Parkinson day 2023-Donate for 80 Latrine Building

As the disease progress, neurodegenerative disease like Parkinson's will always expose patients to various socio-economic, psychological, and other physical and mental health complications. 

Based on our experience, as the stage of the disease increase; disability increases, and quality of life deteriorates. So, given this, PPSO-E understands it is very critical to provide assistive materials for the patients who are approaching or in the advanced stage, they require supportive and assistive materials to come up with movement challenges. but this becomes worsen once they can't access waking aid and/or don't have human caregiver support, they are almost lying on the bed all day and night. which exactly means then, there is less access to take care of their needs all their ways. 

As a result of the worsening of the disease, patients are exposed to a variety of problems, especially urinary incontinence, which can make it difficult for them to control their urination, which can be detrimental to their social functioning. therefore during this reporting period, Parkinson's patient support organizations in Ethiopia were made mini patient need assessment and identifying the right PD patients who are in need of having a latrine.  following the selection, about 12 mobile toilets were produced/ constructed and distributed to bedridden PD patients.  

Project Status Report 

1. Project Summary

Our organization Parkinson patients support organization Ethiopia (PPSO-E) designed the project for an online fundraising campaign undertaking through GlobalGiving by aiming to build raised Latrine for 50 poor PD patients in Ethiopia. Besides, it will help the patients defecate smoothly while in the latrine.

This is all taking as the central idea of the project since Parkinson's disease creates Stiffness and many of our patients are suffering from failure to easily use the common latrine.

2. Who is benefited from the project?

The direct beneficiaries of this project are 50 Parkinson's Patients (Some of them are bedridden and need sanitation materials, water system to keep personal hygiene) in Ethiopia and who are suffering from stiffness problems due to Parkinson's disease and are unable to smoothly defecate was directly benefited. Besides, Parkinson's patient families, caregivers, and guardians were also got access to get services together with PD patients.

3. Achievement Overview and Result Obtained

Following the goodhearted individual and donors who have been sharing their time and efforts with a high level of commitment in support of our potential targets Parkinson patients through giving gain,  the planned activities were undertaking as per the time and resource on hand as it is the ongoing action-taking.

So far, with the donation obtained the following activities were undertaking

-       Consumable sanitary materials for bedridden PD patients were provided

-       Meaningful PD community were mobilized and get access to engage in all matters that directly need their presence and equipped with the necessary knowledge, attitude, and practice (KAP) and raising their level of awareness through various capacity building training and sound their voices and disclose their socio-economic and psychological challenges via basic radio and television broadcasts by the local language.

-       50 PD Patients were obtained various Sanitation & Maintenance Training (realizing the current worldwide pandemic; we also keep focus on distributing Soap, sanitizer, Masks, etc.)

-       25 beneficiaries are helped to have the water system

-       25 PD Patients were getting access to a Modern and friendly Latrine system

-       More than 100’s PD patients were  visited  by the hire home-based nurse trainer and they provide physical exercise training

4. Monitoring and Organization

Monitoring the activity is not something we left behind throughout organizational activities undertaking. Therefore, our organization was conducted by its monitoring and evaluation team and accordingly. By doing so the PPSO-E identify the strength and things require due attention and trying to come up with the possible solution by integrated the intervention with other organizational project and programs undertaking to ensure its accessibility to the PD community.

5. Challenge

-   As compared to the PD patients at the grass-root level, the number of targets we track needs additional demand

-  Covid-19 has highly impacted the intervention as the targets are highly vulnerable than the usual community

-  Scarcity of PD medication and increasing the prevalence of the cases were some of the challenges we had faced