Help Children with Cancer Access Treatment!

by Advita Fund USA
Help Children with Cancer Access Treatment!
Nicole
Nicole

 

Two-year-old Nicole has her dad's eyes and her mom's smile.  She is a happy and curious little girl who loves drawing, unicorns, and pretend play.  But in March 2021, she got sick and had symptoms of a cold. After 3 weeks of unsuccessful treatment, on March 29 she was admitted to intensive care unit in a serious condition, with a diagnosis of bacterial pneumonia. On April 23, she was finally discharged from the hospital. However, on May 5, as she was brought in for a planned X-ray control to the hospital, she was again sent to intensive care unit. For a long time, doctors could not diagnose and understand what was happening to Nicole.

On May 11, after receiving the CT scan results, Nicole’s parents learned that in less than a month a giant tumor (138x84x156 mm) had grown in her left lung (her April scans did not show any signs of tumor).  On May 20, the tumor was completely removed from the pleural cavity of Nicole’s left lung during successful radical surgery at the Cancer Institute in Kiyv, Ukraine. The surgery was the last chance to safe her life. The tumor occupied Nicole’s entire chest and was 25 cm in length. Nicole breathed with only one lung for about a month.

Nicole’s chemotherapy started a month after surgery at the insistence of the doctors, without waiting for the results of tumor testing and without an exact diagnosis. Soon after Nicole was diagnosed with a terrifying disease: Pleuropulmonary blastoma (Type III). 

Pleuropulmonary blastoma is an extremely rare cancer. In total, only 350 confirmed cases of this rare disease were registered around the world by 2017, by the International Register of Pleuropulmonary Blastoma based in Minnesota. It is very difficult to find cancer specialists around the world who had encountered patients with this diagnosis. Luckily, Nicole’s parents found the Sant Joan de Deu Hospital in Spain, which specializes in rare childhood cancers and the most difficult patients. This medical institution has a successful track record of treating Nicole’s disease. They had experience with a few patients diagnosed with pleuropulmonary blastoma and all of them were successfully treated.

However, treatment in a foreign country comes at a high cost, and Nicole’s family needs financial support to pay for therapy. Nicole had already started treatment based on a partial deposit, but her family is still raising funds to make sure she is able to complete the full course of treatment. 

Thanks to your support, we were able to contribute 1000 euros to Nicole's treatment, and her parents were incredibly grateful.  They are sending their best wishes to everyone who helps kids like Nicole at such a critical time in their young lives. 

Thanks again for your support - we are truly grateful!

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Six-year-old Sofia was diagnosed with acute leukemia in January.  She is the only child, and her parents were shocked to learn about her diagnosis.  Sofia's treatment was started immediately, but she had a very difficult time tolerating the side effects of chemotherapy and was taken to ICU twice in the first month of treatment.  Although Sofia responded to treatment, she needs to access therapy unavailable in her native Ukraine.  Her parents are urgently raising funds to take her to a Children's hospital in Barcelona, Spain to make sure that Sofia remains in remission. 

Our project aims to support families like Sofia's to ensure every child with cancer has equal chance to access the best care available to them.  We will really appreciate your help with getting assistance to Sofia and other kids like her.

On July 14th, GlobalGiving will offer an opportunity to increase your impact during Bonus Day - donations of $100 USD and up will get matched, starting at 9 a.m. ET. The higher the amount, the higher the match!  Save the day, or donate any time - it's up to you!

We sincerely appreciate your aid for families of kids with cancer!

All the best,

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Danylo
Danylo

Baby Danylo is the third child in his family, and the first boy.  On September 16, 2020, at the age of  just one month, he was diagnosed with retinoblastoma, a rare type of eye cancer. His family was devastated to learn that the hospital in Kyiv where Danylo was admitted, or any other medical facility in Ukraine, cannot offer modern methods of therapy because of lack of equipment and technology for this kind of cancer.  Retinoblastoma requires highly specialized care, experienced specialists and regular follow-up assessments to make sure it does not recur and spread throughout the body.  Through cancer support groups, the family came in contact with Jules-Gonin Eye Hospital in Lausanne, Switzerland, which is a center of excellence in care for retinoblastoma.  The hospital agreed to take Danylo in for urgent treatment, which started on September 24, 2020. 

