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 Health  Russia Project #9795

Help Children with Cancer Access Treatment!

by Advita Fund USA
Help Children with Cancer Access Treatment!
David with his mom
David with his mom

Thank you for your support for our project!  We are continuing to recruit new donors, as well as retain our recurring donors whose support allows us to offer financial aid throughout the year.  Today we are happy to report that since our February email, in which we told Andrei's story, we were able to support two more young boys with cancer.

One of them is a 2-year-old David. In December 2016, David's mom felt a mass on his right leg when putting him to bed. The family took David to see a doctor right away. The diagnosis of cancer - embryonal rhabdomyosarcoma - was a huge shock. Adding to it was the doctors' conviction that David needed an amputation of his leg. It was a bitter pill to swallow, and David's family decided to get a second opinion abroad. They are currently in Israel, where David started treatment that may save his leg. 

Four-year-old Yaroslav was diagnosed with acute lymphoblastic leukemia in May 2016, when he suddenly became drained of energy, unable to play and run, and developed fever and rash.  Unfortunately, six months of chemotherapy did not produce desired results, and Yaroslav needed to undergo bone marrow transplant from an unrelated donor to have a chance to live. As pediatric transplants are not done in his native Ukraine, Yaroslav's family took him for treatment to Turkey. In April, Yaroslav received bone marrow transplant from a donor and is now recovering. 

Thanks to your kindness, we were able to support these families at the time when they needed help the most.  We are most sincerely grateful and wishing you a great summer! 

Yaroslav
Yaroslav
Andrei
Andrei

Our project has reached a few milestones since being started 5 years ago: we have received over 500 donations and raised over $40,000.  Last year alone, this project supported 12 children with cancer, and we shared some of their stories with you.  Your donations helped the families pay medical bills and cover other treatment-related expenses.  Importantly, they relieved not only financial burden of cancer, but also emotional drain of stress and anxiety.  Many families express their gratitude for support - regardless of amount - as it gives them a boost of confidence and hope for the victory in their difficult battles.

Partcularly vulnerable are the families of children that have been dealing with cancer for several years.  For example, Andrei is a teen from Kiev, Ukraine.  He is now 13 years old. Andrei suffers from a rare type of bone cancer. The first symptoms appeared in July 2015, but the doctors could not determined a correct diagnosis at the time.  By January 2016, the pain intensified.  Andrei had more evaluations and tests, sleepless nights, and wrong diagnoses.  Finally, in April 2016, an accurate diagnosis was determined: Ewing's sarcoma of the left humerus.  At that time, a pathological fracture occurred at biopsy site and had to be fixed with a metal plate. Then chemotherapy was started. After the third cycle of chemotherapy, Andrei and his mother flew to Tel Aviv, Israel for further treatment. There they hope to have a better chance for success, as the doctors are more experienced and better treatments are available. 

Andrei still has many months of chemotherapy ahead of him, followed by multiple sessions of low-dose radiation. However, continuation of therapy is at risk, as the family struggles to raise money to complete treatment.  Our project is aimed to support young cancer patients like Andrei, who can't get adequate help in their home countries and are unable to afford the cost of treatment abroad. 

As we continue to receive requests for help, we have decided to increase our project goal to $80,000 and extend our program services.   We hope we can continue to count on your generosity and kindness to support this project.  Thank you!

Narek
Narek

A week from now, on November 29th #GivingTuesday will celebrate charitable giving during holiday season.  Many stories from causes, volunteers, donors and beneficiaries will be heard in an effort to give voice to those of us who are less fortunate and to lessen their burden. 

This is our project's story.  Narek is an Armenian boy who needs help to afford chemotherapy for brain tumor.
Here is a letter from his mom:

