Let's Help More Than 100 Children with Cancer

by Childhood Cancer Fund Rugut
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer

Childhood Cancer Fund Rugute continues to provide various kinds of support to families with children that have been diagnosed with oncological diseases. We have been providing financial assistance, purchasing medications and medical care supplies for these families. During the months of June December 2021, January and February, 2022, the Fund provided monthly and non-recurring charity of 15,500.00 Eur to the parents, who used this money to purchase necessary medical care supplies and to cover other costs that they could not have avoided due to their child’s disease. The money also helped the families to improve the psychological well-being of the children.

The Fund also continuously purchases specific medications that are needed for individual childhood cancer patients. Some of these medications are not State-covered, and some are not supplied in Lithuania at all. The total cost of medications for one month was 2,577.50 Eur.

From the autumn of 2021, we are helping children with oncological illnesses buy Niltac - a medical cleaner for glue residual. Niltac is used to reduce the pain caused by removing a bandage from the wound. Sick children constantly experience this discomfort as the needle inserted into the central venous catheter is attached with a bandage, and also bandages are used daily after surgery. This constant discomfort even causes fear of going to the procedure room for the little ones. During these past three months, we bought Niltac for 1,478.48 Eur.

For 13 years now, Rugute has been supporting the emotional and psychological well-being of the little patients during treatment, by supplying the local hospitals with long-term central venous catheters. These catheters ease the procedure of administering drugs to little children, allowing them to avoid pain. The catheters (9 items) and special needles for them (100 items), as well as light-resistant infusion systems (200 items), cost 2,007.76 Eur.

One of the most common side effects of chemotherapy is mouth ulcerations that worsen the physical and emotional condition of the young patient: children are unable to eat and suffer severe pain. In order to ease these symptoms, Fund purchased a quantity of mouthwash solution Aftamed, Caphosol for 924.74 Eur.

For the past three months, Rugute was also covering the maintenance costs of Rugute’s Home, the rented premises (200 m2) with two bedrooms, a kitchen, two bathrooms and a cozy area for games, resting and meetings, and a small yard, not far from the Vilnius Children’s Hospital. Having found shelter in these premises, children with oncological diseases are able to have a break from their treatment and from being in the hospital. Rugute’s Home allows their family members to get a temporary accommodation while visiting children in the hospital. It is a place where everyone, who has been touched by an oncological disease, is welcome and loved. The total maintenance cost of Rugute's Home in the past three months was 5,652.30 Eur.

We would like to give a loud and sincere THANK YOU to all of our loyal and loving donors on GlobalGiving. We gain strength through you every day, and will continue our fight with childhood cancer as long as you are with us.

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This is the season to be thankful. So, we are very grateful for your care and decision to contribute to the activities of the Childhood Cancer Fund Rugute and thus extend a friendly helping hand to children on the path of oncological illness. Recent years have been one of the most intense in the entire life of the Rugute Fund. The ongoing pandemic has become a major test for the families of children who are on the path of illness as well as for doctors and for us. After all, the treatment of children must continue even at a time when many things in the world have stopped. Thanks to you, in September, October and November, the “Let's Help Children With Cancer“ project received 24,891 USD (21,320 EUR) in support. Knowing that we are not alone in the most important struggle in a child’s life inspires us to keep believing in recovery and going forward with all our might.

We are sincerely grateful that with your support we have been able to provide:

• 11000.00 EUR - financial support for families. With these funds, families caring for a child with oncological illness were able to pay for nursing equipment, food, and hospital travel expenses.

• 893.58 EUR – for buying a central venous catheter (4 pcs.). For 13 years, the Fund has continued to taking care of the emotional and psychological well-being of the little patients during treatment by supplying hospitals with long-term central venous catheters. These catheters ease the procedure of administering drugs to little children, allowing them to avoid pain.

• 926.74 EUR - oral care products Caphosol® (10 pcs.) These solutions help the little patients to get over the most common side effect of chemotherapy - mouth ulcers that are known to worsen both physical and psychological condition of a sick child. Thanks to these solutions, children are able to eat without suffering too much pain.

• 2234.51 EUR – special pillows, which are necessary to prevent bedsores in children with severe conditions and mandatory bed rest.

• 1,056.27 EUR for nursing care products: adhesive bandages that are breathable, do not cause allergic reactions and are easy to remove from the skin.

