Promoting Paediatric Pain Management

by International Children's Palliative Care Network
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Promoting Paediatric Pain Management
Promoting Paediatric Pain Management
Promoting Paediatric Pain Management
Promoting Paediatric Pain Management
Promoting Paediatric Pain Management
Promoting Paediatric Pain Management
Promoting Paediatric Pain Management
Promoting Paediatric Pain Management
Promoting Paediatric Pain Management
Promoting Paediatric Pain Management
Promoting Paediatric Pain Management
Our elearning site
Our elearning site

Thank you all for your ongoing support to promote paediatric pain management. Whilst the world continues to be dominated by the Covid-19 pandemic, the issue of pain management remains high on the agenda of many, as the care of children in pain continues to be challenging, with the need for education greater than ever. We have recently upgraded our elearning platform and are gradually going through each of the courses updating them. We are waiting for the revised WHO pain guidelines to be published early in 2021 as we update our training on pain assessment and management for children. 

Throughout this pandemic ICPCN has been involved in a range of webinars, providing education and information on children’s palliative care and in particular pain management for individuals from around the world. Taking advantage of the virtual world that we live in at the moment, we have been able to talk to members around the world, including those from Asia, Africa, North America, Oceania, Europe and South America. Fortunately, the virtual world has also given various options for translation, enabling us to participate in webinars not in English. So, whilst we may not have been travelling much physically, we have been virtually and it has been great to keep in touch with colleagues around the world. We are also planning a series of ICPCN led webinars during 2021, with a session in pain assessment and management high on the priority list. We do also continue to hear stories about how individuals – both professionals, families and children, are utilising our Pain App in their day-to-day work, and are learning how to assess and manage pain in children. This is encouraging and great to know that the App is being used and is helpful.

So, whilst this year has not been as we had expected, and we may not have been able to do what we had planned in relation to education and training, our App and clinical care. However, it has opened up new opportunities and at this challenging time we thank you for your ongoing support and we will do all we can to promote palliative care and pain management in children around the world.

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Thank you all for your ongoing support to promote paediatric pain management. It is hard to believe that another report is due as the world continues to be dominated by the Covid-19 pandemic impacting all of us. Our elearning programmes are currently in demand as people are looking at how they can access ‘virtual’ education, and our course on pain assessment and management for children will soon be updated with the recently published revised definition of pain by the International Association of Pain.  We have also developed a course on COVID-19 which signposts people to our other courses, such as the one on pain assessment and management. 

We continue to hear stories about how individuals – both professionals, families and children, are utilising our Pain App in their day-to-day work. This is encouraging and great to know that the App is being used and is helpful.

Throughout this pandemic ICPCN has been involved in a series of webinars on Palliative Care and Covid-19, which we have worked alongside the International Association of Hospice and Palliative Care, the Worldwide Hospice and Palliative Care Alliance and Palliative Care in Humanitarian Aid Situations and Emergencies Network. Alongside this we have developed Briefing Notes on many different aspects of palliative care and COVID-19, including those for children, in which we covered aspects of pain management. These Briefing Notes and the recordings of the webinars can be found on the ICPCN website, but also on the www.globalpalliativecare.org website where the complete series can be found. We would encourage you to take a look if you have not done so already.

At this challenging time we thank you for your ongoing support and we will do all we can to promote palliative care and pain management in children around the world.

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Thank you all for your ongoing support to promote paediatric pain management. This is a short report as so much has happened in the world since our last report in December – not least of which Covid-19 which is impacting us all. We are all having to do things differently, to look at how we work, and for us working in palliative care we are looking at how we continue to care for those children with palliative care needs, and also ensure that palliative care is available to all who may need it due to Covid-19 and their families. Pain management is essential in this, and fortunately as globally people are looking and how they can provide distance education, we have our elearning programmes up and running, and we are encouraging all those working with children to undertake our elearning programmes and utilise our pain assessment App. 

It was encouraging to be in Turkey recently at a meeting to hear someone presenting as to how they are utilising our Pain App in their clinical care. Particularly encouraging as they did not know that ICPCN were in the audience! 

At this challenging time we thank you for your ongoing support and we will do all we can to promote palliative care and pain management in children around the world.

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Thank you all for your ongoing support to promote paediatric pain management. A lot has been happening in the last couple of months here at the International Children's Palliative Care Network as we continue to try and increase access to pain management for children around the world. In our last report we said that we are upgrading our elearning platform so that access and user experience is improved and more people will be able to access training on pain assessment and management in a variety of Languages. We are delighted that this upgrade is in progress and our training on pain assessment and management can also now be accessed through the moodle App on mobile phones and tablets. 

Meanwhile we continue to promote the use of our pain app for children. Downloadable on both apple and android devices we hope that the app will provide an easily accessible, digital child-friendly tool that allows the child to accurately rate and record the location, level, type and intensity of their pain. As ICPCN we are working on a project called MyPal part of which is looking at using technology for measuring outcomes, including pain, in children with cancer. It has been interesting to see how our App fits in with this, and the utilisation of technology for managing and assessing pain. The MyPal study is still in its early stages but we will keep you abreast with progress.

Our team continue to share about the Pain App at every opportunity, recently one participant at a workshop said how helpful they had found using the App and they hope that it will continue to be available to children, their families and health professionals around the world.  We hope that the App is being used to enable children and young people to remain pain free during this holiday season.

Best wishes for Christmas and the New Year

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Thank you all for your ongoing support to promote paediatric pain management. A lot has been happening in the last couple of months here at the International Children's Palliative Care Network as we continue to try and increase access to pain management for children around the world. 68 people from more than 25 countries have accessed our elearning programme in English on Pain Assessment and Management, undertaking assignments and reflective accounts, looking at how they assess and manage children's pain, what they can do differently, and how they can advocate at their work places for access to analgesics and individuals trained on paediatric pain management in children, adolescents and young people with palliative care needs. Our education officer Alex is busy responding to all of their assignments and reflective accounts, giving feedback and helping them to maximise their learnig exeprience. 

Meanwhile we continue to promote the use of our pain app for children. Downloadable on both apple and android devices we hope that the app will provide an easily accessible, digital child-friendly tool that allows the child to accurately rate and record the location, level, type and intensity of their pain. Utilising validated pain scales, children are able to record their pain score and take a record of this to their doctors thus enhancing their doctors ability to adjust their medicines appropriately and control their pain.

Our Chief Executive shared about our pain App yesterday at the 6th African Palliative Care Conference in Kigali, Rwanda. Whilst presenting she noted that it is a valuable tool for all ages, and that children and adolescents are able to individualise it, chosing their own avatar. She also shared the experience of one young lady of using the App and how it has helped her and finds it user friendly and easy to use. In discussion with some of the participants at the conference after her talk,  there was a feeling of excitement as to how the App can be used, with several participants having already downloaded the App.

We are busy upgrading our elearning platform so that access and user experience is imporeved and more people will be able to access training on pain assessment and management in a variety of languages. We look forward to updating your further in our next report.

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International Children's Palliative Care Network

Location: Bristol - United Kingdom
Website:
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Twitter: @iCPCN
Project Leader:
Julia Downing
Bristol, United Kingdom
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