Change mindset of a physically disabled child Peru

by Asociacion Centro de Rehabilitacion para Personas con Discapacidad Wasi Esperanza
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Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru
Change mindset of a physically disabled child Peru

Our psychological office has attended to more than 60 cases during 2020, and has been working uninterruptedly since its opening in 2013. The person in charge of the office is Laura, she studied in Lima and always liked working with children with disabilities.

Wasi Esperanza in Ayacucho is the only center of its kind aimed at working with poor children with disabilities, with a comprehensive and multidisciplinary approach. Laura is a very important component in the work team since she is in charge of addressing very sensitive issues such as family violence, grieving processes and raising awareness among parents about the needs of her son.

The pandemic has also affected us greatly. We were not considered part of the health professionals who would receive vaccines. In addition, we had a considerable reduction in our funds. In April of this year the virus managed to overcome our security protocols, four of our colleagues fell ill with COVID, unfortunately we lost a valuable member of our team. Laura was one of the infected and fortunately she did not require oxygen, but she did present many discomforts.

After contagion, we improved our prevention protocol, but Laura still had sequelae such as constant tachycardia, chest pressure, muscle pain, hair loss, very dry skin, and considerable weight loss. Despite that, she made an effort to continue, today, more than 5 months later, she still continues with some sequelae, the doctors still do not know if it is because of her asthma or if she is presenting a post-COVID syndrome. She this week she has received the second dose of it and we hope that will help her get better. The rest of the team have also received the vaccine from her.

Despite all the health problems and losses we suffered as a team, we have managed to continue and renew our commitment to children and their families.

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According to the Peruvian newspaper Gestión, complaints of family and gender violence increased by 130% during the quarantine period decreed to contain the arrival of the COVID 19 pandemic. At Wasi Esperanza we can state that the problem of family violence is recurrent among our beneficiaries and that at the national level it is a very worrying issue that lacks proper monitoring.
Family violence is a very complex issue that needs a comprehensive look and a transversal intervention, we know that it is not possible to have results in the short term. For this reason, Wasi Esperanza has designed a multidisciplinary intervention plan between the Psychology and Social Care services.
Family support is very important to ensure that children develop their capacities and abilities, not only because they have to reinforce the work of the therapists at home, but also because they must provide a safe environment for the child to grow up.
Despite how harmful family violence is, perseverance and determination can improve the situation for children, as is the case with Tiago.
Tiago's family is made up of very young parents who abused each other in many ways, however, they did everything possible to find a diagnosis for their child since his psychomotor and cognitive development did not go hand in hand with his age.
In Ayacucho there is no specialized center in the care of children with autism, but, it began to suspect that Tiago could be within the autism spectrum, he began with physical therapies to stimulate their motor development, at the same time, the parents received individual and group care in a psychological office. They are currently separated, but despite all the problems they had as a couple, they continued to take Tiago to his therapies.
Today Thiago is 05 years old and lives with his mother, recently his communication has begun to include words, to show signs of affection to his mother and to follow directions. His parents have worked with him since he was two years old and every time there was a crisis they noticed how little Thiago would regress or start with unwanted behaviors.
Thiago's mother reinforces the sessions that she does with the psychologist every day. On an emotional level, the mother is calmer and is reflected in the child's improvements, she knows that it is not a linear process but the emotional support that she has in the psychological office strengthens her to face future challenges.
Like Thiago's family, there are many others who face similar situations and psychological support can be a turning point in finding a healthy way out, but the first step is to recognize that there is a problem and have the desire to improve.

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2020 has been difficult for all the families of Wasi Esperanza. Many have lost their jobs or have seen a big decrease in their monthly income and the prices of basic necessities and services increased. To continue with the therapies, the use of technology has been necessary.

For many families it was something new to use in classes, therapies or follow-up. This generated a lot of frustration and impotence, added to the uncertainty about what would happen later and the constant fear that a member of the family could be infected. This made the year 2020 one of the worst for many.

Despite the difficulties we want to highlight the efforts of the families who did not allow themselves to be defeated. Such as Kinder, who is a 3-year-old boy and has Down Syndrome. He is very happy and active and he likes musical toys, looking in the mirror and playing with his brothers.

With the psychologist Kinder has already learned to identify himself by pointing when a picture of him is shown or when he is asked, Where is Kinder? With a smile he points to himself, recognizes animals by sound and says goodbye by waving his hand. We hope he learns to speak.

