By Sophie Muir | Chair of Trustees
We are excited to share with you news of our online conference on 23 June 2023, 3pm - 7.30pm BST
Our virtual language-accessible ‘Connect CACNA1C Global Network Conference’, kindly hosted by Cardiff University’s Neuroscience & Mental Health Innovation Institute serves as an opportunity for CACNA1C individuals, families, caregivers, researchers, scientists, healthcare professionals, advocates, and supporters to come together. By collectively sharing current knowledge, and ongoing studies, exchanging ideas, and fostering collaborations we can help shape the future of CACNA1C research, improved diagnosis, and care. Our community is worldwide so by embracing this digital platform and using an AI language translation service, we ensure that everyone, regardless of their geographic location, has the opportunity to join.
Our programme features presentations by members of our Scientific Advisory Board and guest speakers, all experts in their respective fields. In addition, there will be two breakout discussion rooms and a dedicated Q&A session where speakers will be readily available to address questions.
Our first talk of the conference will be from myself and Joshua Henderson and it's all about the registry. Joshua’s expertise is in building relationships and fostering collaboration across diverse groups of stakeholders, with a specific focus on supporting underrepresented populations and advancing the development of treatments for underserved diseases. He is currently the Head of Rare Diseases at Pulse Infoframe, responsible for partnering with patient advocacy groups and biopharma companies globally to streamline fit-for-purpose, regulatory-grade real-world data. The talk titled ‘The Impact of CACNA1C Real-World Data: CCR Registry Update and Vision’ will summarise some key findings from the registry.
I have attached the conference programme in which you will find the full agenda, bios, time zones to help you plan and instructions on how to use Wordly AI Translation. To register to attend just click on the link on the bottom of the front page of the programme.
Hope to see you there.
All the best
Sophie
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