Katya (11 y.o.), cystic fibrosis Nastya (9 y.o.), cystic fibrosis Denys (12 y.o.), spinal muscular atrophy Ruslan (11 y.o.), spinal muscular atrophy

CF Orphanni Synytsi

Org #97172
Vetted since 2021
2018
year founded
$184,199
raised on GlobalGiving
10
months fundraising
0
projects funded
* Amounts in US Dollars

Mission

Supporting people living with rare (orphan) diseases in Ukraine with life-saving medicines and medical care. Advocating for rights of patients with rare diseases to treatment Rare diseases are incurable, lifelong, disabling and require expensive treatment. Most of patients are children.

Projects (1)

Supporting Rare Disease Patients
Ukraine / Physical Health
 
Project Leaders
Tetiana Mykhailova
Tetiana Mykhailova
Tetiana Zamorska
Tetiana Zamorska
Team
Tetiana I Zamorska
Organization Information
7, Rusanivsky boulevard, office 3
Kyiv, Kyiv 02154
Ukraine
+380503319497
Organization Information
7, Rusanivsky boulevard, office 3
Kyiv, Kyiv 02154
Ukraine
+380503319497

Project Reports

Each of GlobalGiving’s nonprofit partners is required to send quarterly donor reports detailing the impact of their work. Here are some of their recent updates:

Apr 15, 2022
A concentrator for a baby with rare disease
Little Anya from Vinnytsya region in Ukraine is only 1 year and 4 months old.       At the end of the last year, the doctors of the National Children Specialized Hospital OKHMATDYT...
Apr 8, 2022
An oxygen concentrator delivered before the war
We are extremely grateful to donors - from Ukraine and abroad - for the support of Ukrainian orphan patients! A few days before the start of russia`s military invasion, our Charitable Foundation...
Dec 30, 2021
4 children received medical respiratory equipment
Dear friends! We are happy to share good news on what's been already done by us – thanks to your donations - for supporting people living with rare (orphan) diseases! 4 children with various...
 
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