Help Families with a Sick Newborn Baby in Hospital

by Rainbow Trust Children's Charity
Vetted

Summary

Rainbow Trust has been providing emotional and practical support for families with terminally ill children since 1986. However, following publication of a report by the University of Leeds in 2011, we have identified an area in which there is currently little or no support for families, and aim to introduce our new neonatal palliative care service to provide specialist support for families with very sick new born babies.
$50,000.00
total goal
$47,456.00
remaining
56
donors
0
monthly donors
1
year active

Challenge

Neonatal units in hospitals specialise in the care of babies born early, with low weight or who have a medical condition that requires specialised treatment. Most babies are, and remain, healthy and receive routine care at their mother's bedside before going home with their family. However approximately 10% of babies require some form of specialist support at birth, with 1-3% requiring neonatal intensive care. At present there is little or no support for families with babies in a Neonatal unit.

Solution

Rainbow Trust secured funding for our first specialist neonatal Family Support Worker and launched our pilot scheme at Chelsea and Westminster Hospital. Chelsea and Westminster is at the forefront of neonatal palliative care and we are working closely with Alex Mancini, the UK's first neonatal nurse, based at Chelsea and Westminster, on this project.

Long-Term Impact

A recent report identified 2,205 babies in England in need of palliative care services, 85% of whom came from areas in which Rainbow Trust already operates. At Chelsea and Westminster Hospital, around 10% of deliveries are admitted to their Neonatal Intensive Care Unit (NICU), totalling up to 600 each year. Despite the fact that the majority of premature babies are likely to need long-term medical care, there is very little or no practical or emotional support for parents of babies on the unit

Resources

http:/​/​www.rainbowtrust.org.uk

Organization Information

Rainbow Trust Children's Charity

Location: Leatherhead, Surrey - United Kingdom
Website: http:/​/​www.rainbowtrust.org.uk
Project Leader:
Jenny-Anne Dexter
Leatherhead, Surrey United Kingdom
$2,544 raised of $50,000 goal
 
60 donations
$47,456 to go
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