Help Children with Cancer Access Treatment!

by Advita Fund USA
Help Children with Cancer Access Treatment!
Danylo
Danylo

Baby Danylo is the third child in his family, and the first boy.  On September 16, 2020, at the age of  just one month, he was diagnosed with retinoblastoma, a rare type of eye cancer. His family was devastated to learn that the hospital in Kyiv where Danylo was admitted, or any other medical facility in Ukraine, cannot offer modern methods of therapy because of lack of equipment and technology for this kind of cancer.  Retinoblastoma requires highly specialized care, experienced specialists and regular follow-up assessments to make sure it does not recur and spread throughout the body.  Through cancer support groups, the family came in contact with Jules-Gonin Eye Hospital in Lausanne, Switzerland, which is a center of excellence in care for retinoblastoma.  The hospital agreed to take Danylo in for urgent treatment, which started on September 24, 2020. 

Danylo's family pulled all of their resources together and with fundraising efforts they managed to deposit the amount needed to start treatment. Treatment has been successful so far, which gives them hope for beating cancer and retaining Danylo's eyesight.   However, after multiple chemotherapy sessions and doctors' visits, the deposit has been depleted and now the family is looking for financial assistance to continue Danylo's treatment. 

Thanks to your support, we were able to issue a grant to Danylo's family and get them closer to beating cancer.   Did you know that next week, any donation of up to $50 will receive a 50% match from GlobalGiving?  That's a great way to help kids like Danylo who have to travel abroad to access the right treatment.  We hope you join us next week, from Monday, March 8th through Friday, March 12th and show your support for our cause!

Thank you so much!

Stay safe!

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Rostislav
Rostislav

2020 has been such a turbulent year that it's safe to say that all of us are feeling its effects to some degree.  The uncertainty over our future, fears of catching a deadly virus, worries about our loved ones and rapidly changing circumstances have been our companions for many months.  And so much unknown still lies ahead.

These emotions are not unlike experiences that families of children with cancer go through from the moment of diagnosis.  It's a heavy burden of emotional, physical and financial turmoil, and to cope with it the families have to mobilize all of their resources and reach out to wide and far communities.  Often, in search of appropriate treatment their journey takes them abroad.  Rostislav's family had to follow just such a path. 

Rostislav is now 3 years old. He's been growing up healthy and happy and enjoyed going to daycare. A month ago he suddenly began complaining of stomachaches, and his parents took him to see a doctor. A large abdominal tumor was discovered by Rostislav’s local doctors in the city of Khmelnitskyi, in western Ukraine, and he was referred for additional evaluation in Kyiv. There Rostislav was diagnosed with aggressive childhood cancer, neuroblastoma. Unfortunately, the primary tumor metastasized to Rostislav’s bone marrow by that time. Neuroblastoma’s treatment is highly complex and challenging and requires several approaches that have to precisely timed – surgery, chemotherapy, radiation and immunotherapy. Immunotherapy, which cuts the risk of relapse by half, is only available abroad, and Rostislav’s parents took him to Spain to access this treatment. While they were able to raise money for initial deposit, they will need to raise much more to be able to complete treatment.

Our project helps to support families like Rostislav's.  We believe that every child regardless of their place of birth deserves access to the best care available for cancer.  We search the world for the proper opportunities or support patients that have already found treatment on their own but need financial aid. Thank you so much for allowing us to continue our work!

We are truly grateful for your help!  Hope the upcoming holiday season will bring you joy and happiness.

Stay safe!

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Alexei
Alexei

Alexei is 3 years old. He is from Ryazan, Russia. When he was just 2 years old, his young parents were shocked to discover that he was diagnosed with neuroblastoma, high risk. This is a type of aggressive solid tumor that arises primarily in children. After undergoing standard therapy Alexei achieved good partial response and needed to continue treatment with immunotherapy to ensure his remission lasts.  Unfortunately, this therapy is not yet registered in Russia. By the time the medication was purchased abroad and brought to Russia, Alexei had a massive relapse in his brain.

