Free enquiry service for people with MS in the UK.

by Multiple Sclerosis Trust
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Free enquiry service for people with MS in the UK.
Free enquiry service for people with MS in the UK.
Free enquiry service for people with MS in the UK.
Free enquiry service for people with MS in the UK.
Free enquiry service for people with MS in the UK.
Free enquiry service for people with MS in the UK.
Free enquiry service for people with MS in the UK.
May 9, 2022

MS Trust update on our free UK enquiry service

We are enormously grateful to everyone who has donated through GlobalGiving towards our helpline service which is available, free of charge, to anyone in the UK who is affected by Multiple Sclerosis.

This has enabled us to continue to provide our essential individually-tailored support, delivered by our team of expert information officers during the past year, and to constantly update the information we provide and the resources we produce.

Those affected by MS, their family and friends, carers and health professionals are all able to contact us with their queries about the condition through a free phoneline, by email and via facebook. We provide support through the very latest and accurate MS-specific information, through publications, our website and by signposting to other relevant resources and support agencies.

Support from our enquiries team

During 2021 our team responded to a total of 4,107 enquiries and from January – March 2022 have already answered 1,121 new enquiries.

The three main topics we have supported the MS community on during this time are:

  • Symptoms - especially pain, mobility, fatigue
  • Treatment - both disease modifying drugs and symptomatic treatments
  • Services - particularly locating MS nurse services.

Our website

In addition, in 2021 our website received 3,173,063 views, including 2,260,778 views of our information pages, and from January to March it received 2,845,597 views, with 2,072,456 information page views. The most popular pages in 2021 were:

  • Tingling, crawling, burning or prickling in the skin. What IS going on here? (blog)
  • Worried you have MS
  • MS hug (from the A to Z of MS).

To date, in 2022 the most popular page is:

  • The Expanded Disability Status Scale (EDSS - a method of quantifying disability in multiple sclerosis and monitoring changes in the level of disability over time).

Publications

Last year the three most requested MS Trust publications were:

  • Disease modifying drugs
  • Making Sense of MS: core book
  • Living with Fatigue

and the current top three to date in 2022 are:

  • Making Sense of MS: core book
  • Am I having a relapse?
  • Living with Fatigue.

The importance of our enquiry service to those affected by MS is summarised by the following recent quotes:   

“I’m always on their website or on the phone to them. Excellent bunch, I would have had zero support without the MS Trust. You’ve been very helpful, empathetic and all your literature is easily understood and incredibly helpful” - Dom

“Thanks to the free literature you provide, I’ve been able to understand what’s happening to me more, it also helps my family to understand what’s happening with me too. Thank you for being such an incredible charity!” - Bekka, recently diagnosed

Your generosity has been vital in providing all of these crucial resources to inform, support and empower members of the MS community from across the UK so thank you, once again, on behalf of our many service users and all the team at the MS Trust.

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Organization Information

Multiple Sclerosis Trust

Location: Letchworth Garden City, Hertfordshire - United Kingdom
Website:
Project Leader:
Marissa Green
Letchworth Garden City, Hertfordshire United Kingdom
$5,636 raised of $96,000 goal
 
114 donations
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