Supporting Rare Disease Patients

by CF Orphanni Synytsi
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients

Project Report | Feb 13, 2023
Two patients received respiratory equipment

By Tetyana Zamorska | Executive Director

Bohdanchyk (7 y.o.) with the aspirator
Bohdanchyk (7 y.o.) with the aspirator

Our dear Donors,

We are happy to share our news with you on the project progress in supporting Ukrainian people living with a rare (orphan) disease.

As the war continues Ukrainian patients with certain rare diagnosis are increasingly at risk of being without access to respiratory treatment. They need specialized in home care every day, which often depends on the use of special medical  devices. Because of blackouts such devices have to be equipped with rechargeable batteries.

Thanks to the charitable funds of GlobalGiving, our Foundation purchased a life-saving medical device for 7-year-old Bohdanchyk from Volyn region who has a severe form of Spinal Muscular Atrophy. The little boy`s family received a portable aspirator, which can function on the rechargeable battery ensuring respiratory care when needed.

Our Foundation had also the possibility to purchase a powerful 10-liter oxygen concentrator for 68-year-old Volodymyr from the Kirovohrad region, living with a Pulmonary Hypertension – a rare disease which affects lungs and heart. Thanks to GlobalGiving funds, Volodymyr is provided now with 24-hours access to the oxygen therapy.

We are incredibly grateful to all the donors of GlobalGiving for the support and opportunity to save the health and lives of rare diseases patients in these challenging times for Ukraine.

 

Kind regards,

Tetyana Zamorska

Volodymyr (68 y.o.) with the 10-l concentrator
Volodymyr (68 y.o.) with the 10-l concentrator

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Oct 24, 2022
Two Ukrainian patients received oxygen equipment

By Tetiana Zamorska | Executive Director

Aug 8, 2022
Four patients received oxygen concentrators

By Tetiana Zamorska | Executive Director

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Organization Information

CF Orphanni Synytsi

Location: Kyiv - Ukraine
Website:
Facebook: Facebook Page
Project Leader:
Tetiana Mykhailova
Kyiv , Kyiv Ukraine
$11,111 raised of $50,000 goal
 
285 donations
$38,889 to go
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