Help Cancer Patients Access Medications!

by Advita Fund USA
Help Cancer Patients Access Medications!
Help Cancer Patients Access Medications!
Help Cancer Patients Access Medications!
Help Cancer Patients Access Medications!
Help Cancer Patients Access Medications!
Help Cancer Patients Access Medications!
Help Cancer Patients Access Medications!
Help Cancer Patients Access Medications!
Help Cancer Patients Access Medications!
Help Cancer Patients Access Medications!

As we are approaching the end of the year, we would like to report our preliminary results.  So far this year, this project supported 20 cancer patients, children and adults, from Russia, Georgia and Tajikistan.  We spent over $28,000 on medications to help these patients acccess the right treatment.  We are very grateful to our supporters and hope we can reach even more patients before the year is over. 

In less than 3 weeks, #GivingTuesday will offer a great opportunity to make a larger impact with your donation. On that day, GlobalGiving will run a matching campaign to celebrate and encourage giving.  $150,000 in matching funds and 30+ bonus prizes (ranging from $3,000 to $100) will be released over a 24-hour period on #GivingTuesday.  #GivingTuesday Campaign will begin November 27, 2018, at 00:00:00 ET and end at 23:59:59 ET on November 27, 2018.  

Another exciting offer is to match new recurring donations up to $200 per donor per project from #GivingTuesday and until December 31. These new recurring donations will get an additional 100% match on the initial donation as long as it remains active for four consecutive payments. 

Whether you choose to make a one-time or a recurring donation, we hope you join us on November 27th!  We are looking forward to celebrating our cause, our volunteers and our supporters on that day. Thank you so much for supporting our mission! Together we are making a difference in the patients' lives, and with your support we will continue bridging gaps in access to treatment.

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We have a bit of good news today.  The medication for adrenocortical cancer patients, mitotane, is finally being made in Russia.  In early fall it should become available to many patients who need it.  Although we don't know yet if it will be affordable, the patients will no longer have to wait up to a month to receive it from abroad.

There are many other medications, aside from mitotane, which are difficult to access for cancer patients.  One such medication is defibrotide, used to treat veno-occlusive disease of the liver of people having had a bone marrow transplant.   This is a rare complication that arises in approximately 2% of bone marrow transplant recipients.  However, when it does it is highly lethal.  Prompt treatment is required to save a patient, within the hours of the initial symptoms. There is usually no time to raise funds for this medicine, which is very costly - up to $50,000 for the course of treatment.  Unfortunately, in Russia it is often difficult to achieve.  The only way to improve survival rate for this complication is to have a supply of this medication on hand.

Our goal is to help the hospitals of St. Petersburg treating patients after bone marrow transplants to access this medication as necessary.  We will be working with our partner in St. Petersburg, Advita fund, to raise the funds and purchase this medication in the most cost-effective way.  We hope you can help us achieve this goal.  One of the best ways to support us is a monthly recurring donation.  It's an  easy and convenient way to help! 

Thanks again for your support!

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As relations between Russia and the West deteriorate, most of the impact is borne by the private citizens.  Recently, access to modern medications, already inadequate, has become threatened by further restrictions and bans. 

In April the U.S. Treasury announced new sanctions against oligarchs and senior officials from Russia.  In response, Russian Duma began consideration of a bill that proposes a plethora of measures, including a ban on the imports of U.S.-made medications, which account for some 10% of the Russian pharmaceutical market and are used for treatment of leukemia and other forms of cancer, HIV, Hepatitis C, and many other conditions.

While there has been a public outcry against the ban on medications, a modified proposal would simply exclude specific descriptions of the categories of U.S.-made goods, and instead leave the determination of goods to ban to the government authorities' discretion. 

We are watching closely the developments and are trying to assess their impact on the cancer patients we support.  Although most of the medications we supply to the patients are shipped from Europe or Canada, they may be manufactured in the U.S.  There is also a possibility of extending the ban to the U.S. allies.  At this time, we anticipate increased difficulty with supply of our patients with modern medications.  We hope that we can continue to rely on your support to help us find solutions to these new challenges and ensure cancer patients continue to have access to lifesaving medications. 

Thank you so much for everything that you do! 

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This week many of us celebrated Valentine's Day.   Have we told you lately that we love you?   We absolutely do!  

Since we started this project to support patients with cancer who needed medications unavailable in Russia and other former Soviet Union countries, we have raised almost $22,000 and helped 35 patients.  This is an amazing achievement and we could not have done it without your support! 

Looking forward, the new year is promising some relief for the patients with adrenocortical cancer.  The medication (mitotane) that was previously unavailable in Russia is about to be produced domestically, and we may no longer have to purchase it abroad for patients with this cancer.   However, we still don't know how much the medicine will cost and who may be eligible to receive it for free.  In addition, the patients who live in Russia but are not Russian citizen would still have to pay for it out of their own pockets. 

Lesya is one such patient.  She was born in Ukraine, but spent most of her life in St. Petersburg where she manages archives for a university.  Lesya is multitalented: she dances, signs, and enjoys interior decorating and photography, as well as a variety of sports.  Unfortunately, since 2014 she has been battling adrenocortical cancer.  Mitotane is the medication that Lesya vitally needs, and this project's funds have been used to buy mitotane for her and other patients.  In addition, several other medications were prescribed for Lesya that are also unavailable in Russia and have to be purchased abroad. 

We are hoping that you will continue to support patients like Lesya.  After the start of the year, we have received several new requests for help, and we want to make sure we are able to support all those in need.  Please feel free to spread the word about our project if you believe what we do is important. 

Many thanks from our team, and may your lives be filled with love! 

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#GivingTuesday is a global movement that opens year-end giving season with charity and gratitude. During this season of giving, nonprofits, families, businesses, and volunteers around the world will celebrate and support the change you are making in the world.  Last year, over $168 million was raised for charitable organizations worldwide!

GlobalGiving is joining #GivingTuesday and offering bonus funds to be shared among all donations made that day!  The more we raise, the more bonus funds we will receive.  In addition, extra prizes will be offered to projects with the most donors or the most dollars raised. 

So mark your calendars for Tuesday, November 28th!  The Campaign starts at 00:00:01 EST and ends at 23:59:59 EST on Tuesday, November 28th, 2017.  For our supporters in Russia, it would start at 8 am (Moscow time) and end at 8 am on Wednesday, November 29th.

And if you like the convenience of an automatic monthly donation, GlobalGiving will add a recurring match: all new recurring donations up to $200/month will receive a 100% match.

This is a great opportunity to support the patients needing modern medications!  We do have some good news to share with you:  the patients with adrenocortical cancer for whom we have been buying medications in Canada, will soon be able to receive this medicine from a local manufacturer in Russia that recently began production.  We are working diligently to get these medications to the patients and reduce our costs. 

However, many other newer drugs face delays with registration in Russia or are offered at much higher prices than in Europe or Canada.  These drugs are generally more effective, less toxic and are better tolerated than the older generation medications.  For some of our patients, these are the only medications that they respond to.  It is critically important that we continue our work and deliver these medications to the patients who need them.  Thanks again for your kindness and support!

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Organization Information

Advita Fund USA

Location: Houston, Texas - USA
Facebook: Facebook Page
Twitter: @advitausa
Project Leader:
Marina Ouano
Houston, Texas United States
$36,801 raised of $50,000 goal
638 donations
$13,199 to go
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