Support Sickle Cell Anemia Patient in Maharashtra

Maharashtra Arogya Mandal’s

Sickle Cell Project

Report on - Sickle Cell Activities –

September October & November 2012

Sickle Cell Camp in September- October 2012

Maharashtra Arogya Mandal (MAM) conducted free sickle cell health check up camp from 29^th September to 1^st October 2012. During the Pune to Dhadgaon journey, we conducted medical check up and medicine distribution for our 6 old diagnosed sickle cell patients at Dhule, Maharashtra.

On Sunday 30^th September 2012, 364 old diagnosed sickle cell patients were clinically examined and were given free medications. Also screening of new 126 tribal individuals was done of  which 53 were diagnosed as carriers and 40 patients were identified as sufferers. Advice and counseling regarding the dietary and behavioral regime was given to both old and new patients. The carriers were counseled , emphasis was given on pre/ post marital guidance.  The 33 individuals were diagnosed as normal (with out sickle cell) were also guided for this social problem. 

All the individuals were from different tribal parts of Nandurbar district and from the neighboring state of Maharashtra viz. Gujarat and Madhya Pradesh mostly from low socio economic class.

 On Monday1st October 260 old patients had been given medications and 71 new individuals were screened for sickle cell disease. Newly screened 21 patients were diagnosed as sufferers and 32 were diagnosed as carriers and 18 individuals as normal.

In this camp total 61 sickle cell sufferers were detected which is a highest record in our sickle cell camps. 

Our social worker, supporter and sickle cell patient Mr. Manoj Pawara was honored as a best social worker by North Maharashtra University for his exemplary social work in remote and tribal area. For this honor sickle cell team felicitated Mr. Manoj Pawara on this occasion Member of Bharatiya Kushtha Roga Niwarak Sangh Prof. R.S.Jog, Mr. Dehadrai and Principal of the S.V.Thakar College Mr. Vibandhik and Librarian Mr. Patil were present.

During the camp Mr. Vinayak Sable and Mr. Patil workers of Anti Superstition Movement (Andhashrdha Nirmulan Samiti) visited our Sickle Cell Community control centre (Sickle Cell Dawakhana)

Summary of September- October 2012 Sickle cell Camp   

Maharashtra Arogya Mandal (MAM) conducted free sickle cell health check up camp from 24^th to 26 November 2012. During the Pune to Dhadgaon journey we conducted medical check up and medicine distribution for our 4 old diagnosed sickle cell patients at Dhule, Maharashtra.

On Sunday 25^th November 2012, 240 old diagnosed sickle cell patients were clinically examined and were given free medications. Also screening of new 75 tribal individuals was done among which 42 were diagnosed as carriers and 15 patients were identified as sufferers. Advice and counseling regarding the dietary and behavioral regime was given to both old and new patients. The carriers counseled, emphasis was given on pre/ post marital guidance (Counseling).  The 18 individuals were diagnosed as normal (with out sickle cell) were also guided for this social problem. 

All the individuals were from different tribal parts of Nandurbar district and from the neighboring state of Maharashtra viz. Gujarat and Madhya Pradesh mostly from low socio economic class.

 On Monday 26^th November 2012 298 old patients had been given medications and 43 new individuals were screened for sickle cell disease. Newly screened 8 patients were diagnosed as sufferers and 25 were diagnosed as carriers and 10 individuals as normal.

Along with sickle cell, under-nutrition is also observed sickle cell patients particularly the small children. During this camp we distributed nutritious laddos (made from Ragi, Ghee jaggery and other ingredients etc.) to sickle cell patients.

In winter if sickle cell patients are exposed to severe cold climate the joint pains are aggravated. To prevent this we distributed Sweaters, Cloths and warm accessories to the sickle cell patients.  The nutritious ladoos and cloths were donated by individual donors for this noble cause.

• GLobal giving sept oct nov 2012 report. (PDF)
  

Maharashtra Arogya Mandal’s

Sickle Cell Project

Report on - Sickle Cell Activities - May, June July 2012

May 2012

Maharashtra Arogya Mandal (MAM) conducted free sickle cell health check up camp from 26^th to 28^th May 2012. During the Pune to Dhadgaon journey we had medicine distribution for our old diagnosed sickle cell patients at Dhule, Maharashtra.

On Sunday 27^th May 2012, 159 old diagnosed sickle cell patients were clinically examined and were given free medications. Also screening of new 52 tribal individuals was done among which 22 were diagnosed as carriers and 16 patients were identified as sufferers. Advice and counseling regarding the dietary and behavioral regime was given to both old and new patients. The carriers were provided with counseling, emphasis was given on pre/ post marital guidance.  The 14 individuals were diagnosed as normal which were also guided for this social problem. 

