Genetic testing for children with rare diseases Supporting Rare Disease Patients Supporting Rare Disease Patients Supporting Rare Disease Patients

CF Orphanni Synytsi

Org #97172
Vetted since 2021
2018
year founded
$463,306
raised on GlobalGiving
3
years fundraising
0
projects funded
* Amounts in US Dollars

Mission

Supporting people living with rare (orphan) diseases in Ukraine with life-saving medicines and medical care. Advocating for rights of patients with rare diseases to treatment Rare diseases are incurable, lifelong, disabling and require expensive treatment. Most of patients are children.

Projects (2)

Project Leaders
Tetiana Mykhailova
Tetiana Mykhailova
Tetiana Mykhailova
Tetiana Mykhailova
Organization Information
7, Rusanivsky boulevard, office 3
Kyiv, Kyiv 02154
Ukraine
+380939120012
Organization Information
7, Rusanivsky boulevard, office 3
Kyiv, Kyiv 02154
Ukraine
+380939120012

Project Reports

Each of GlobalGiving’s nonprofit partners is required to send quarterly donor reports detailing the impact of their work. Here are some of their recent updates:

Together we helped 24 children receive a diagnosis

By Tetiana Mykhailova | Executive director

Dear Friends, We want to extend our heartfelt thanks to each of you for the incredible support you’ve shown for our project! This initiative funds genetic diagnostics for children with severe... Read the full report ›

A Breath of Hope for Yehor

By Tetiana Mykhailova | Executive director

Dear friends, We are truly grateful to share some heartwarming news and extend our deepest thanks to all of you who helped us secure an oxygen concentrator for 17-year-old Yehor from Dnipro. Yehor is... Read the full report ›

Medical aspirator for little Sofia

By Tetiana Mykhailova | Executive director

Dear friends, We want to share some good news and express our deepest gratitude for helping us purchase a medical aspirator for little Sofia, who has recently turned 1 year and 5 months old. Sofia is... Read the full report ›
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