Medicines for people with disabilities.

by Tukuy Pacha
Medicines for people with disabilities.
Medicines for people with disabilities.
Medicines for people with disabilities.
Medicines for people with disabilities.
Medicines for people with disabilities.
Medicines for people with disabilities.
Medicines for people with disabilities.
Medicines for people with disabilities.
Medicines for people with disabilities.
Medicines for people with disabilities.
Medicines for people with disabilities.
Medicines for people with disabilities.

She was born 8 months after normal delivery, weighing 2,700 kg. and size 46 cm. A few days after birth the doctor informed the parents that Luciana had Down syndrome, with this news the parents were very shocked.

Days later Luciana had difficulty breathing and the parents took her to the pediatrician who referred them to a cardiologist, who performed an electrocardiogram to learn how her heart was working, unfortunately they detected a murmur and two open veins, this warranted an urgent operation, it cannot be done due to Luciana's low weight. Since then, she has been medicated to prevent fluid from entering the lungs and they had to wait eight months to see if she gained weight so that she could perform the surgery.

When Luciana was 1 year old she became ill with the flu and a severe cough, she was rushed to the hospital and hospitalized for a month. During this period, he suffered seizures that were not perceived by medical personnel. Since then he lost movement of his right arm and leg.

Despite these events in Luciana's health, she was already ready for the operation, the cardiologist recommended that she be operated on soon. But this operation was very expensive, approximately two thousand dollars, and the family did not have this amount. They sought help from foundations, charities without getting help.

The family was devastated by the situation. Fortunately, and when they least expected it, a donor helped them with the money necessary for Luciana's operation in Argentina. After her parents prepared all the necessary documentation, Luciana, aged one year and three months, went to Argentina for her operation. The donor's support also included a stay for two months in this country of Luciana's parents, enough time for the entire process of the operation, which was carried out successfully. During the process of analysis and medical examinations, Luciana was diagnosed with hypothyroidism and since then she has been treating this condition until today.

Back in Bolivia Luciana needed physical therapy care to rehabilitate her right arm and leg, which were affected by the seizures. This was very difficult because Luciana's mother had to take care of two more small children. Fortunately, through a doctor, the family met TUKUY PACHA. The technical staff of this institution carried out a complete evaluation of Luciana and with a coordinated work with the physiotherapist and the promoter of the TUKUY PACHA foundation, Luciana receives rehabilitation at her home. In addition, he was helped with medications to treat hypothyroidism. Since then Luciana has evolved favorably, managing to crawl and stand up on her own. Dora, Luciana's mother, mentioned being very grateful to TUKUY PACHA for all the work they have done with their daughter.

 



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His Diagnosis:Amyotrophic Lateral Sclerosis

Tukuy Pacha has been working with Gregorio since May 28, 2019.

He has a neurodegenerative and progressive disease and to complicate the situation suffered a fractured femur in several sections of the bone which forced him to be inactive and this led to depression.

Progress is satisfactory because he is more active, he collaborates in therapies and is now using walking cane before he was using an adult walker.

The hope is that he continues to increase his range of motion in his right leg, improve muscle strength generally and be more active.

An interesting fact is that after the second session he no longer referred to feeling pain and said he felt better, which suggests that he had a lot of hope and feels that he has people care about his well being.

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His Diagnosis: Weakness of the left side

He registered with us in March 27, 2019 and began physical therapy the first week of April.

Our friend at first just like the family was very shy, when I evaluated him at the school where he studies U.E. Pacifico Feletti he looked suspicious, did not come very close to me, but and the mother had to give him orders to approach me and listen to the orders I gave him. The mom was excited and at the same time suspicious because she was not sure that she wanted to be part of the project, because in the south area there is a lot of mistrust.

He was given an intervention plan and to date there can be seen many changes: his attitude for one, he can already dress with less difficulty, has has more strength of the left side of his body and more ability to use the affected side and foot - like being able to kick a ball. His gait has seen much improvement as well.

In the future I hope can be more independent and be able to do the same things any child his age would.

 

Dominga Mendoza

RBC Promoter

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Receiving therapy from the RBC promoter
Receiving therapy from the RBC promoter

Through the case we present you will see the importance of working in a holistic way. This girl from the southern area of Cochabamba is receiving the medicines she needs, thanks to your donation. However, whith this report you will better understand the work we do to include children with disabilities to the community.

Her Diagnosis: Down syndrome, cardiac malformation (operated 2017), right hemiparesis, epilepsy, hypothyroidism and psychomotor developmental delay. Luciana was registered with us on April 16, 2019 and work began at approximately late April with physiotherapy.

Luciana was once a very timid child, as were the family because in the area people, families tend to distrust most outside help that is free because they think they will have to repay them or that there is a “catch.”

We make an intervention plan that has worked and to date we can see big changes. She has a good cervical control, can sit without support, crawls with slight difficulty but does crawl. We also see that her right hand has better functionality she doesn’t ball it into a fist anymore, can extend her palm up to 80%, and can stand without support.

There have been great improvements in acceptance of the staff of Tukuy Pacha, to myself as a therapist and the volunteer I work with. She is also no longer shy we have won great affection and tenderness with her.

 

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The case of this child from the high valleys of the department of Cochabamba is just one example of what many people with disabilities live in rural areas of Bolivia.

Our friend suffers from psychic disability and his condition does not allow him to relax and is constantly over activity; therefore, it is difficult to initiate a physiotherapeutic treatment. For this reason it is necessary to equip him with medicines that balance her hyper activity, for the moment he is in a testing stage.

His family is of limited economic resources and, evidently, they can not buy the necessary medicines to improve their health. When our friend is relaxed, which is not many times a day, he likes to be stroked back because it seems to relax him.

With the support with the medicines that we are giving, we hope to stabilize it to start a physiotherapy treatment process with the Tukuy Pacha professionals. We are also working closely with your mom to help us make the process better and faster.

As in this case, there are others in the high valley of Cochabamba and the need to have medicines is sometimes imperative. With this project, and with your donation, we can help others like our friend improve their quality of life. Thanks for your donation! You can already see that your contribution reaches directly to those who need it most.

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Organization Information

Tukuy Pacha

Location: Cochabamba - Bolivia
Facebook: Facebook Page
Tukuy Pacha
Julio Arze
Project Leader:
Julio Arze
Cochabamba, Bolivia

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This project is no longer accepting donations.
 

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