Supporting Rare Disease Patients

by CF Orphanni Synytsi
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Supporting Rare Disease Patients
Apr 15, 2022

A concentrator for a baby with rare disease

Little Anya from Vinnytsya region in Ukraine is only 1 year and 4 months old.

      At the end of the last year, the doctors of the National Children Specialized Hospital OKHMATDYT (Kyiv), diagnosed the baby with a rare diagnosis - Krabbe disease. Anya was planned to be hospitalized again in Kyiv to undergo additional examinations and adjust her treatment if necessary. But due to the war, hospitalization had to be postponed.

      Recently, due to the breakdown in her health, Anya was hospitilized to the intensive care unit of a district hospital in Vinnytsya region. After her discharge from the hospital doctors prescribed an everyday oxygen therapy at home.
      Thanks to the funds raised within our project https://goto.gg/54000 on the international charitable platform GlobalGiving, our Foundation purchased and sent an oxygen concentrator to Anya's family address this week.

On behalf of  Anya`s parents, we would like to thank all the donors for their support in raising funds for life-saving equipment. We also thank to the team of the NGO "Rare Disease Association of Ukraine" for arranging the delivery of the concentrator from Kyiv to Vinnytsya region under the war conditions in Ukraine.

Links:

Share on Twitter Share on Facebook
Comments:

About Project Reports

Project Reports on GlobalGiving are posted directly to globalgiving.org by Project Leaders as they are completed, generally every 3-4 months. To protect the integrity of these documents, GlobalGiving does not alter them; therefore you may find some language or formatting issues.

If you donate to this project or have donated to this project, you will get an e-mail when this project posts a report. You can also subscribe for reports via e-mail without donating.

Get Reports via Email

We'll only email you new reports and updates about this project.

Organization Information

CF Orphanni Synytsi

Location: Kyiv - Ukraine
Website:
Facebook: Facebook Page
Project Leader:
Tetiana Zamorska
Kyiv, Kyiv Ukraine
$9,602 raised of $10,000 goal
 
240 donations
$398 to go
Donate Now
lock
Donating through GlobalGiving is safe, secure, and easy with many payment options to choose from. View other ways to donate

CF Orphanni Synytsi has earned this recognition on GlobalGiving:

Help raise money!

Support this important cause by creating a personalized fundraising page.

Start a Fundraiser

Learn more about GlobalGiving

Teenage Science Students
Vetting +
Due Diligence

Snorkeler
Our
Impact

Woman Holding a Gift Card
Give
Gift Cards

Young Girl with a Bicycle
GlobalGiving
Guarantee

Sign up for the GlobalGiving Newsletter

WARNING: Javascript is currently disabled or is not available in your browser. GlobalGiving makes extensive use of Javascript and will not function properly with Javascript disabled. Please enable Javascript and refresh this page.