Supporting Rare Disease Patients

by CF Orphanni Synytsi
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Aug 8, 2022

Four patients received oxygen concentrators

Artem (16 y.o.) from Volyn region
Artem (16 y.o.) from Volyn region

Our dear Donors,

We are happy to share our news with you on the project progress in supporting Ukrainian rare (orphan) diseases patients.

Thanks to Your donations, four donees of the Foundation received recently a life-saving medical equipment - oxygen concentrators.

They are Ukrainian patients living with a rare diagnosis Pulmonary Hypertension. This disease affects the heart and lungs, and significantly changes the quality of life. Its treatment is expensive and lifelong, and includes the oxygen therapy. In severe cases patients need a heart-lung transplantation.

We sent oxygen concentrators to Artem (16 y.o.) from Volyn region, Yulia (36 y.o.) who was forced to flee from Bucha to the western part of Ukraine in the first days of the war, Olena (26 y.o.) from Zhytomyr, and Inna (52 y.o.) from Kyiv region.

We are also happy to share with you the words of gratitude of Artem`s mother: "Thank you very much! This is a great help for us, may the God bless you!” 

Because of the war and its impact, rare diseases patients in Ukraine became more vulnerable.Now, with oxygen concentrators, they have  24-hour access to the respiratory in-home care they need.     

Your participation in our project https://goto.gg/54000 makes great encouragement for patients who remained in Ukraine in these hard times. Your support can significantly improve their health and quality of life in the conditions of humanitarian crisis and war in Ukraine.

Warm regards,

CF Orphanni Synytsi

Yulia (36 y.o.) from Bucha (Kyiv region)
Yulia (36 y.o.) from Bucha (Kyiv region)
Olena (26 y.o.) from Zhytomyr
Olena (26 y.o.) from Zhytomyr
Inna (52 y.o.) from Kyiv region
Inna (52 y.o.) from Kyiv region

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Organization Information

CF Orphanni Synytsi

Location: Kyiv - Ukraine
Website:
Facebook: Facebook Page
Project Leader:
Tetiana Zamorska
Kyiv, Kyiv Ukraine
$9,602 raised of $10,000 goal
 
240 donations
$398 to go
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