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Timothy Syndrome Alliance (TSA)

Org #85511
Vetted since 2021 Staff Favorite
2019
year founded
$7,804
raised on GlobalGiving
2
years fundraising
0
projects funded
* Amounts in US Dollars

Mission

To improve the diagnosis, treatment and care of individuals worldwide with CACNA1C-related disorders, including Timothy Syndrome and LongQT8, and to support the families of those diagnosed.

Projects (1)

Project Leaders
Sophie Muir
Sophie Muir
Organization Information
8 Butt Street
Minchinhampton
Gloucestershire, GL6 9JP
United Kingdom
07941 881340
Organization Information
8 Butt Street
Minchinhampton
Gloucestershire, GL6 9JP
United Kingdom
07941 881340

Project Reports

Each of GlobalGiving’s nonprofit partners is required to send quarterly donor reports detailing the impact of their work. Here are some of their recent updates:

Did the 'For The Love of CACNA1C' campaign work?

By Sophie Muir | Chair of Trustees

In our last report, I shared how collaborating as a team can significantly impact rare diseases, whether through advocacy and awareness, patient-centred care, or research and innovation. When it comes... Read the full report ›

Teamwork makes the dream work

By Sophie Muir | Chair of Trustees

Teamwork makes the dream work: The importance of Working Together This phrase is about how working as a team can lead to better outcomes than a single person working independently. It is very... Read the full report ›

Post CACNA1C Conference update

By Sophie Muir | Chair of Trustees

Great to be able to share with you the latest updates on the global CACNA1C Community Registryand our work at Timothy Syndrome Alliance (TSA). Our ‘Connect CACNA1C Global Network... Read the full report ›
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