Let's Help More Than 100 Children with Cancer

by Childhood Cancer Fund Rugut
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer
Let's Help More Than 100 Children with Cancer

GlobalGiving Report: June–September, 2012

 

With the financial support received via GlobalGiving, Childhood Cancer Fund Rugute has been able to continue supporting families that are facing financial hardships because of their children’s oncological diseases. During the months of June, July, August and September of 2012, the Fund estimated the importance of financial needs that such families had addressed in their requests for support, and provided both monthly and non-recurring charity of 44.500,00 Lt to them.

One of the Fund’s major goals is to improve treatment possibilities and hospital conditions for Lithuanian children with oncological diseases. Following the doctor’s request, in order to continue on the advanced treatment scheme that was successfully administered to a teenage cancer patient before, the Fund purchased a quantity of Temodal (a medicine that is unavailable in Lithuania) for the entire following treatment course that was planned for this particular patient. The quantity of medicine Temodal cost 16.884,06 Lt.

The Fund also purchased a quantity of CeeNU (Lomustine), a medicine that is also unavailable in Lithuania, but necessary to treat young cancer patients. The quantity of medicine CeeNU cost 3.704,75 Lt.

Aiming to improve the psychological and physical well-being of the hospitalized children, the Fund bought 4 central venous catheters that cost 4.356,00 Lt. These catheters help to reduce the risk of infections and allow to avoid painful needle stabs that can be very traumatizing to young children.

Thanks to the people who have been donating funds via GlobalGiving, Childhood Cancer Fund Rugute successfully covered the maintenance costs of Rugute’s Home. The bright and colorful premises of Rugute’s Home create a safe and cozy space where children in need and their family members can stay free of charge. From June to September, 2012, many children who had to arrive to the hospital for screening, and who were released from the hospital for short periods of time, found shelter in Rugute’s Home, and were very happy to spend some quality time in this (non-hospital) environment.

During the last four months, our loyal sponsors enabled us to make one child’s dream come true. A young cancer patient received a brand-new laptop computer and was able to engage in some fun activities during the long days he spent in the hospital. The computer provided him with an access to the world, which is very important to children who have no possibility to meet their friends due to a high infection risk.

On the 22nd of July, Childhood Cancer Fund Rugute organized its yearly event The Island of Friends for the 7th time. This special event brought over a hundred of families together: children and their family members spent an entire day of fun, being free of worries and uncertainty. The feast offered all kinds of entertainment: live music, fun performances, yummy food and unforgettable interactions for children and their parents. Being at The Island of Friends, families can share the joy of the moment and take their mind off their child’s disease.

From the 24th to the 26th of August, the fourth Onco-Olympics for children took place in Warsaw, Poland. The Polish organization Fundacja Spenionych Marze (Fund of Dreams Coming True) invited the young cancer-surviving athletes from Lithuania to take part in the games for the second time. This time Fund Rugute delegated 5 participants to go to Poland. Children and their parents traveled to Warsaw by a comfortable private bus. Each of the children brought home an Olympic medal or even two! We are happy that we were able to finance this wonderful trip to Poland that gave our children so much confidence and pride, with the help of our sponsors in GlobalGiving.

From the 28th of August until the 23rd of September, a brave Lithuanian girl Vilgaile Kira Purlyte rode across Norway (from North Cape to Oslo) by her bicycle and dedicated her journey to Lithuanian children with cancer. She rode 2200 km in order to raise money for Lithuanian Childhood Cancer Fund Rugute. While she was biking across Norway and spreading the word about childhood cancer situation in Lithuania and Childhood Cancer Fund Rugute, kind people were able to support her cause by donating money via GlobalGiving.

We give our biggest, sincere thanks to all the wonderful people who are willing to support the Lithuanian children with cancer. Thank you for being with Childhood Cancer Fund Rugute, and for your kind donations. Even a slightest smile of a sick child is a miracle to us. Thank you for making this miracle happen! 

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Thanks to our loyal sponsors and supporters, the Childhood Cancer Fund Rugute continues to support families that face financial difficulties due to their child’s illness. Every month the Fund provides such families with financial support and necessary medical supplies. During the months of March, April and May of 2012, the Fund estimated the importance of financial needs that such families had addressed in their requests for support, and provided both monthly and non-recurring charity of 95 431,14 Lt to them.

Improving the treatment quality for the young cancer patients has always been one of the most important goals of Rugute. Following the doctor’s request, in order to be able to administer an advanced treatment scheme for a teenage girl with cancer, the Fund purchased a quantity of Temodal, a medicine that has been shown to be successful in the treatment of oncological diseases, but that is unavailable in Lithuania. This purchase allowed the new and progressive cancer treatment method to be administered immediately. The medicine Temodal cost 10 375,66 Lt.