Mrs. Rosa, his mother, is always there for him. She is very committed to the therapies, she arrives on time and performs the activities at home to see improvement in Kinder. With the help of her two older children they do the therapies, they motivate him to do the exercises by playing with him.

The father cannot accompany him in the therapies because due to the pandemic the salaries have been reduced and to cover the expenses, he had to look for more temporary jobs to cover the expenses of the family and so that Kinder can travel to continue attending therapy.

Currently, Mrs. Rosa brings Kinder to the Center to receive therapy. She is accompanied by her brother Saul. Together they enter the psychological office and work on strengthening family ties and improving their social skills

The family has drawn strength and patience to motivate themselves and not let the pandemic overwhelm them and together they will achieve their goals.

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Gabriela is 6 years old, she is a happy, smiling and charismatic girl, she likes to play kitchen, sing and tell short stories, although not everyone can understand her.
Her diagnosis is Cerebral Palsy, she and her mother live in a rented room, her mother works hard so that she has everything she needs to develop.
Gabriela joined Wasi Esperanza at the beginning of 2016 at that time she was very small: she did not control her body, she had a very soft muscle tone, she drool, she did not have coordination and balance, she could not sit, she had anemia and many other things.
She received care in the areas of Physical Therapy, Day Center, Psychology and Education. Over the years Gabriela has had many achievements and successes such as: Stop drooling, be able to support her body, have balance, speak, change some clothes by herself, perform complicated exercises, eat some solid foods among others, leave the diaper and be able to go to the bathroom.
Gabriela learns very fast, she is always attentive to any situation, she has a good memory, she learned vowels, counting to 10, colors, animals, indications, her vocabulary has increased, seeing her as successful learning.
In 2019 there was a great challenge to include her in regular education. First she was in CEBE (Special Basic Studies Center) where she demonstrated all her skills, managing to enter the educational center "Niño Jesús de Praga" the following year in the 4-year-old classroom, she is still adapting to his new environment, classmates, teacher and workflow.
Due to the pandemic and quarantine, she has stopped attending her little school, thus leading virtual classes where her mother helps her with homework with support from the Education area, making the adaptations she needs since she still cannot speak properly and her motor functions are very limited.
When the quarantine began, she received virtual care but the mother does not have enough money to install the internet and the internet packages she bought were running out very quickly between classes and therapies. That is why she currently attends face-to-face therapy. The mother brings her carrying because she still does not walk and is afraid to use public transport.
She and her mother work hard to improve their situation, each is the support of the other and each achievement of Gabi makes her mother proud.

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Today we'll tell you about José. He is 14 years old and since 3 years he receives physical therapy. He is a happy and calm kid. He likes to listen to music, above all ballads. He lives with his mother and younger sister who love him a lot.

José has cerebral palsy. With help he can walk a little bit. He and his family have been going to the psychologist, because his little sister felt like all the attention of heir mother was only good José. Because of the therapy of our psychologist they could resolve the situation together with other issues which complicated José’s condition.

During the pandemic the psychologist continued working with José for instructions and relaxation exercises for his mother. Because of the lockdown due to covid-19 she has been stressed. We contacted them through video calls, messages and WhatsApp.

When they started with on his follow-up with José they had to repeat a lot of times what he had to do. This was very frustrating for his mother and she had to bee patient to work with him. The corona virus has affected a lot of families economically. The mother of José lost her work and his father only has temporary jobs. In spite of the situation, his mother continued reinforcing the work of the psychologist. Now they only have to repeat it sometimes so that he follows the instructions. José, His mother and the psychologist have already set a new goal and are working on recognizing colors.

The lockdown started 16th of March in Peru and ended 30th of June. During this time our psychologist continued working with the patients and their families because they were facing a situation without precedents. In Wasi Esperanza we try to adapt us to the actual context in the best way we can. We opted for attention through video calls and home visits. But 40% of our patients only have limited access or none at all to internet which was a big gap to fill. A lot of families opted to return to their villages because life would be cheaper there.

We are starting to attend in person since this month making sure to comply with the norms of prevention determined by the government and for are own personal health. However, 80% of our patients are afraid of being infected. That’swhy we have to work on raising awareness and educate about the prevention of the coronavirus, because in a lot of cases the therapy at a distance can’t replace the actual therapy in person.

Jose and his family
Jose and his family
Jose peeling garlic
Jose peeling garlic
Ordering the paintings
Ordering the paintings
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Project Leader:
Emilie Wouters
Ayacucho, AYACUCHO Peru
$9,584 raised of $15,000 goal
 
106 donations
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