Change mindset of a physically disabled child Peru

by Asociacion Centro de Rehabilitacion para Personas con Discapacidad Wasi Esperanza
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Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru

In the course of the year, 106 poor children with physical disabilities have been treated in the different projects of Wasi Esperanza.

 

Graph Nº1 refers to the age of the children who receive therapy in the centre. 49.1% are children in early childhood, demonstrating the priority given to early intervention, followed by infants with 45.3%. With this group the biggest challenge is to ensure their continuity, because the difficulties to mobilise them increase every year due to the growth of the children and finally 5.7% are adolescents, the attention for this group is oriented to the families to ensure their care, procure the development of their skills and maintain or improve their quality of life once they stop attending the centre.

 

With graph Nº2 we try to demonstrate the geographical scope of the centre. The largest group is 40.6% of families who attend Wasi Esperanza from an urban area. On closer inspection, a large group of these families rent rooms or stay with relatives to access the services that are centralised in the city and are generally in an overcrowded situation. 33% come from peri-urban areas, these areas generally lack one or more basic services and have limited access to public transport. The third group is made up of families who come from rural areas (26.4 %) , for this group the cost of attending the centre is not only more expensive, but also more difficult as there is no public transport and they have to travel early in the morning or a day earlier to access their therapies, the strategy for this third group is to provide a hybrid care that combines virtual and face-to-face care in that way we can reduce the cost for these families although this depends directly on the level of understanding of the parents and the commitment to perform the tasks given to them by the different therapists.

 

With regard to the diagnoses of the children who attend Wasi Esperanza, Graph Nº3 tells us that the largest group is made up of children with Cerebral Palsy (39.6%), most of the children in this group have CP of the quadriplegia or hemiplegia type, the second group with a large difference are children with Down's Syndrome (8.5%). The rest is divided into a wide variety of diagnoses such as muscular dystrophies, degenerative diagnoses, other types of syndromes, sequelae of trauma cases and even children who have no diagnosis and many more.

 

For many of the children who attend Wasi Esperanza we are their only option as access to state services is bureaucratic and they often feel mistreated or discriminated against whereas in Wasi Esperanza they not only find the services we provide through the different projects but also good treatment.

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Babies are born with great potential and parents have to take advantage of this opportunity to develop the baby's maturation and to promote it to the maximum in an appropriate and fun way. For this reason, early stimulation favours the development of cognitive, physical, emotional and social faculties to the maximum.

This year, the psychology department of the Wasi Esperanza Rehabilitation Centre implemented the Early Stimulation plan for children from 1 to 3 years of age with disabilities, which has been in operation since April of this year with 6 members. The objective of this plan is to stimulate the child in a timely manner, offering experiences that will allow him/her to form the basis for the acquisition of future learning, taking into account the individual characteristics of each child, as well as generating security and confidence, enriching the parent-child relationship.

Among the beneficiaries of this plan is Milett , a cheerful and restless little girl of 2 years of age, she is part of the Wasi Esperanza family since the beginning of this year, her diagnosis is malformation of the legs. At the beginning Milett was afraid to interact with other children and her adaptation to the environment and people was slow, after 1 month Milett has been interacting with other children responding to social stimulus such as a smile, caress, physical or verbal encouragement from her mother generating a stronger bond and she feels more loved, she likes musical instruments and songs, responds assertively to massages and sensory stimuli and activities of gross and fine motor skills, concentration and language.

On the other hand, the play has helped her to develop self-confidence, power and knowledge of the space around her, giving her the opportunity for fun learning.

In the future, we seek to provide her with autonomy, generate greater language manifestations, stimulate cognitive structures and have greater control of her body as well as the emotional area.

By: PSIC. Lic.Rubí K. Gutiérrez Acosta

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One of the most important activities of Wasi Esperanza is helping families with orthopedic materials for their children. In the month of January we managed to give a new neurological wheelchairs  to Luna, who is a 14-year-old adolescent with cerebral palsy and epilepsy. Luna has grown so much that her wheelchair was no longer suitable for her and thanks to a donation from the city of Halle in Belgium we were able to buy her a new one. Luna's mother was very happy because she could now move her to places near her house. Unfortunately, most of the streets in the city of Ayacucho are not accessible to people who use wheelchairs.