Thanks to the kind people who donated for us via GlobalGiving, Fund Rugute also purchased a quantity of Lastet, a medicine that is also unavailable in Lithuania, but necessary for the cancer patients. The medicine Lastet cost 2 082,94 Lt.

The Fund also used a part of the GlobalGiving donations to purchase a mobile oxygen concentrator for a little boy with respiratory difficulties. The oxygen concentrator cost 9 000,00 Lt.  

Aiming to improve hospital care conditions for children with restricted mobility (especially after surgical procedures), the Fund purchased a mobile patient lifting equipment and provided it to the Children’s Oncohematology Division of Kaunas Clinics.

With the support received via GlobalGiving, the Fund was able to cover the maintenance costs of Rugute’s Home, where children in need and their family members were staying free of charge. The children that arrived to the hospital for screening and that were released from the hospital for short periods of time, found home environment at the cozy premises of Rugute’s Home, where they were able to play freely, spend time with their family members, and have a quality rest in comfortable separate bedrooms.

Rugute has always emphasized the importance of the psychological well-being of the young cancer patients. Children, who spend long months being isolated in between four hospital walls, find it very difficult to communicate with the outer world, and their personal improvement becomes a challenge. Being far from family and friends, such children face psychological and emotional problems. During the past few months Rugute purchased three laptop computers and gave them to three children in need, as a part of the Fund’s Make a Wish project. These laptop computers ensured the children’s capability to interact with family and friends, allowed them to improve knowledge and skills and made the long months of isolation bearable.

On the 7th of May, John Gwilliams, Alan Quinlan and Nick Miles from the company Barclays in United Kingdom arrived to Lithuania and, together with two Lithuanian colleagues, organized the 2nd and even more challenging bike ride across Lithuania than last year’s. The purpose of the ride was not only to ride 500 miles in 5 days, but also to raise funds for the children of Rugute. We sincerely thank the daring cyclists for taking this incredible challenge for the second time, and for raising funds for Rugute via the GlobalGiving website.

A lot of young lives in the oncohematology units depend on multiple blood transfusions. Fund Rugute helps to ensure that a certain type and amount of blood is always available to the children who need blood transfusions. On the 26th of May, Fund Rugute and the public entity Nacionalinis kraujo centras organized the 8th voluntary blood drive Share a Droplet, and invited everybody to donate blood for the sick children. 29 donors donated their blood in the cozy atmosphere of Rugute’s Home.

We give our heartfelt thanks to all the kind people who donate money to Childhood Cancer Fund Rugute via GlobalGiving. Your contributions make it much easier for us to accomplish our mission.  It is very comforting and promising to know that we can ignite a new hope in the eyes of a sick child, together!

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At the end of November, 2012, Childhood Cancer Fund Rugute celebrated its seventh birthday. The Fund usually commemorates its birthday by some special event, so, a blood drive Share a Droplet took place in Rugute’s Home on the 3rd of December, 2011. The seventh blood drive campaign was unusual: all who had arrived to donate blood had an opportunity to be included into the bone marrow donor registry. Many children and adults with leukemia have only one way to get well – to receive a bone marrow transplant.  This means that each new person included in the registry becomes a potential life saver. During the blood drive of Rugute, 27 names of potential bone marrow donors were added to the bone marrow donor registry.

Thanks to the loyal sponsors of Rugute, the Fund continues to support families that face financial difficulties due to their child’s illness. Every month the Fund provides such families with financial support and necessary medical supplies. The Fund also provides psychological support by organizing group therapy sessions to parents that had lost their children to oncological diseases. 

One of the most important missions of Rugute is to improve the treatment quality for children with oncological diseases. The Fund, using the money raised via GlobalGiving, was able to purchase more long-term catheters, special access needles and infusion pumps. The long-term catheters help immensely to ensure a better emotional state of a young patient, because by using them painful multiple catheter insertions into the vein can be avoided. The Fund was also able to buy a quantity Ixoten, a medicine that has been shown to be successful in the treatment of oncological diseases, but that is unavailable in Lithuania.

Rugute also provided 20 000 Lt to cover a part of the hyperthermia treatment costs for Julija, a 16 year old rhabdomyosarcoma patient. The girl received this hyperthermia treatment in Germany, since such procedures are not available in Lithuania. The families that arrive to the capital city for screening, and children who are released from the hospital for short periods of time, find a cozy shelter and accommodation in Rugute’s Home, where children can play freely, spend time with their family members, and have a quality rest in a non-hospital environment.