All the individuals were from different tribal parts of Nandurbar district and from the neighboring state of Maharashtra viz. Gujarat and Madhya Pradesh mostly from low socio economic class.

 On Monday 28^th May 2012 similarly 269 old patients had been given medications and 41 new individuals were screened for sickle cell disease. Newly screened 13 patients were diagnosed as sufferers and 18 were diagnosed as carriers and 10 individuals as normal. During this camp it was observed that oral re-hydration solution along with the possible treatments helps in decreasing the pain during the sickle cell crisis.

On Monday 28^th May 2012 District Civil Surgeon of Nandurbar visited our Sickle Cell Community Control Centre (Sickle Cell Dawakhana) and requested our Head of Sickle Cell Department Prof. Dr.S.L.Kate to guide the Medical and Paramedical staff regarding sickle cell anemia and its diagnosis.

On Tuesday 29^th May 2012 our sickle cell team visited Civil Hospital (District Hospital). Prof. Dr.S.L.Kate had a discussion with the team of Doctors and Laboratory technicians. He also guided them regarding the laboratory diagnosis methods.

June 2012

Reference

http://www.unesco.org/new/en/unesco/events/all-events/?tx_browser_pi1%5BshowUid%5D=4087&cHash=1958bcc3eb

UNESCO celebrates 19^thJune as Sickle Cell Day.
Sickle Cell Disease (SCD) is the most frequent genetic disease worldwide. Maharashtra Arogya Mandal’s (MAM) Sickle cell Department also celebrated the World Sickle Cell Day on 19^th June 2012.

On this occasion an informative lecture was given to the MAM staff members. Sickle cell Department Head Prof. Dr.S.L.Kate delivered an informative lecture on this occasion. The teachers from Sumatibhai Shah Ayurved College, Staff of Sane Guruji Arogya Kendra and MAM, Nursing Institute, Sickle Cell patients and their relatives were present on this occasion. Parents of sickle cell patients shared their experiences.

During 19^th to 23^rd June 2012 Maharashtra Arogya Mandal Sickle cell Department has conducted free sickle cell diagnostic camp. Many patients took the benefit of sickle cell diagnostic camp. 

July 2012

Maharashtra Arogya Mandal (MAM) conducted free sickle cell health check up camp from 28th to 30^th July 2012 at Dhadgaon Dist- Nandurbar. During the journey from Pune- Dhadgaon we had medicine distribution and medical check up of our 4 old diagnosed sickle cell patients at Dhule, Maharashtra.

On Sunday 29th July 2012, 255 old diagnosed sickle cell patients were clinically examined and were given free medications.

Also screening of new 114 tribal individuals was done among which were 51 diagnosed as carriers and 37 patients were identified as sufferers.

Advice and counseling regarding the dietary and behavioral regime was given to both old and new patients.

The carriers were provided with counseling, emphasis was given on premarital guidance specifically to unmarried individuals.  The 26 individuals were diagnosed as normal which were also guided for this social problem. 

 On Monday 30^th July 2012 similarly 262 old patients had been under gone clinical examination and were provided free medications.57 new individuals were screened for sickle cell disease. In new screened 12 patients were diagnosed as sufferers and 27 were diagnosed as carriers and 17 individuals as normal.

All the individuals were from different tribal parts of Nandurbar district and from the neighboring state of Maharashtra viz. Gujarat and Madhya Pradesh mostly from low socio economic class.

Anil Gujar

Secretary

• Project Report (PDF)
  

 MAM conducted free sickle cell health check up camp in from 31^st of March 2012 to 3^rd April 2012.During the journey we had medicine distribution for our 5 old diagnosed sickle cell patients at Dhule, Maharashtra.

 On Sunday 1^st April 2012, 213 old diagnosed sickle cell patients were clinically examined and were given free medications. Also screening of new 42 tribal individuals was done among which 21 were diagnosed as carriers and 8 patients were identified as sufferers. Advice and counseling regarding the dietary and behavioral regime was also given both old and new patients. The carriers were provided with counseling emphasis was given on premarital guidance specifically to unmarried individuals.  The 13 individuals were diagnosed as normal which were also guided for this social problem. All the individuals were from different tribal parts of Nandurbar district and from the neighboring state of Maharashtra viz. Gujarat and Madhya Pradesh mostly from low socio economic class.

 On Monday 2^nd April 2012 similarly 237 old patients had been given medications and 47 new individuals were screened for sickle cell disease. Newly screened 7 patients were diagnosed as sufferers and 16 were diagnosed as carriers and 24 individuals as normal.

Premarital counseling, guidance regarding the behavioral and dietary regime, medication was given to the patients.

 Counseling was given to carrier patients.

