Supporting Rare Disease Patients Supporting Rare Disease Patients Supporting Rare Disease Patients Supporting Rare Disease Patients

CF Orphanni Synytsi

Org #97172
Vetted since 2021
2018
year founded
$335,691
raised on GlobalGiving
2
years fundraising
0
projects funded
* Amounts in US Dollars

Mission

Supporting people living with rare (orphan) diseases in Ukraine with life-saving medicines and medical care. Advocating for rights of patients with rare diseases to treatment Rare diseases are incurable, lifelong, disabling and require expensive treatment. Most of patients are children.

Projects (1)

Supporting Rare Disease Patients
Ukraine / Physical Health
 
Project Leaders
Tetiana Mykhailova
Tetiana Mykhailova
Tetiana Mykhailova
Tetiana Mykhailova
Team
Tetiana I Mykhailova
Organization Information
7, Rusanivsky boulevard, office 3
Kyiv, Kyiv 02154
Ukraine
+380939120012
Organization Information
7, Rusanivsky boulevard, office 3
Kyiv, Kyiv 02154
Ukraine
+380939120012

Project Reports

Each of GlobalGiving’s nonprofit partners is required to send quarterly donor reports detailing the impact of their work. Here are some of their recent updates:

Jun 8, 2023
5 portable concentrators for orphan patients
Our dear Donors, We are happy to share our news with you on the project progress in supporting Ukrainian people living with a rare (orphan) disease. A sense of helplessness overcomes Ukrainian...
Feb 13, 2023
Two patients received respiratory equipment
Our dear Donors, We are happy to share our news with you on the project progress in supporting Ukrainian people living with a rare (orphan) disease. As the war continues Ukrainian patients with...
Oct 24, 2022
Two Ukrainian patients received oxygen equipment
Our dear Donors, We are happy to share our news with you on the project progress in supporting Ukrainian people living with a rare (orphan) disease. Thanks to Your donations, two patients with a rare...
 
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