• 870.00 EUR - for the Vilnius Children's Hospital Oncohematology Center to buy folding screens that would allow patients to separate from each other and give each other privacy.

• 2736.00 EUR – for buying a hearing aid for Bazile. Bazile is one of the few children who were not destined to take a deep breath after remission was reached. After overcoming the worst - oncological - illness, the girl was accompanied by other complications. One of them is hearing loss.

• 9,075.00 EUR - we paid for genetic testing of 3 children. The genetic screening and testing of young cancer patients in one of the most modern laboratories of Europe is a continued project, launched by the Fund in 2015. Its’ aim is to help Lithuanian doctors to detect the histology of the tumor, to foresee the progress of the disease and to individualize the treatment.

• 2,436.5 EUR - we contributed to the fulfillment of Meda's dream, by purchasing a computer.

• 6044,35 EUR for the maintenance of Rugute's Home. For the past three months, the fund was covering the maintenance costs of Rugute's Home - the rented premises (200 m2) with two bedrooms, a kitchen, two bathrooms and a cozy area for games, resting and meetings, and a small yard, not far from the Vilnius Children's Hospital. Having found a shelter in these premises, children with oncological illnesses are able to have a break from their treatment and from being in the hospital. Rugute’s Home also allows their family members to get a temporary accommodation while visiting children in the hospital.

 Looking back over the whole year, we feel gratitude in our hearts. Thank you for being with us and being those much-needed pillars of support. In these times when nothing is assured, we are happy to be sure there are people around us who support and help us. The care and love you send help pave the way towards hope for the little patients. Everything for at least one day when it hurts less and the sadness goes away. Thank you for your kindness and we wish you a hopeful, never-backing-down, full of love New Year.

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Since its establishment 17 years ago, the Foundation‘s success is based on sponsors and volunteers‘ enthusiasm. Only with the help of others and financial support we can contribute to a more successful treatment of our little patients. Because of our supporters, together with doctors we can ensure the most advanced treatment regimens. We can also finance research that is not conducted in Lithuania. We can provide the necessary support for families or a cozy home space for a temporary stay with their loved ones at Rugute’s Home. These things sometimes are what the whole world of a little patients consists of.

Thanks to your kindness, the financial support of $ 44,055.33 was transferred to the Foundation during the months of June, July, and August. The Foundation's project "Let's Help Children With Cancer" published on the GlobalGiving platform is not final. The Rugute Foundation, which has helped children recover from the treatment in the hospital, will soon take care of and provide support to those who have yet to be diagnosed with an oncological illness. For a number of years, the goals and needs of the Foundation have not changed, only the children being treated are changing.

For these past few years, the Foundation has been facing a growing need for medicine, research and medical supplies. Pediatric oncohematologists are becoming more and more confident in using the medication provided by the latest treatment protocols. Although such drugs are often not supplied or compensated in Lithuania, they are successfully used to treat children in other countries. Doctors aim to provide advanced genetic testing to as many children as possible, with the most accurate individualized treatment possible based on detailed information on tumor genetic mutations and oncogenes. Most genetic tests carried out in foreign laboratories are not financially compensated by our country. There is no doubt that next-generation medication, advanced research, advanced nursing and medical facilities lead to greater children survival rate and long-term remission. It is a massive ray of hope for children who have been diagnosed with an oncological illness.

Despite the medical support, it is equally important to provide charity to families during the child’s treatment, as the child’s oncological illness worsens the family’s financial situation. There is significant reduction in income (hospitalization of a child requires one parent to stay in the hospital for a long-term, making them unable to work) and significant increase in family sustainability costs. Other family members try to spend as much time as possible with the ill child, so if the family lives far away from the city where the treatment facility is located, more money has to be spent on travel expenses. Hospital care is only provided to the child being treated, so the person caring for the child has to provide food at his or her own expense. These problems burden the family on top of a serious illness and treatment, so we try to alleviate it as much as we can.

The treatment of oncological illnesses with cytostatic medication often has a strong side effect, and the drugs needed to reduce them are not always compensated by the state. Patients also have to purchase various nursing supplies at their own expense. With the Foundation‘s help, families can purchase essential supplies for nursing, food, can cover travel and other expenses as needed, trying not only to improve the physical condition of their children, but also to improve their emotional, psychological and spiritual condition, which influence overall treatment success and recovery.

