Katya (11 y.o.), cystic fibrosis Nastya (9 y.o.), cystic fibrosis Denys (12 y.o.), spinal muscular atrophy Ruslan (11 y.o.), spinal muscular atrophy

CF Orphanni Synytsi

Org #97172
Vetted since 2021
2018
year founded
$185,053
raised on GlobalGiving
1
year fundraising
0
projects funded
* Amounts in US Dollars

Mission

Supporting people living with rare (orphan) diseases in Ukraine with life-saving medicines and medical care. Advocating for rights of patients with rare diseases to treatment Rare diseases are incurable, lifelong, disabling and require expensive treatment. Most of patients are children.

Projects (1)

Supporting Rare Disease Patients
Ukraine / Physical Health
 
Project Leaders
Tetiana Mykhailova
Tetiana Mykhailova
Tetiana Zamorska
Tetiana Zamorska
Team
Tetiana I Zamorska
Organization Information
7, Rusanivsky boulevard, office 3
Kyiv, Kyiv 02154
Ukraine
+380503319497
Organization Information
7, Rusanivsky boulevard, office 3
Kyiv, Kyiv 02154
Ukraine
+380503319497

Project Reports

Each of GlobalGiving’s nonprofit partners is required to send quarterly donor reports detailing the impact of their work. Here are some of their recent updates:

Oct 24, 2022
Two Ukrainian patients received oxygen equipment
Our dear Donors, We are happy to share our news with you on the project progress in supporting Ukrainian people living with a rare (orphan) disease. Thanks to Your donations, two patients with a rare...
Aug 8, 2022
Four patients received oxygen concentrators
Our dear Donors, We are happy to share our news with you on the project progress in supporting Ukrainian rare (orphan) diseases patients. Thanks to Your donations, four donees of the Foundation...
Apr 15, 2022
A concentrator for a baby with rare disease
Little Anya from Vinnytsya region in Ukraine is only 1 year and 4 months old.       At the end of the last year, the doctors of the National Children Specialized Hospital OKHMATDYT...
 
WARNING: Javascript is currently disabled or is not available in your browser. GlobalGiving makes extensive use of Javascript and will not function properly with Javascript disabled. Please enable Javascript and refresh this page.