Lifesaving Global Rare Disease Patient Registry

by Timothy Syndrome Alliance (TSA)
Lifesaving Global Rare Disease Patient Registry
Lifesaving Global Rare Disease Patient Registry
Lifesaving Global Rare Disease Patient Registry
Lifesaving Global Rare Disease Patient Registry
Lifesaving Global Rare Disease Patient Registry
Lifesaving Global Rare Disease Patient Registry
Lifesaving Global Rare Disease Patient Registry
Lifesaving Global Rare Disease Patient Registry
Lifesaving Global Rare Disease Patient Registry
Lifesaving Global Rare Disease Patient Registry
Lifesaving Global Rare Disease Patient Registry
Lifesaving Global Rare Disease Patient Registry
Lifesaving Global Rare Disease Patient Registry
Lifesaving Global Rare Disease Patient Registry
Lifesaving Global Rare Disease Patient Registry
Lifesaving Global Rare Disease Patient Registry
Lifesaving Global Rare Disease Patient Registry
Lifesaving Global Rare Disease Patient Registry
Lifesaving Global Rare Disease Patient Registry
Lifesaving Global Rare Disease Patient Registry
Lifesaving Global Rare Disease Patient Registry
Lifesaving Global Rare Disease Patient Registry
Lifesaving Global Rare Disease Patient Registry
Lifesaving Global Rare Disease Patient Registry
Lifesaving Global Rare Disease Patient Registry
Lifesaving Global Rare Disease Patient Registry

Project Report | May 17, 2025
Driven by purpose: How you helped in 2024

By Sophie Muir | Chair of Trustees

We’re proud to share with you our Annual Report for the 2024 financial year. This report is not just a regulatory requirement - it’s a transparent account of how funds were raised and, importantly, how they were spent to advance our mission.

Every donation, whether from a trust, foundation, or individual, was given with the belief that it should be used - not stored - to drive impact. We’re committed to ensuring every penny goes where it’s needed most, and this year’s achievements show how far we’ve come with careful, purposeful spending.

We invite you to read the report to see the difference our collective efforts have made, and how your support - financial or otherwise - continues to help us grow, advocate, and make meaningful change.

The report has been submitted to the Charity Commission and is available on both their site and ours.

Our Impact Roadmap summarises our progress over time.

Thank you for your continued support.


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Organization Information

Timothy Syndrome Alliance (TSA)

Location: Gloucestershire - United Kingdom
Website:
Facebook: Facebook Page
Project Leader:
Sophie Muir
Gloucestershire , United Kingdom

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