By Matilda Kahunde | Communications & Marketing Officer
Community-based models such as outreach clinics and home visits have proven essential in bringing palliative care to underserved and underprivileged populations. At Little Hospice Hoima (LHH), one of our three sites, the outreach clinic in Kyangwali Refugee Settlement has seen a significant rise in the number of patients in need of palliative care.
This increase is driven by the continuous influx of refugees escaping conflict, as well as growing awareness of palliative care among health professionals and the refugee community, thanks to the ongoing advocacy and health education efforts of the LHH team and our dedicated community volunteer workers.
The need for palliative care in Kyangwali is immense. Many refugees live with multiple forms of serious health-related suffering linked to conflict and displacement, physical disabilities, post-traumatic stress disorder, depression, HIV from rape and defilement, cancer, hypertension, isolation, loss of social support networks, poverty, and limited access to healthcare.
Through the project “Bringing Palliative Care Closer to Communities,” we continue to extend compassionate, dignified care to both refugees and the host population in Kyangwali.
Patient X (name withheld for anonymity) arrived in Kyangwali several years ago. Once a thriving middle-class business owner, their life changed forever when armed attackers brutally murdered their spouse and six children before their eyes. Patient X survived only because a Good Samaritan carried them to safety and sought medical help.
They sustained severe injuries to the thorax (broken ribs) and spine, leaving them permanently disfigured and living with chronic urinary and faecal incontinence caused by spinal damage. Despite being resettled and remarried in Kyangwali, Patient X remains unable to work, has limited mobility, and lives with deep financial insecurity. The incontinence, in particular, caused profound emotional distress, intensified by social stigma and shame.
Before accessing palliative care at the Kyangwali outreach clinic, Patient X reported having advanced plans to end their life as an escape from unbearable suffering. However, after being enrolled into holistic, individualised palliative care with LHH, everything changed.
Through consistent pain management, emotional support, compassionate counselling, and practical care, Patient X’s suicidal thoughts resolved. They now report better control of their symptoms and greater peace of mind. With the help of the LHH team, Patient X is slowly rebuilding dignity, meaning, and hope despite living with permanent disability.
In addition to clinical care, this project has been life-changing for Patient X. The funds enable us to meet the essential needs of the most vulnerable patients. Through this support, Patient X receives a monthly supply of diapers for incontinence, food assistance, and transport support to and from the outreach clinic
These small but critical interventions have restored comfort, confidence, and stability in a life once defined by trauma and loss.
By Chrispus Sewanyana | Project Leader
By Chrispus Sewanyana | Project Leader
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