Free enquiry service for people with MS in the UK.

by Multiple Sclerosis Trust
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Free enquiry service for people with MS in the UK.
Free enquiry service for people with MS in the UK.
Free enquiry service for people with MS in the UK.
Free enquiry service for people with MS in the UK.
Free enquiry service for people with MS in the UK.
Free enquiry service for people with MS in the UK.
Free enquiry service for people with MS in the UK.

Dear Friend,

You subscribed to email updates relating to; ‘Free helpline for 110,000 people with MS in UK by Multiple Sclerosis Trust’ a project on GlobalGiving. Here's the unedited update from the MS Trust:

Providing information & support to people with MS 

Multiple Sclerosis (MS) is a life-long, unpredictable, complex condition, affecting the central nervous system. There is no known cure, and it is most often diagnosed in young people aged in their 20s and 30s. The impact of MS can be life changing, not just for those diagnosed but also for their family and friends.

That's why the MS Trust's enquiry service is so important. We have a dedicated, experienced team available to answer questions via; a Freephone line, email and social media. Our team can provide evidenced-based, practical and up-to-date information on symptoms and matters relating to MS, which can help ease stress and worry for many affected by it.

The need for this service is as pressing today as it ever has been. In 2018, our enquiry team dealt with 3,263 enquiries – the most we have ever received in a year. 

A lady who recently contacted the enquiry service was kind enough to provide this feedback;

 "The other day I called the MS Trust Enquiry Service, which I've never done before. I was bawling my eyes out and the lady I spoke to was so lovely, so kind - I'm welling up just talking about it - and she just listened and she directed me to what I could do and steps I could take and I felt so grateful for that. Kindness is such an important thing and it meant a lot to me" Lara - March 2019

The MS Trust is the only MS charity to run a fully professional enquiry service, and we remain committed to ensuring we continue to offer this service for free. We receive no central or local government funding towards any of our work, and that is why donations such as yours are so important to us.

Thank you so much for supporting the MS Trust and enabling us to continue to provide a friendly, reassuring and helpful voice to people with MS across the United Kingdom. We could not do it without your support and we are truly grateful.

With our very best wishes

Rob Carter

Director of Fundraising & Marketing

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Dear Friend,

You subscribed to email updates from; Free helpline for 100,000 people with MS in UK by Multiple Sclerosis Trust, a project on GlobalGiving. Here's the unedited update from the field:

Providing information & support to people with MS

By Rob Carter - Director of Fundraising and Marketing

Multiple sclerosis is a lifelong, incurable and unpredictable condition. No one can predict how quickly the disease will progress after diagnosis, how effective treatments will be (where available - for many people there are no effective treatments for their form of MS) or which symptoms will occur.

That's why the MS Trust's enquiry service is so important for people with MS - we have a team of experienced information officers available via a freephone line, email and Facebook who provide evidenced-based, constructive and up-to-date information on any topic concerning MS.

The need for this service is as pressing today as it ever has been. The last five months were all in our top eleven busy months (since January 1998); November 2018 was the busiest month ever and was only two calls short of the total number of calls taken in all of 2000. The most frequent enquiries were about disease modifying drugs (DMDs) and the most frequent symptoms that cropped up were pain, spasticity & spasms and altered sensations. All bar nine of the enquiries were completed within three days and all bar two within seven days and the average length of an enquiry was 17.0 minutes.

We are committed to continuing to offer this service for free  - which is why donations like yours are so important to us; we receive no central or local government funding for this or any other service that we offer.

Thank you so much for supporting the MS Trust and enabling us to continue to provide a friendly, reassuring and helpful voice to people with MS across the United Kingdom. It's only because of you that we can do so - we are truly grateful.

With very best wishes

Rob Carter

Director of Fundraising & Marketing

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Multiple sclerosis is a lifelong, incurable and unpredictable condition. No one can predict how quickly the disease will progress after diagnosis, how effective treatments will be (where available - for many people there are no effective treatments for their form of MS) or which symptoms will occur.

That's why the MS Trust's enquiry service is so important for people with MS - we have a team of experienced information officers available via a freephone line, email and Facebook who provide evidenced-based, constructive and up-to-date information on any topic concerning MS. For example, in September we fielded enquiries on drug treatments, the use of medicinal cannabis, fatigue, counselling and stem cell therapy. 

The need for this service is as pressing today as it ever has been. September 2018 was our fifth busiest month ever for enquiries (July and August were also among the top ten busiest.) We are committed to continuing to offer this service for free  - which is why donations like yours are so important to us; we receive no central or local government funding for this or any other service that we offer. 

Thank you so much for supporting the MS Trust and enabling us to continue to provide a friendly, reassuring and helpful voice to people with MS across the United Kingdom. It's only because of you that we can do so - we are truly grateful.

With very best wishes 

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Thanks to donations from people like you, the MS Trust provides a telephone support service offering one-to-one reassurance and evidence-based information to anyone affected by MS. Our team answers around 260 calls every month, often lasting 30–90 minutes. The majority (over 70%) are from people with MS although our service is also valued by family members of those living with MS and by health professionals who are supporting those with MS.

Sitting behind the telephone service are three professional information officers with backgrounds in science, research and information studies. Together they have over 30 years’ acquired knowledge of multiple sclerosis.

“When people phone the enquiry service they often don’t know if they are coming or going,” says one of our information officers. "They can’t talk to their family because they don’t want to worry them. It is often not possible to talk to health professionals. They don’t know anyone else who actually has MS, and even if they did, their experience of the condition could be different.

“They need someone they can talk to, someone who is knowledgeable about MS, someone they can trust to give them objective information, and that is where the enquiry service fits in. We are the assurance that they are not alone, that other people living with MS have experienced something similar. We take them from a dark place, to one from where they might move forward. If that is not possible, we help them to accept the place where they are.”

Thank you for helping to ensure this vital service can be available when people affected by MS need support and information.

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Dear Friend,

Our enquiry service helps people to make the choices that are right for them….. 

Our enquiry service helps to make MS lives better.  All of our services are only possible because of the support of our kind friends, including those who have donated via GlobalGiving.

It is difficult to understand what it is like to have MS.  This is what Liz T told us

“You grow up thinking, assuming, you can be “fixed” and that when you’re ill you’ll eventually get better. MS isn’t like that. Not only are you not going to get better, you’re going to get worse, and not only are you going to get worse, you’re never going to know when, in what way, or how badly.”

Our enquiry service is there when people with MS want us.  In the first three months of this year our Team:

  • answered 789 enquiries received by phone, email and through social media.
  • sent out 10,510 publications; and
  • the information on our website (A-Z and Understanding MS) was viewed more than 700,000 times

Liz T said this about the value of our support

I love the MS Trust’s information, both online and in print, because it is reliable, honest, clear and kind, but not patronising.”

None of our services would possible without the kindness of our supporters.  On behalf of everyone here at the MS Trust, but particularly on behalf of people living with MS in the United Kingdom, we send you our grateful thanks.

 

Yours sincerely,

  

 

Jo Sopala

Director of Development.

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Organization Information

Multiple Sclerosis Trust

Location: Letchworth Garden City, Hertfordshire - United Kingdom
Website:
Project Leader:
Marissa Green
Letchworth Garden City, Hertfordshire United Kingdom
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