Support Families Who Have a Terminally Ill Child

by Rainbow Trust Children's Charity
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Support Families Who Have a Terminally Ill Child
Support Families Who Have a Terminally Ill Child
Support Families Who Have a Terminally Ill Child

Project Report | Oct 10, 2017
Becky and Leo's Special Bond

By Jenny-Anne Dexter | Project Leader

Cheeky Leo
Cheeky Leo

Becky is a mum supported by Nicky, a Rainbow Trust Family Support Worker who provides her with emotional support. Becky’s son Leo has extremely complex health difficulties. Due to a family breakdown, Becky doesn’t have any family and friends who can help her care for Leo, so Nicky is a vital life-line to Becky when she needs it. 

“I hadn’t slept for nearly 2 years, I would just doze in between Leo’s medical alarms. I have no one, it’s just me and Leo,” she explains. Eventually, Becky suffered a serious breakdown and was referred to Rainbow Trust Children’s Charity, which provides dedicated support to parents of seriously ill children.

When Becky was first introduced to Nicky it took her quite a while to trust her. “Basically I don’t trust anyone. I have chronic depression and severe anxiety, so letting new people in to my home is hard. It took me a year to trust Nicky, but she was lovely. She kept coming back and was so supportive. I also have dyslexia which Nicky has helped with. She’s learnt when I don’t understand things and helps explain in a way that I’ll understand.”

Nicky got to know Leo carefully so as not to disrupt the close bond Leo and Nicky had. And as Nicky’s relationship with Leo grew, it also did with Becky. “Nicky was just so patient with me. I was quite open and honest at the beginning. I told her I don’t trust anyone, I don’t socialise, I don’t want anyone. I’ll support Leo through anything and be there for him, but sometime I just have to go and have a cry. That’s when I ring Rainbow Trust’s on-call service and speak to Nicky. It takes a long time for someone like me to trust someone and I trust Nicky. I’ve never had that before in my life.”

“Without Nicky I think I just couldn’t do it. When I get really wound up and can’t cope with the stress and stuff that all the other services put on me I speak to Nicky and she just listens to me. She reassures me and puts things into perspective.

"he most important thing about Rainbow Trust is just to know there is someone there that you can trust; that are open and honest with you. They can help you and guide you.”

Your donations are making a wonderful difference to Becky by funding vital Family Support Workers to care for families struggling to cope with their child’s illness. Thank you. 

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Jul 14, 2017
My little Emily

By Katie | Emily's mum

Apr 18, 2017
How Jessica helps Sophie and Matthew

By Jenny-Anne Dexter | Project Leader

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Organization Information

Rainbow Trust Children's Charity

Location: Leatherhead, Surrey - United Kingdom
Facebook: Facebook Page
Twitter: @RainbowTrustCC
Project Leader:
Hanne Widmer
Leatherhead , Surrey United Kingdom
$31,060 raised of $40,000 goal
645 donations
$8,940 to go
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