Parkinson Walk-Fund Raising for 50Poor PD Patients

by Parkinson Patients Support Organization-Ethiopia

Project Report | May 16, 2022
Achievement report,20 May 2022

By Kibra Kebede | Founder and Adviser

PD Walk 2022

Achievement Overview

During this reporting time, Parkinson's patients support organization Ethiopia has encountered a commitment to address the community through the PD walk awareness creation event organized at Durame city, in south nation nationality and regional state where the prevalence of Parkinson's diseases is highly observed.

Information about Parkinson's is still believed to require additional efforts and synergy. realizing this, the organization was trying to mobilize some resources from domestic to international donors and working with higher government sectors/ ministries and federal higher officials, professional associations like the Neurology Association of Ethiopia, CSO, Hospitals, and Ethiopia public health institute.

At the World Parkinson's Day celebration in Ethiopia and PD walk event, various stakeholders, and partners were meaningfully engaged and created awareness about the day and the burden of the disease on a societal level. besides making louder advocacy and promotion, the following achievement was undertaken:

Medical treatment, diagnoses, and screening were made by neurologists for 126 patients. were 60 of them are identified as having Parkinson's cases
40 PD patients were getting walking stick support
various publications; brochures, an annual journals, and booklets were disseminated during the event
Quick survey questioners were developed to track the Parkinson's prevalence rate in Durame city to be reported to the Ministry of Health and Ethiopian public health institute

PD walk

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Jan 20, 2022
Achievement report As of January 20 2021

By Kibra Kebede | founder and adviser

Physiotherapy and exercise indoor center

Report Summary

During this reporting period, Parkinson patients support organization Ethiopia was doing different activities and attaining the objective of this project. From the beginning, PD patients in Ethiopia are marginalized due to the low level of awareness among the GO and the public at large. As a result, they are persuaded to spend their day-to-day activities by isolating themselves from socioeconomic interaction. Therefore, besides the previous commitment and action made by the organization to overcome challenges related to information about PD and wider public awareness creation, PPSO-E were undertaking the following major activities

Provision of PD medicine and other necessities

As usual, PPSO-E was made facilitation of PD medicine and other necessities like sanitary material support for about 50 PD patients. These patients are selected on the basis of their economic status that has no financial capability and affords the price. And those underprivileged and bedridden PD patients were recognized and benefited from the project.

Medical treatment service

10 PD patients were getting access to various treatment services provided by PPSO-E; among this, PD patients who have highly demanded physiotherapy and speech therapy treatment were identified getting profited and which is undertaken by the assigned professionally.

As a result, their physical wellbeing becomes better than ever and they are wittiness about the importance of physical exercises and therapies for their life quality.

Patient Testimony

#The_outstanding_role_of_exercise .

Since August I fell pain in my left knee. When I start stretching my leg to walk, I felt a very sharp pain like having an electric shock. It is so painful that hinders me from any leg movement.

After my organization restarted the boxing exercise. I joined and started working on rock study boxing and cycling with my fellow patients. After 4 days of working, I stop feeling that pain. Thank God for relieving me from the sharp pain. Although, I still remain with a lot of problems created as the result of fear of the sharp pain.

I totally stopped initiating standing and walking. But if I am out of pain, I should have to exercise more to regain my strength. Life for us (PD patients) is a struggle and I have to struggle more to live

Kibra Kebedes Testimony

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Sep 24, 2021
Achievement report As of Sep 2021

By Kibra Kebede | founder

Patient ID publication sample for medication

Project Summary

PD are marginalized & stigmatized in Ethiopia for lack of information. They are also economically poor. We were toughly working towards creating awareness on the disease & side by side generate funds for patients by incorporating the activities with other project interventions undertaking by the organization.

1. Major Activity Undertaking

- Buy Identification badge for 50 Patients

Since the implementation of this initiative, fifty PD patients got identification budges which enable them to access the Parkinson's medication in the operational areas. It is critical to knows that, PD medications are not accessible as others due to various reasons like community awareness and less attention given for the disease even if the number of patients is dramatically increasing as time goes on and impacted the patients, families, and the community at large.

- Buy walking sticks for 50 patients

It is real that as the level of Parkinson’s disease stage increases, the demand of PD patients will remain the same due to the reason they experience all their day-to-day life. Among them, they can’t able to walk as usual and they are persuaded to remain home and which restricts their movement. So, knowing these challenges, the organization are identified the right targets, and about 50 PD patients have received the walking stick and start to take care of their needs without human assistance and reach places they need.

- Medical treatment for 50 patients for 1 month

With the government-selected hospitals and one private eye care center, more than the targeted PD patients were acquire various medication treatments and get access to care and support programs( physiotherapy, speech therapy, eyeglass, etc.

- Drug purchase for fifty PD patients 2 months

With the fund obtained so far with this initiative, PPSO-E have been strongly working with zero tolerance on issues that mostly required for ensuring quality life of PD patients. And medication (Drug provision) is a prior issue for all PD patients. But, if they failed to take their medication, the disease becoming worse to treat and its progressive nature will increase. So, PPSO-E is working very closely with the government and get access to import PD medication to have to distribute with free of charge by covering the cost. So far, more than 146 economically poor PD patients get an ID and medication support.

2. Living Story

A few years back, this elder woman at the age of 76 was leading her life with happiness and the healthiest style. but now she can't make it anymore due to Parkinson's. she requires assistive equipment like a walking stick beside PD medication. she is now so happy to have the support and thank the donors and our organization to give her back what she demands most by now.

PD Physiotherapy Activity

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