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Physical Health Ukraine Project #54000

Supporting Ukrainians living with Rare Diseases

by CF Orphanni Synytsi

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

Supporting Ukrainians living with Rare Diseases

A girl with SMA thanking us for the concentrator

A child with SMA got a concentrator

Ruslan (11 y.o.), spinal muscular atrophy

Denys (12 y.o.), spinal muscular atrophy

Nastya (9 y.o.), cystic fibrosis

Katya (11 y.o.), cystic fibrosis

A patient with Pulmonary Hypertension

a 16 y.o. boy with Duchenne muscular distrophy

9 y.o. girl with a rare mitochondrial disease

11 y.o. boy with cystic fibrosis

A 63 y.o. woman with pulmonary hypertension

Our Foundation team and rare disease patients

Respiratory equipment for 9 m.o. baby

A 2 m.o. baby with Spinal muscular atrophy

a poratble concentrator for a rare disease family

2.5-y.o Sofiia with pulse oxemeter

suction device

nutrition

Sofia with tube holders

tracheostomy tube holders

Oxygen concentrator for Yehor, 17 y.o.

Sofia`s mom in front of the hospital

Medical aspirator for inhome use for Sofia

1 2 ›

Organization Information

CF Orphanni Synytsi

Location: Kyiv - Ukraine
Website: http://www.supportrare.com
Facebook: Facebook Page

CF Orphanni Synytsi

Tetiana Mykhailova

Project Leader:
Tetiana Mykhailova
Kyiv , Kyiv Ukraine

$12,886 raised of $50,000 goal

333 donations

$37,114 to go

Donate Now

will cover 1 can of medical nutrition specifically designed for disease-related disorders

will provide 1 kit of inhaler accessories for inhalation therapy for cystic fibrosis

will cover the cost of 1 nebulizer

Six donations of $100 will provide a 5-liter oxygen concentrator for one patient living with a rare disease (such as pulmonary hypertension, cystic fibrosis, or muscular disorders).

will provide 1 pulse oximeter for people who depend on oxygen support

will provide 1 portable suction device for people that have weakness of the respiratory muscles

will provide 1 inhaler to 1 patient living with cystic fibrosis

will provide the necessary minimum of essential medicines for one month of treatment.

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