Danylo's family pulled all of their resources together and with fundraising efforts they managed to deposit the amount needed to start treatment. Treatment has been successful so far, which gives them hope for beating cancer and retaining Danylo's eyesight.   However, after multiple chemotherapy sessions and doctors' visits, the deposit has been depleted and now the family is looking for financial assistance to continue Danylo's treatment. 

Thanks to your support, we were able to issue a grant to Danylo's family and get them closer to beating cancer.   Did you know that next week, any donation of up to $50 will receive a 50% match from GlobalGiving?  That's a great way to help kids like Danylo who have to travel abroad to access the right treatment.  We hope you join us next week, from Monday, March 8th through Friday, March 12th and show your support for our cause!

Thank you so much!

Stay safe!

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Rostislav
Rostislav

2020 has been such a turbulent year that it's safe to say that all of us are feeling its effects to some degree.  The uncertainty over our future, fears of catching a deadly virus, worries about our loved ones and rapidly changing circumstances have been our companions for many months.  And so much unknown still lies ahead.

These emotions are not unlike experiences that families of children with cancer go through from the moment of diagnosis.  It's a heavy burden of emotional, physical and financial turmoil, and to cope with it the families have to mobilize all of their resources and reach out to wide and far communities.  Often, in search of appropriate treatment their journey takes them abroad.  Rostislav's family had to follow just such a path. 

Rostislav is now 3 years old. He's been growing up healthy and happy and enjoyed going to daycare. A month ago he suddenly began complaining of stomachaches, and his parents took him to see a doctor. A large abdominal tumor was discovered by Rostislav’s local doctors in the city of Khmelnitskyi, in western Ukraine, and he was referred for additional evaluation in Kyiv. There Rostislav was diagnosed with aggressive childhood cancer, neuroblastoma. Unfortunately, the primary tumor metastasized to Rostislav’s bone marrow by that time. Neuroblastoma’s treatment is highly complex and challenging and requires several approaches that have to precisely timed – surgery, chemotherapy, radiation and immunotherapy. Immunotherapy, which cuts the risk of relapse by half, is only available abroad, and Rostislav’s parents took him to Spain to access this treatment. While they were able to raise money for initial deposit, they will need to raise much more to be able to complete treatment.

Our project helps to support families like Rostislav's.  We believe that every child regardless of their place of birth deserves access to the best care available for cancer.  We search the world for the proper opportunities or support patients that have already found treatment on their own but need financial aid. Thank you so much for allowing us to continue our work!

We are truly grateful for your help!  Hope the upcoming holiday season will bring you joy and happiness.

Stay safe!

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Alexei
Alexei

Alexei is 3 years old. He is from Ryazan, Russia. When he was just 2 years old, his young parents were shocked to discover that he was diagnosed with neuroblastoma, high risk. This is a type of aggressive solid tumor that arises primarily in children. After undergoing standard therapy Alexei achieved good partial response and needed to continue treatment with immunotherapy to ensure his remission lasts.  Unfortunately, this therapy is not yet registered in Russia. By the time the medication was purchased abroad and brought to Russia, Alexei had a massive relapse in his brain.

By a miracle, he survived surgery. In April Alexei was supposed to start chemotherapy in Moscow, but due to coronavirus pandemic, it was postponed. Then Alexei caught an infection, and his hospitalization was moved to a later date once again. As it is very dangerous for Alexei to delay treatment, his family urgently sought treatment abroad.

Sant Joan de Deu hospital in Barcelona agreed to accept Alexei for recently approved immunotherapy with a partial prepayment, and the family immediately flew out. However, they need help with fundraising to ensure Alexei can complete his treatment and have the best chance to beating cancer.  This is where your help comes in - we have already transferred 1000 euros for Alexei's treatment.  In addition, several other families with chlidren treated in Barcelona have since applied and received our help.  This would not have been possible without our supporters, and we are deeply grateful.  Thank you so much for keeping the kids like Alexei in your heart and mind even during these trying times!

Stay safe!

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Organization Information

Advita Fund USA

Location: Houston, Texas - USA
Website:
Facebook: Facebook Page
Twitter: @advitausa
Project Leader:
Marina Ouano
President
Houston, Texas United States
$64,697 raised of $80,000 goal
 
850 donations
$15,303 to go
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