During the months of June, July and August, we used your support to provide the financial support of 8,700 euros to families. We also helped them purchase medicine, which is not available in Lithuania, for the amount of 4,356 euros. We paid for genetic testing of 3 children – the total amount was 9,075 Eur. We bought 5 central venous catheters – 1,787 euros. To alleviate mouth ulcers, which is incredibly uncomfortable physically and psychologically, the Foundation purchased AftaClear mouthwash, which ‘s cost was 376 Eur.

In conclusion, the Foundation’s ability to help families affected by illness is highly related with the kindness and help of the people who support it. Just as the saying goes: There’s no “I” in team. We are enormously grateful to everyone who decides to join us on this path and help us to help others

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In March, April and May of 2021, we continued the foundation's mission to help children with oncological illnesses. We are grateful to all who contributed to the $ 1777.29 support for children with oncological illnesses through the GlobalGiving system during the months from March to May. Only with the help of financial support we can contribute to a more successful treatment of our little patients. Together with doctors we can ensure the most advanced treatment regimens. We can also finance research that is not conducted in Lithuania. We can provide the necessary support for families or a cozy home space for a temporary stay with their loved ones at Rugute’s Home. We divided the amount of $ 1777.29 into three purposes.

One part of the received donations was used to give Bazile the opportunity to participate in a therapy program at the Dolphin Therapy Center. From the very beginning of the fight against oncological illness, the most anticipated word from the doctor's lips is "remission". Remission means the end of unpleasant and painful procedures, returning home, to a normal childhood or adolescence. Unfortunately, it often happens that after overcoming the worst - oncological - illness, children are accompanied by complications from the treatment they had received. The children then have to overcome the unexpected trials again again, which descend from the treatment they had experienced in the past. Bazile is one such child.

Another part of donations was used to purchase specific medications that are needed by individual childhood cancer patients but are not state-covered or not supplied in Lithuania at all. In order to ensure that the proper treatment is administered to the little patient Deimantas, the Fund bought Temozolomide 100 mg. During these months the Fund also paid 3,025.00 Eur for genetic screening of 1 child. The genetic screening and testing of young cancer patients in one of the most modern laboratories of Europe is a continued project, launched by the Fund in 2015. Its aim is to help Lithuanian doctors to detect the histology of the tumor, to foresee the progress of the illness and to individualize the treatment.

On behalf of our most special children (our greatest fighters), we would like to express, once again, our sincere thanks for your donations. You are very important to us, because you enable us to help the ones who need our help today, because they may not have a bright tomorrow.

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During the months of December, January and February, Rugute continued its activities and provided various support to children with oncological illnesses and to families who raise them.

We are grateful to all who contributed to the $ 3693.04 support for children with oncological illnesses through the GlobalGiving system during the months from December to February. Because of these funds, we bought central vein catheters (4 pcs.) and 360 pcs. of needles suitable for them for 2152 Euros. The Fund constantly ensures that long-term central vein catheter insertion procedures are performed to children with oncological illnesses when needed, which significantly improves the psychological well-being of young patients during the treatment and helps to avoid pain and multiple peripheral catheter insertion procedures. The benefits of such catheter are described by a girl with oncological illness: “When I got sick, every needle-prick seemed like the end of the world. Later it became more difficult to endure the catheter insertion procedures, as the veins from all chemotherapies had become very weak and brittle and felt like burned. A long-term catheter greatly improved the treatment. The nurses were able to inject medication while I was sleeping and I didn't feel anything. I was able to move completely freely.”

During these past few months, we also continued our support to a ten-year-old girl with melanoma. She is the first one in Lithuania to battle melanoma, an oncological illness that is very rare in children. It is for this reason that medicine to treat pediatric melanoma are not included in the list of reimbursable medication. For the treatment of Emilija, we bought the medicine Mekinist 2 mg N30, which costs 3055 Euros.

We would like to give a loud and sincere THANK YOU to all of our loyal and loving donors on GlobalGiving. Children are getting better and happier because of you. They suffer less pain and experience more positive things than they would experience without your help.

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Organization Information

Childhood Cancer Fund Rugut

Location: Vilnius, Lithuania - Lithuania
Website:
Facebook: Facebook Page
Project Leader:
Tadas Armonas
Mr.
Vilnius, Lithuania
$154,442 raised of $180,000 goal
 
1,889 donations
$25,558 to go
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