Good day,
I am writing in hopes to find your support for the treatment of my son Narek.
Narek is now 11 years old. He was born perfectly healthy and was enjoying his childhood like all other children. He began practicing chess at the early age of 4 and attending chess academy at the age of 6 and soon ensured 3rd category qualification. At school he was an excellent pupil with excellent marks. He especially adored math and Armenian studies. Narek was distinguished by his exemplary conduct and knowledge.
Narek was diagnosed with IV category brain tumor (meduloblastoma) in November 27, 2015. Forecasts of doctors were not encouraging and an immediate surgery was necessary to save the child's life. We were recommended to perform the surgery in Germany or Israel due to its complicated nature. A number of clinics refused to perform this kind surgery, but we managed to find a German clinic willing to perform it.
We were able to find the preliminary required sum amounting to 23000 Euros with great efforts and traveled to Germany. The surgery went well and the main body of the tumor was dissected. Doctors recommended passing intensive courses of chemotherapy and radiotherapy due to metastases found at inoperable sections of the brain.
We were able to commence the chemotherapy by the support of our friends and donations amounting to 14000 Euros, but unfortunately it was not enough to complete the course. We then referred to several German charitable organizations which kindly provided us with 33000 Euros to continue Narek's treatment. Narek needed platelet and blood transfusions every time after intensive chemotherapy sessions. After two courses of chemotherapy the results came back better than expected and metastases reduced by over 50%. We were sent to Cologne Clinic to pass radiotherapy course.
A 45-day treatment gave excellent results reducing metastases by 50%, but there were still some small formations left which the doctors promised to treat by yet another course of chemotherapy costing 42000 Euros. The Clinic refuses continuing the treatment without the due sum paid while time works against Narek and any delay can bring to the re-occurrence of the condition. The doctors say my son will not get the chance of second treatment if we lose this one. Currently I am in a desperate situation. The 10 months of suffering and struggle of my son may vanish because of that sum. Narek wasn't able to speak for about 8 months after the surgery. He is still confined to a wheelchair, but he is a strong boy and you could tell by the look in his eyes that he struggles for his life each and every moment. Please, help Narek overcome this last ordeal. He needs this support more than ever.
We have applied to several funds, but got no response. I am not able to look into my son's eyes when he asks about when he is to start the next stage of the treatment and return to his homeland to his friends and relatives whom he misses tremendously.
Narek`s mother, Lilit

If you would like to help Narek's family, we will be very grateful for your support on any day of the week, but especially during #GivingTuesday!  Thanks to Bill & Melinda Gates Foundation, 50% match to your donation (up to $1,000) will be made during that day while funds last.  So save the date - November 29th - and join us in our celebration of Narek and other brave kids and families!  Thank you so much!

Uliana
Uliana

Last time, we told you about Adelya, a 12-year old from Russia who traveled to Houston as a last chance to save her life.  We are happy to report that Adelya was able to achieve remission, and although she remains in a fragile state, she can now be considered a candidate for a bone marrow transplant from a donor.  We are very hopeful that with the help of her family, friends, donors, and supporters Adelya will win this battle!

Another young patient who needs bone marrow transplant is a four-year old Uliana from Ukraine.  Uliana has always been a very healthy girl. Unfortunately, this summer her happy childhood has been interrupted by a sudden onset of leukemia. Uliana spent several months receiving treatment at her home town, but then her family had to take her to Italy for high-dose chemotherapy and bone marrow transplant. This is a risky procedure, and transplantations are not available for children with leukemia in Ukraine. Uliana's 9-year old brother will be her donor. The family raised most of the required amount of 65,000 euros. However, they still need to raise 20,000 euros more to proceed to transplantation. Please consider supporting Uliana and children like her! 

A convenient way to show your support is to sign up for recurring donations that will be made automatically, every month, for as long as you would like.  Thanks again for your incredible help and kindness!

Adelya
Adelya

Recently, we met a new patient here in Houston.  Adelya came here from Ulyanovsk in Russia.  She is 12 year old, but she looks much younger. Four years ago, Adelya was diagnosed with high-risk leukemia. She was hospitalized at Blokhin Institute, the leading cancer hospital in Moscow, Russia. After a year of treatment, she was discharged in a stable remission. Unfortunately, within a year, she was diagnosed with secondary leukemia that required more therapy and bone marrow transplantation. In 2015, Adelya had a relapse. After additional treatment she went into remission again, but it was very short, and the test results in February 2016 confirmed a second relapse of acute myeloid leukemia. This time, Adelya was not offered any further treatment.

Adelya's family began looking for the hospitals abroad that may be able to help her. They came across MD Anderson Cancer Center in Houston that agreed to accept Adelya. In April Adelya arrived to Texas, and she was hospitalized immeediately.  She will have a long and difficult treatment ahead of her and the family needs our support.  Here is what her mom Zulfia had to say: "I admire Adelya's maturity, wisdom and willingness to fight. For the last 4 years she has spent most of the time in the hospitals and clinics, not having an ordinary life of a child of her age. We believe that all the good things are ahead of us and we will find the way to beat cancer, so she can enjoy the future."  

I hope you can join us tomorrow, June 15th, and donate to help Adelya and other little patients like her who had to face cancer so early in their lives.  You can donate starting at 8 am CDT (16:00 Moscow time) and receive a bonus of 50% (on donations of $1,000 or less).  Thanks again for your generous support!

 

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Organization Information

Advita Fund USA

Location: Houston, Texas - USA
Website:
Facebook: Facebook Page
Twitter: @advitausa
Project Leader:
Marina Ouano
President
Houston, Texas United States
* This project is competing for bonus prizes
through the Year End Campaign 2019. Terms and conditions apply.

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