Timothy Syndrome Alliance (TSA)

Org #85511

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2019

year founded

$2,704

raised on GlobalGiving

1

year fundraising

0

projects funded

* Amounts in US Dollars

Mission

To improve the diagnosis, treatment and care of individuals worldwide with CACNA1C-related disorders, including Timothy Syndrome and LongQT8, and to support the families of those diagnosed.

Projects (1)

United Kingdom / Physical Health

Lifesaving Global Rare Disease Patient Registry

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Project Leaders

Sophie Muir

Organization Information

https://www.timothysyndrome.org

Facebook Page

Twitter Profile

8 Butt Street
Minchinhampton
Gloucestershire, GL6 9JP
United Kingdom

07941 881340

Organization Information

https://www.timothysyndrome.org

Facebook Page

Twitter Profile

8 Butt Street
Minchinhampton
Gloucestershire, GL6 9JP
United Kingdom

07941 881340

Project Reports

Each of GlobalGiving’s nonprofit partners is required to send quarterly donor reports detailing the impact of their work. Here are some of their recent updates:

Sep 28, 2023

Post CACNA1C Conference update

Great to be able to share with you the latest updates on the global CACNA1C Community Registryand our work at Timothy Syndrome Alliance (TSA). Our ‘Connect CACNA1C Global Network...

Jun 2, 2023

Connect CACNA1C Global Network Conference

We are excited to share with you news of our online conference on 23 June 2023, 3pm - 7.30pm BST Our virtual language-accessible ‘Connect CACNA1C Global Network Conference’, kindly hosted...

Feb 6, 2023

Raising awareness of CACNA1C and the Registry

The CACNA1C Community Registry continues to welcome and receive participants worldwide with identified CACNA1C gene changes. People are unique genetically and even though we are all the same gene...