Luna's mother is called Sofia and she is 27 years old, she is a single mother, currently studying at the National University of Ayacucho. She is always with Luna because she depends on her mom to eat, get around and more. Fortunately, she receives support from some of her siblings, but she also looks for strategies: like taking care of children in the houses of some relatives, taking care of the houses of families that travel and anything else she can do together with Luna, all this in order to get something more money and save what his brothers give him.

All this situation has generated in Sofia depression with which she has been struggling for years, thanks to the psychology service, she can receive treatment to cope with her situation and every day she strives to do the best for Luna and for her.

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Our psychological office has attended to more than 60 cases during 2020, and has been working uninterruptedly since its opening in 2013. The person in charge of the office is Laura, she studied in Lima and always liked working with children with disabilities.

Wasi Esperanza in Ayacucho is the only center of its kind aimed at working with poor children with disabilities, with a comprehensive and multidisciplinary approach. Laura is a very important component in the work team since she is in charge of addressing very sensitive issues such as family violence, grieving processes and raising awareness among parents about the needs of her son.

The pandemic has also affected us greatly. We were not considered part of the health professionals who would receive vaccines. In addition, we had a considerable reduction in our funds. In April of this year the virus managed to overcome our security protocols, four of our colleagues fell ill with COVID, unfortunately we lost a valuable member of our team. Laura was one of the infected and fortunately she did not require oxygen, but she did present many discomforts.

After contagion, we improved our prevention protocol, but Laura still had sequelae such as constant tachycardia, chest pressure, muscle pain, hair loss, very dry skin, and considerable weight loss. Despite that, she made an effort to continue, today, more than 5 months later, she still continues with some sequelae, the doctors still do not know if it is because of her asthma or if she is presenting a post-COVID syndrome. She this week she has received the second dose of it and we hope that will help her get better. The rest of the team have also received the vaccine from her.

Despite all the health problems and losses we suffered as a team, we have managed to continue and renew our commitment to children and their families.

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According to the Peruvian newspaper Gestión, complaints of family and gender violence increased by 130% during the quarantine period decreed to contain the arrival of the COVID 19 pandemic. At Wasi Esperanza we can state that the problem of family violence is recurrent among our beneficiaries and that at the national level it is a very worrying issue that lacks proper monitoring.
Family violence is a very complex issue that needs a comprehensive look and a transversal intervention, we know that it is not possible to have results in the short term. For this reason, Wasi Esperanza has designed a multidisciplinary intervention plan between the Psychology and Social Care services.
Family support is very important to ensure that children develop their capacities and abilities, not only because they have to reinforce the work of the therapists at home, but also because they must provide a safe environment for the child to grow up.
Despite how harmful family violence is, perseverance and determination can improve the situation for children, as is the case with Tiago.
Tiago's family is made up of very young parents who abused each other in many ways, however, they did everything possible to find a diagnosis for their child since his psychomotor and cognitive development did not go hand in hand with his age.
In Ayacucho there is no specialized center in the care of children with autism, but, it began to suspect that Tiago could be within the autism spectrum, he began with physical therapies to stimulate their motor development, at the same time, the parents received individual and group care in a psychological office. They are currently separated, but despite all the problems they had as a couple, they continued to take Tiago to his therapies.
Today Thiago is 05 years old and lives with his mother, recently his communication has begun to include words, to show signs of affection to his mother and to follow directions. His parents have worked with him since he was two years old and every time there was a crisis they noticed how little Thiago would regress or start with unwanted behaviors.
Thiago's mother reinforces the sessions that she does with the psychologist every day. On an emotional level, the mother is calmer and is reflected in the child's improvements, she knows that it is not a linear process but the emotional support that she has in the psychological office strengthens her to face future challenges.
Like Thiago's family, there are many others who face similar situations and psychological support can be a turning point in finding a healthy way out, but the first step is to recognize that there is a problem and have the desire to improve.

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Project Leader:
Emilie Wouters
Ayacucho, AYACUCHO Peru
$9,841 raised of $15,000 goal
 
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