Help Cancer Patients Access Medications!

by Advita Fund USA
Help Cancer Patients Access Medications!
Help Cancer Patients Access Medications!
Help Cancer Patients Access Medications!
Help Cancer Patients Access Medications!
Help Cancer Patients Access Medications!
Help Cancer Patients Access Medications!
Help Cancer Patients Access Medications!
Help Cancer Patients Access Medications!
Help Cancer Patients Access Medications!
Help Cancer Patients Access Medications!

In the last few months, we focused on supporting patients with adrenal cancer.  The medication for this type of cancer, mitotane, has been in use for many years, but after the breakup of Soviet Union, Russia stopped producing it.   We have been purchasing mitotane in Canada for 25 Russian patients this year.  In addition to mitotane, there are other medications that are not available in Russia.  Often, they are new and effective drugs that are available in the US, Europe and other developed countries.

This month, our goal is to raise funds to support Andrei, a young man from Moscow, who underwent bone marrow transplantation two years ago.  Unfortunately, in August he was diagnosed with relapse of leukemia that is resistant to commonly used medications.  Andrei was recommended a new drug, ponatinib, which targets the rare mutation that Andrei has.  However, ponatinib is not registered in Russia and has to be purchased abroad.  The medication is very expensive and Andrei's young family cannot afford it.  We hope that next week you can join our efforts to help Andrei access this medication!

Please mark your calendars for Thursday’s Bonus Day on October 5th! On this day, $50,000 Incentive Fund will be available to share by all donations received that day. Our share will be determined by what percentage of the total funds we raise on Bonus Day.   For example, if we raise 5% of the total dollars raised on Bonus Day, we will be awarded 5% – or $2,500 – of the Incentive Fund. This means that donations will count throughout the entire day!  No rush to donate the minute the contest opens!  But keep in mind the hours - Bonus Day begins at 9:00:01 EDT on Thursday (16:00 Moscow time), October 5th, 2017, and ends at 23:59:59 EDT on October 5th, 2017.

 Many thanks from our team,

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Thank you so much for supporting our project!  We have raised nearly $5,000 to date to help patients who cannot afford life-saving medications.  These are usually newer and more effective medications that are not manufactured or sold in Russia and have to be ordered abroad.

One of the patients we supported recently is Alexander from Rostov region.  When he was six months old, he was diagnosed with an abdominal tumor.  However, local doctors did not recommend starting treatment untili he turned a year old.  By then, the tumor spread all over his body.  Alexander had chemotherapy and surgery to remove the tumor, and then he was referred to St. Petersburg for transplantation of his own stem cells.  The procedure required medications that were not available in the city, and Alexander's family requested help.  We paid for the required medicine to be shipped from Germany, and in May 2017 Alexander underwent transplantation.  He will now be monitored closely to prevent disease recurrence.

We are very grateful for your support and helping us be in the position to support patients like Alexander!  On Wednesday, July 12th, GlobalGiving will offer bonus funds as part of GG Rewards Bonus Day.  This is the only time during the year that all donations up to $1,000 will be matched at 50% (while the $110,000 in matching funds remain). Also, all day long there will be a 100% match on new recurring donations and, at the end of Bonus Day, the projects with the most funds raised and the most donors secured will each receive a $1,000 bonus prize. Additional prizes include social media promotion, homepage time, and a feature in GlobalGiving donor newsletter.

Join us from 9am EDT (16:00 Moscow time) to 11:59pm EDT on July 12th and make sure to donate early to get the 50% match! 


Advita USA team

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Irina with her son
Irina with her son

Our program to help cancer patients access medications unavailable in their home countries continues to grow in siginificance.  Unfortunately, many cancer patients in the former Soviet Union cannot purchase necessary medications due to their unavailability.  For example, adrenocortical cancer medication, Lysodren, is not manufactured in Russia.  But since this type of cancer is relatively rare, the government does not budget for it and it is not imported from other countries.  The patients are told to search for the medication themselves and buy it out of pocket. 

Currently, we support 9 adrenocortical cancer patients by purchasing this medication in Canada and shipping it to Russia.  One of these patients who needs our support is Irina, a young single mom from Central Russia.  Since she was a little girl, she wanted to be a teacher, and after graduating from a university in Voronezh she was able to fulfill her dream.  For 5 years, Irina worked as an elementary school teacher.  After she got married, she and her husband moved to a small town to start their lives together.  Irina got pregnant.  Her pregnancy was difficult and she felt very unwell, but the doctors did not seem alarmed.  After her son's birth, Irina was elated, but her condition did not improve.  She began having adrenal crises and panic attacks.  Her blood pressure stayed high and she was still swollen.   Eventually, in spring of 2015 a large tumor in her right adrenal gland was discovered.   Irina underwent several surgeries and spent months in the hospital recovering.  Unfortunately, just a year later the tumor grew back and spread.  This time, Irina traveled to Moscow where she received chemotherapy and began taking Lysodren.  She was told that the medicine has to be taken daily, for a long time.  Recently, Irina had yet another surgery to remove residual tumors, but she still needs to continue her therapy to ensure the cancer does not recur. 

Irina's husband left the family while she was undergoing treatment, and she can only count on support from her parents to get well and take care of her young son.  We really appreciate your contributions that allow us to help Irina and patients like her. 

Thank you for your kindness!

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Natalia is a young woman, loving mom to her 6-year old son, and a caring sister and daughter.  In fall of 2015 she started feeling unwell and losing weight.  Then she began having abdominal pains, lost appetite and developed fatigue.  By early December, a large tumor of right adrenal gland was discovered.  Natalia was urgently operated just two days before her 30th birthday.   She is now stable, but needs long-term therapy with Lysodren, a medication that is not made in Russia and has to be imported from abroad.  The cost of Lysodren is beyond Natalia's family's reach, and she needs our support to ensure that adrenal cancer does not return. 

Since starting this project, we have helped Natalia and other patients needing Lysodren with bringing the medication into Russia.  We were able to find this medication at a lower price and use our funds in the most effective way.  We are hoping that we can count on your support to continue providing cancer patients with vitally needed medications!

Thank you so much for your kindness!

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In our first project report, we told a story of Ruslana, a young woman with adrenocortical carcinoma who needed a medication from Canada to continue her treatment.  Another patient who has to take the same medication, Lysodren, is Nina from St. Petersburg.  Like Ruslana, Nina was diagnosed with adrenal tumor and underwent surgery and chemotherapy.  She is currently in remission, but has to take the medication to ensure that cancer does not return.

Nina is single.  She was born in St. Petersburg and lived there her whole life.  After graduating from college, she worked at the same company for 38 years.  She is now retired and lives on fixed income that does not cover even a quarter of the cost of the medicine.  As it is not registered in Russia, the cost of Lysodren is not covered by the insurance.  Nina has to rely on charitable support to continue her fight with cancer. 

Thanks to donations from our supporters, we were able to buy Lysodren for Nina to last her one month. Thank you so much for your support for Nina and patients like her!

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Organization Information

Advita Fund USA

Location: Houston, Texas - USA
Facebook: Facebook Page
Twitter: @advitausa
Project Leader:
Marina Ouano
Houston, Texas United States
$36,801 raised of $50,000 goal
638 donations
$13,199 to go
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