Rainbow Trust Children's Charity

Rainbow Trust Family Support Workers provide emotional and practical support to families that have a child suffering from a life threatening or terminal illness. They provide access to healthcare, education, therapy, welfare support and benefits for these families at the most traumatic time of their lives together with emotional support for the whole family.
Sep 7, 2016

What our parents say about Family Support Workers

Emily with mum and Family Support Worker, Sarah
Emily with mum and Family Support Worker, Sarah

Your donations have made wonderful things possible. Here are some of the things our parents have said about our Family Support Workers:

“We wanted to thank you so much for all the help and support you have given to Amelia over the past years. As you know Amelia has been through some very tough and unhappy times and we have all been so grateful for all of your support and advice, you have always been there to help us all when we have needed it, even having a cup of tea and a chat has helped us. You have been brilliant, always happy and cheerful, you brighten our day when you visit.”
Mum of 14-year-old Amelia

“Marlene was someone who could step in for a short space of time and take some of the strain from my shoulders. We laughed so much with Marlene, with her around something was always funny! Her visits gave me both a physical and emotional break from looking after Ruby – I had someone to talk to who knew us, knew the illness, knew our situation and who wouldn’t get upset if I offloaded onto her.  I could tell Marlene things that I just couldn’t say to anyone else.”
Amanda, mum of six-year-old Ruby

“Sarah’s help gave me that breathing space that I hadn’t had since Emily was diagnosed. I trust her with Emily, my precious child. When I am home with her, I ask her every 20 minutes, are you OK? Sarah’s help gives us both space and normality. I didn’t think this kind of practical help would make a difference but it really does. It’s made life more bearable which I didn’t think was possible.”
Katie, mum of 10-year-old Emily

“Dawn came to Jack’s funeral and sat next to Liam in case he needed to leave the service. She has been with us ever since. It’s over a year since Jack died and Dawn has been invaluable. Other charities leave after the child dies but Dawn never left – the hurt will never go away so having Dawn stay with us has been so special to us.”
Maria, mum of Jack and Liam

Thank you from all of us at Rainbow Trust Children’s Charity for helping us to make so much happiness.  

Aug 3, 2016

Time spent with Elizabeth

My job is most difficult when a child dies, or when a family are told there is no further treatment available, but I know that the support I can give will help them to make the most of their last days, weeks or months together.

I supported a 13 year old girl, Elizabeth, who was suffering from terminal cancer. She was the same age as my daughter at the time, so it really hit home to experience what Elizabeth was going through.

Towards the end of her life, Elizabeth opened up to me about the fears she had about dying, but was most worried about leaving her mother, and how devastated she would be. She told me she would like to leave presents for all the members of her family to be remembered by, so during the last few weeks of her life we spent time shopping to collect special presents for each family member. She made a Build a-Bear for her mother with a personal, tape recorded message of her voice inside, and we spent time hand-painting pottery and making jewellery for her grandma and aunties.

My time with Elizabeth was made possible by kind donations to Rainbow Trust, without which I couldn’t provide this wonderful support to children who need it. I am grateful to everyone that has enabled me to do such a difficult but rewarding job.

Thank you for supporting our vital work with your donations.

Aug 2, 2016

Taking Michael to Dialysis

Steve and Michael do battle on the chess board
Steve and Michael do battle on the chess board

Michael was just seven years old when he was diagnosed with a kidney disorder. For the foreseeable future, Michael has to have dialysis three times a week. 

Each dialysis treatment lasts four hours, not including travel time and time spent finding a parking space at the hospital. On those days, Michael's mum can’t pick his sister up from school or see her in the evening, because she is at hospital with Michael. 

Rainbow Trust has helped the family by introducing them to Family Support Worker, Steve, who takes Michael to hospital for some of his treatments, and stays with him throughout, bringing him home afterward. This gives mum Claire a chance to spend quality time with little sister Charlotte.

“It’s important because Charlotte feels left out. But this gives us a good amount of time together, not just five minutes in between hospital appointments,” says Claire.

Michael, who smiles constantly and chats to everyone on the ward, says he enjoys being with Steve. “In the car we chat about school and how I’m feeling and then in hospital we play chess, although he always wins!” Michael told me.

 
   

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