Most rare genetic diseases start in childhood, are progressive, and often disabling. They are often "orphan" in the public healthcare system, with few treatments covered, leaving many Ukrainian families unable to afford care. People with these conditions need lifelong, costly medications, medical equipment, or both - essential for sustaining life. Your support provides the vital medicines and equipment that children and adults need to survive, especially during the ongoing humanitarian crisis.
Families affected by rare diseases cannot secure treatment on their own: therapies are lifelong, expensive, and often unavailable in Ukraine. State programs do not cover all of them and frequently face delays or interruptions. Many patients are left without medicines or essential medical equipment, putting their health and lives at risk.
Your support will help provide life-sustaining medications and essential medical equipment for children and adults with rare diseases across Ukraine. Through this project, we can cover urgent needs, bridge gaps in state support, and ensure continuous access to treatment.
Sustained access to treatment will protect the health and quality of life of people living with rare diseases. By supporting this project, you help prevent severe complications, reduce hospitalizations, and give children and adults the chance to live fuller, safer lives. Long-term, this support strengthens resilience for Ukrainian families affected by rare diseases.
This project has provided additional documentation in a PDF file (projdoc.pdf).
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