The Normal tribal individuals (24) were also guided regarding the preventive and social aspect of this disease

 On 1^st and 2^nd April 2012 internationally renowned Sickle Cell Scientist Dr. Graham Serjeant from Jamaica (West Indies) visited the project site. He also guided the team members regarding the clinical manifestation of Sickle Cell and its update management procedures. Along with him sickle cell expert and Child Specialist from Gujarat Dr. Jyotish Patel also examined sickle cell patients.

On this occasion a ceremony was held at Dhadgaon Dist. Nandurbar. Maharashtra in which the website of the project was inaugurated www.sicklecell-mam.org by the auspicious hands of Dr. Graham Serjeant. Also on this occasion the identity cards issued by Government of Maharashtra for the Sickle cell patients were distributed by propitious hands of Dr. Jyotish Patel. MAM Secretary Mr. Anil Gujar, Mr. Arun Gujar Trustee MAM, Sickle Cell Project In charge Dr.S.L.Kate, Dr. R.Z. Patel (Pathologist),  Dr. B.D. Patel (Surgeon), Mr. Sampat Ramteke (President:- Sickle Cell Society of India), Ex. MLA Rameshbhai Pawara, Prof. Hari Yeola, Manoj Pawara were the dignitaries present at this occasion. Institutional team members Dr.Prashant Dalvi, Dr.Girish Kulkarni, Dr.Yogesh S.Prabhune, Dr. Rajendra Patil were also present on this occasion

Please see the attached report for pictures.

Total patients attended during this camp :  old patients 455 + newly diagnosed  15 = 470

• Project Report Mar_Apr_2012 (DOC)

Details of Camps conducted in December 2011.

 MAM has conducted free sickle cell health check up camp in 24^th December 2011 from of 26^th December 2011. During the journey we had a check up of 4 old diagnosed sickle cell patients at Dhule Highway. On Sunday 25th December 2011 293 old diagnosed sickle cell patients were clinically examined and were given free medications. Also screening of new 83 patients was done among which 41 were diagnosed as carriers and 28 patients were identified as sufferers. Advice and counseling regarding the dietary and behavioral regime was also given both old and new patients. The carriers were provided with counseling emphasis was given on premarital guidance specifically to unmarried individuals.  14 individuals were diagnosed as normal which were also guided for this social problem. All the individuals were from different tribal parts of Nandurbar district mostly from low socioeconomic class.

On 26^th Dec. 2011 similarly 251 old patients had undergone medical check up and 47 new patients were screened for sickle cell disease. In Newly screened patients 9 patients were diagnosed as sufferers and 26 were diagnosed as carriers. 12 individuals were diagnosed as normal. Premarital counseling, guidance regarding the behavioral and dietary regime was given to the patients. Counseling was given to carrier patients. The Normal people were also guided regarding the prevention of this disease. In this camp one sufferer patient of CTEV (congenital talipes equinovarus) commonly known as clubbed foot was observed.

Looking at the intense cold climate in the project area during this camp the cloths and 50 sweaters were distributed free to needy sickle cell patients.   

• SIckle Cell Project Report-January-2012 (PDF)
  

MAM conducted free sickle cell health check up camps recently in the months of August & October 2011. During the August Camp 682 total patients were screened of which 544 were old patients and 138 new patients. Of the new patients, 58 were diagnosed as sufferers and 41 were diagnosed as carriers. During the October Camp 573 total patients were screened of which 444 were old patients and 129 new patients. Of the new patients, 41 were diagnosed as sufferers and 54 were diagnosed as carriers.

Premarital counselling, guidance regarding the behavioral and dietary regime was given to the patients. Counselling was given to carrier patients. The Normal people were also guided regarding the prevention of this disease 

Appeal for individual donors:

• In the Sickle Cell disease the iron tonics are not indicated as they may result iron overload. In this situation we have to emphasis on nutritious natural food ingredients which are iron rich. We also require support for nutritional supplementation as the tribal are very poor and cannot afford nutritious food supplements.
• Behavioural regime plays an important role as if the patients are provided with warm accessories, blankets, umbrellas, Sweaters, Hot water bags etc. They can be get protection in extreme cold environment which will avoid the Sickle cell crisis (Unbearable Joint pains). We require support from you for such Medico Social cause.
• Medicines and the expenses for approx. 500 patients in each camp are borne by MAM we require support from you to sponsor a medical health check up camp.
• We also plan to make a partial shelter in front of our Sickle Cell Dawakhana we require a sponsor for this it is a need because it will give shade and protection during summer and rainy seasons.
• Electricity cut off is common in rural and tribal area. As we work in tribal area we plan to set a solar panel which will be helpful in summer and winter (7-8 months in a year)  to generate electricity as the blood test carried out for sickle cell diagnosis require electricity.  Donors are requested to help for this social cause.  

• Project Report_Aug_and_Oct_2011 (PDF)