Free enquiry service for people with MS in the UK.

by Multiple Sclerosis Trust
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Free enquiry service for people with MS in the UK.
Free enquiry service for people with MS in the UK.
Free enquiry service for people with MS in the UK.
Free enquiry service for people with MS in the UK.
Free enquiry service for people with MS in the UK.
Free enquiry service for people with MS in the UK.
Free enquiry service for people with MS in the UK.

We are enormously grateful to everyone who has donated through GlobalGiving towards our helpline service which is available, free of charge, to anyone in the UK who is affected by Multiple Sclerosis.

This has enabled us to continue to provide our essential individually-tailored support, delivered by our team of expert information officers during the past year, and to constantly update the information we provide and the resources we produce.

Those affected by MS, their family and friends, carers and health professionals are all able to contact us with their queries about the condition through a free phoneline, by email and via facebook. We provide support through the very latest and accurate MS-specific information, through publications, our website and by signposting to other relevant resources and support agencies.

Support from our enquiries team

During 2021 our team responded to a total of 4,107 enquiries and from January – March 2022 have already answered 1,121 new enquiries.

The three main topics we have supported the MS community on during this time are:

  • Symptoms - especially pain, mobility, fatigue
  • Treatment - both disease modifying drugs and symptomatic treatments
  • Services - particularly locating MS nurse services.

Our website

In addition, in 2021 our website received 3,173,063 views, including 2,260,778 views of our information pages, and from January to March it received 2,845,597 views, with 2,072,456 information page views. The most popular pages in 2021 were:

  • Tingling, crawling, burning or prickling in the skin. What IS going on here? (blog)
  • Worried you have MS
  • MS hug (from the A to Z of MS).

To date, in 2022 the most popular page is:

  • The Expanded Disability Status Scale (EDSS - a method of quantifying disability in multiple sclerosis and monitoring changes in the level of disability over time).

Publications

Last year the three most requested MS Trust publications were:

  • Disease modifying drugs
  • Making Sense of MS: core book
  • Living with Fatigue

and the current top three to date in 2022 are:

  • Making Sense of MS: core book
  • Am I having a relapse?
  • Living with Fatigue.

The importance of our enquiry service to those affected by MS is summarised by the following recent quotes:   

“I’m always on their website or on the phone to them. Excellent bunch, I would have had zero support without the MS Trust. You’ve been very helpful, empathetic and all your literature is easily understood and incredibly helpful” - Dom

“Thanks to the free literature you provide, I’ve been able to understand what’s happening to me more, it also helps my family to understand what’s happening with me too. Thank you for being such an incredible charity!” - Bekka, recently diagnosed

Your generosity has been vital in providing all of these crucial resources to inform, support and empower members of the MS community from across the UK so thank you, once again, on behalf of our many service users and all the team at the MS Trust.

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Team member answering a call
Team member answering a call

 

A huge thank you to everyone who contributed to our personal MS helpline service. We have heard time and again of the difference it is making to people who have nowhere else to turn for specialist MS help.

Our enquiry service is a vital service for people affected by MS. Our team of experienced information officers provide help and support via a freephone line, email and Facebook. They provide evidenced-based, up-to-date information on all topics concerning MS.

We have answered over 3,700 queries already in 2021 , and there is still time to go. Questions relating to covid, the covid vaccine, and symptoms, such as pain, were the most frequent topics discussed. We have also seen over one million views on our website.

Evidence based titles such as our Disease modifying drugs book, followed by MS and your feelings and Young person’s guide to MS were the most common publications ordered, and our covid information pages had the highest number of visitors.

I used this service last month, amazing. Response time was the same day, within a couple of hours. Information received - second to none and on point, as if you have your own personal GP, Consultant or Nurse Specialist.” – Irfan.

This service is provided entirely free of charge. It's only because of your kindness and generosity that we can continue to provide a friendly, reassuring and helpful voice to people with MS across the United Kingdom. 

On behalf of our staff, volunteers and service users, thank you for your amazing support.

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The MS Trust's enquiry service continues to be a vital service for people affected by MS.

Our team of experienced information officers provides help and support via a freephone line, e-mail, and Facebook. They provide evidence-based, up-to-date information on all topics concerning MS. In 2020 we answered over 4,000 queries supporting people through the coronavirus pandemic.

The enquiry service has now introduced a new call answering system which makes answering enquiries more efficient and helping even more people with MS, their friends and loved ones.

 

Questions relating to disease-modifying drugs, MS services and nurses, worries about possible symptoms and questions about pain and MS were also the most frequent topics discussed. Evidence-based titles such as our Disease-modifying drugs book, followed by Living with Fatigue and the Making Sense of MS: core pack were the most ordered publications, and an online blog relating to tingling, crawling, burning or prickling sensations, due to MS, was visited over 15,200 times.

“Thank you for your help and the contacts. It gives me hope that there are things we can do, and with the knowledge you have given me I can pursue the right treatment” person with MS. This service is provided entirely free of charge, and we receive no Government funding to run it. It's only because of your kindness and generosity that we can continue to provide a friendly, reassuring, and helpful voice to people with MS across the United Kingdom.

On behalf of our staff, volunteers, and service users, thank you for your amazing support.

With very best wishes

Rob

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The MS Trust's enquiry service continues to be a vital service for people affected by MS. Our team of experienced information officers provide help and support via a freephone line, email and Facebook. They provide evidenced-based, up-to-date information on all topics concerning MS.

So far in 2021 we have answered over 1,000 queries. Questions relating to covid, the covid vaccine, and symptoms, such as pain, were the most frequent topics discussed. We have also seen over one million views on our website.

Evidence based titles such as our Disease modifying drugs book, followed by MS and your feelings and Young person’s guide to MS were the most common publications ordered, and our covid information pages had the highest number of visitors.

“Thank you for your help and the contacts. It gives me hope that there are things we can do, and with the knowledge you have given me I can pursue the right treatment” person with MS.

This service is provided entirely free of charge and we receive no Government funding to run it.

It's only because of your kindness and generosity that we can continue to provide a friendly, reassuring and helpful voice to people with MS across the United Kingdom.

On behalf of our staff, volunteers and service users, thank you for your amazing support

With very best wishes

Rob

Share on Twitter Share on Facebook

The MS Trust's enquiry service continues to be a vital service for people affected by MS. Our team of experienced information officers provide help and support via a freephone line, email and Facebook. They provide evidenced-based, up-to-date information on all topics concerning MS.

In 2020 we answered over 4,000 queries supporting people through the coronavirus pandemic. Questions relating to disease modifying drugs, MS services and nurses, worries about possible symptoms and questions about pain and MS were also the most frequent topics discussed.

Evidence based titles such as our Disease modifying drugs book, followed by Living with Fatigue and the Making Sense of MS: core pack were the most ordered publications, and an online blog relating to tingling, crawling, burning or prickling sensations, due to MS, was visited over 15,200 times.

“Thank you for your help and the contacts. It gives me hope that there are things we can do, and with the knowledge you have given me I can pursue the right treatment” person with MS.

This service is provided entirely free of charge and we receive no Government funding to run it.

It's only because of your kindness and generosity that we can continue to provide a friendly, reassuring and helpful voice to people with MS across the United Kingdom.

On behalf of our staff, volunteers and service users, thank you for your amazing support

With very best wishes

Rob

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Organization Information

Multiple Sclerosis Trust

Location: Letchworth Garden City, Hertfordshire - United Kingdom
Website:
Project Leader:
Marissa Green
Letchworth Garden City, Hertfordshire United Kingdom
$5,636 raised of $96,000 goal
 
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