By a miracle, he survived surgery. In April Alexei was supposed to start chemotherapy in Moscow, but due to coronavirus pandemic, it was postponed. Then Alexei caught an infection, and his hospitalization was moved to a later date once again. As it is very dangerous for Alexei to delay treatment, his family urgently sought treatment abroad.

Sant Joan de Deu hospital in Barcelona agreed to accept Alexei for recently approved immunotherapy with a partial prepayment, and the family immediately flew out. However, they need help with fundraising to ensure Alexei can complete his treatment and have the best chance to beating cancer.  This is where your help comes in - we have already transferred 1000 euros for Alexei's treatment.  In addition, several other families with chlidren treated in Barcelona have since applied and received our help.  This would not have been possible without our supporters, and we are deeply grateful.  Thank you so much for keeping the kids like Alexei in your heart and mind even during these trying times!

Stay safe!

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Viktoria
Viktoria

Our project was envisioned as a way to support families of children with cancer who could not access adequate treatment in their home countries and had to travel abroad.  With coronavirus pandemic affecting most of the world, families will have to face a difficult decision of risking travel and potential exposure to a deadly virus, or remaining at home where treatment options are limited or non-existent.  Moreover, this choice may disappear once more countries close borders and block foreign visitors from entry.

It is hard to predict at this point how long the pandemic will last or what effect it will have on the world.  However, it is important to remember the patients with cancer who will need our help even more acutely at these challenging times.  We will keep supporting the families requesting our help - whether by helping them afford medications, receiving second opinions, or continuing their treatment abroad.  We hope you will remain with us and offer helping hand to the patients.  It will be greatly appreciated!

Most recently, parents of 4-year old Viktoria were the recipients of your support.  In January 2020 she was diagnosed with a brain tumor. Due to its large size it required complex surgery and specialized rehabilitation post-surgery.  In her native Ukraine, Viktoria's doctors were hesitant to operate.  Hoping to access experienced doctors, Viktoria's parents took her for treatment to the Children's Hospital in Barcelona. In February she underwent surgery and then began therapy.  Your support allowed Viktoria's parents to cover their travel and lodging expenses. 

Thanks again for your support of our project!  We will continue to assess the impact of the pandemic on cancer patients and will respond as necessary. 

Stay safe! 

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Happy holidays!
Happy holidays!

As 2019 is coming to an end in about two weeks, an argument is raging on whether the new decade will start on January 1, 2020, or January 1, 2021.  We are also divided on this issue.  But what is clear to us is that we will continue to need your support next year just as much as we do now.

Unfortunately, the pace of progress in pediatric oncology is still slow.  Most of the investment in new drug development goes into adult cancers, which are much more frequent.  Since relatively few children get cancer, it is difficult to enroll enough patients into clinical trials and discover new medications that are more effective and safe. 

The former Soviet Union countries also remain plagued by larger issues of inefficient governments, corruption, and outdated facilities.  Many families of children with cancer are unable to get good answers to their questions, or access treatment protocols that are standard in developed countries.  Some become frustrated and take their children abroad for treatment to ensure they get the best chance to beat the disease.  

Marian's family did just that.  He was only 20 months old when he was diagnosed with stage IV neuroblastoma in August.  Neuroblastoma is a very aggressive type of cancer and almost always fatal if it recurs after treatment.  In Marian's native Ukraine, the best treatment regimen involving immunotherapy was not accessible.  His family had to bring him abroad to Spain where he is now receiving appropriate therapy.  Thanks to your donations, we were able to support his family when they reached out to us.

Until the end of the year GlobalGiving is running a contest, with prizes for the most funds raised and the most unique donors.  Donate before December 31 to allow us help even more patients!  In addition, GlobalGiving will match 100% of your first recurring donation, if you make at least 4 monthly payments. 

Thanks again for your kindness! 

We are wishing you a wonderful holiday season and a happy New Year! 

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Organization Information

Advita Fund USA

Location: Houston, Texas - USA
Website:
Facebook: Facebook Page
Twitter: @advitausa
Project Leader:
Marina Ouano
President
Houston, Texas United States
$62,292 raised of $80,000 goal
 
833 donations
$17,708 to go
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