We thank, most sincerely, all of the sponsors of GlobalGiving who donate money to Lithuanian children with oncological diseases. Your assistance allows us to improve the physical and psychological welfare of the little cancer patients… and knowing that you have faith in our mission keeps us moving forward.

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We sincerely thank all of our sponsors, because, thanks to their kind hearts, our Fund was able to implement new projects and to continue working on the projects that have ensured many kinds of help to children with oncological diseases since the beginning of the Fund’s activities. Thanks to your support, our Fund continued ensuring the timely supply of the medicine Temodal and continued purchasing the medical care products, specifically, the long-term central vein catheters. The support also ensured the maintenance of the Rugut’s Home, where sick children in need and their family members have been able to stay free of charge. Families, nursing children with oncological diseases, were also provided with financial support.

For the five past years our Fund has been putting a strong emphasis on providing palliative care for children. We believe that it is crucial to figure out the exact needs of the child in need of the palliative care, and the needs of his/her family members, in order to provide them with a choice: whether to spend this stage of treatment at home, or at the hospital. Therefore, our Fund got an additional set of the necessary gear: rented an oxygen concentrator, purchased a bedsore mattress, a pulsoximeter and other necessary items that will ensure the best possible nursing conditions for the children who are discharged from the hospital to be nursed at home.

In summer our Fund organized one of its most important yearly events, The Island of Friends 2011. The aim of this once-a-year event is to bring families of similar destiny together, encouraging them to share their social and medical knowledge, experiences, thoughts and emotions, while they enjoy being together. During the event the children celebrate a special day, where they watch various shows and performances, play with their beloved artists and spend time with their mates in an environment other than in a hospital. The time spent together helps the sick children and their family members to realize that they are not alone in confronting their oncological diseases. The Island of Friends 2011 was made exceptionally special by the visit of Mr. Clinton Misamore, the representative of the GlobalGiving organization.

We thank you for your financial support from the bottom of our hearts. Our beautiful friendship with you lights up the dark road we are walking together. Knowing that we are not alone makes us walk stronger and braver.

 

Sincerely,

Rugut’s Home

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Opening Ceremony Flag Raising
Opening Ceremony Flag Raising

My name is Clinton Misamore.  I am a Field Program Officer for GlobalGiving.  Over the past three months I have been visiting GlobalGiving projects throughout Russia and the Baltics.  On July 3rd, 2011, I had the unique opportunity to visit with the Childhood Cancer Fund Regute in Vilnius, Lithuania.  I was greated with a welcoming smile and warm hug from Edita (Regute Founder) and a most friendly introduction to Regute operations from Tadas (GlobalGiving Project Leader).  Tadas also encouraged me to stay for their annual party where they bring together around 100 families that the fund is working with.  The fund supports these families in various capacities ranging from medical to emotional support.  The annual party was created to bring everyone together-- all the children and their families-- on one day each year.  The children participate in a range of different activities from singing, dancing, live performances, magicians, musical artists, painters, etc... At the end of the days events I was not only exhausted-- but speechless.  The small, dynamic team behind Regute is super dedicated to this cause.  I can't thank them enough for inspiring me through their actions.  The entire team at Regute embodies the definition of selflessness.  

Regute has essentially built a family of approximately 500 people that have seen the ills of cancer in their everyday lives--  both victims and family of victims.  Edita has dedicated her life to creating a community that is open and supportive of these individuals.  I was fortunate enough to also engage in several meaningful conversations with some of these families.  They were all testimonials of the neccessity of an organization such as Regute as well as the passion and drive of Edita.

It was an amazing personal experience to find out more about the operations of Regute as well as to interact with their team.  The organization is operated by just a few skilled, passionate individuals but clearly illustrates how a few individuals with an idea can help change the world for better.  It is without reservation that I recommend the Childhood Cancer Fund Regute.

I would like to kindly recognize and sincerely thank Edita, Tadas, and everyone else who made this visit possible.  GlobalGiving is proud to be in collaboration with such a top notch organization and we look forward to working with you in the years to come.  

Kids Playing With Volunteers
Kids Playing With Volunteers
Musical Activity
Musical Activity

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Organization Information

Childhood Cancer Fund Rugut

Location: Vilnius, Lithuania - Lithuania
Website:
Facebook: Facebook Page
Project Leader:
Tadas Armonas
Mr.
Vilnius, Lithuania
$160,518 raised of $180,000 goal
 
2,001 donations
$19,482 to go
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