Genetic testing for children with rare diseases Supporting Rare Disease Patients Supporting Rare Disease Patients Supporting Rare Disease Patients

CF Orphanni Synytsi

Org #97172
Vetted since 2021
2018
year founded
$337,967
raised on GlobalGiving
2
years fundraising
0
projects funded
* Amounts in US Dollars

Mission

Supporting people living with rare (orphan) diseases in Ukraine with life-saving medicines and medical care. Advocating for rights of patients with rare diseases to treatment Rare diseases are incurable, lifelong, disabling and require expensive treatment. Most of patients are children.

Projects (2)

Project Leaders
Tetiana Mykhailova
Tetiana Mykhailova
Tetiana Mykhailova
Tetiana Mykhailova
Organization Information
7, Rusanivsky boulevard, office 3
Kyiv, Kyiv 02154
Ukraine
+380939120012
Organization Information
7, Rusanivsky boulevard, office 3
Kyiv, Kyiv 02154
Ukraine
+380939120012

Project Reports

Each of GlobalGiving’s nonprofit partners is required to send quarterly donor reports detailing the impact of their work. Here are some of their recent updates:

3 inhalers and a nasal mask for our donees

By Tetiana Mykhailova | Executive director

Dear friends, On behalf of the families and patients living with rare diseases, we would like to extend our deepest gratitude for your recent donations. Your kindness has enabled us to acquire crucial... Read the full report ›

6m.o. Sofiyka needs medical devices to return home

By Tetiana Mykhailova | Executive director

Our dear Donors, We are happy to share our news with you on the project progress in supporting Ukrainian children living with a rare (orphan) disease. In December 2023 our Foundation purchased a... Read the full report ›

Respiratory medical devices for 3 rare disease patients and a hospital

By Tetiana Mykhailova | Executive director

Our dear Donors,We are happy to share our news with you on the project progress in supporting Ukrainian children living with a rare (orphan) disease. Since June 2023 our Foundation has provided 3... Read the full report ›
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