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Physical Health United Kingdom Project #56113

Lifesaving Global Rare Disease Patient Registry

by Timothy Syndrome Alliance (TSA)

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Lifesaving Global Rare Disease Patient Registry

Organization Information

Timothy Syndrome Alliance (TSA)

Location: Gloucestershire - United Kingdom
Website: https://www.timothysyndrome.org
Facebook: Facebook Page
Twitter: @tsa_charity

Timothy Syndrome Alliance (TSA)

Project Leader:
Sophie Muir
Gloucestershire , United Kingdom

$2,680 raised of $25,000 goal

5 donations

$22,320 to go

Donate Now

will connect geographically dispersed patients around the world through the registry

will help us maintain this critical foundation for research of CACNA1C-related disorders including Timothy Syndrome and LongQT8

will support the registry to encourage research to improve outcomes and quality of life

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