in Ukraine with life-saving medicines and medical care. Advocating for rights of patients with rare diseases to treatment Rare diseases are incurable, lifelong, disabling and require expensive treatment. Most of patients are children.
Each of GlobalGiving’s nonprofit partners is required to send quarterly donor reports detailing the impact of their work. Here are some of their recent updates:
By Tetiana Mykhailova | Executive director
We are happy to share an important update with you. Finally, thanks to the joint efforts of the NGO “Rare Diseases of Ukraine”, Max’s parents, and our foundation, the extremely... Read the full report ›By Tetiana Mykhailova | Executive director
Dear firends, Because of your support, a grant from GlobalGiving, and generous contributions from Ukrainian donors, over the past three months our foundation has provided medicines, specialized... Read the full report ›By Tetiana Mykhailova | Executive director
Dear friends, Some families spend years searching for a diagnosis. Treatments don’t work, symptoms progress, and the most important question remains unanswered: What is happening to our... Read the full report ›
