Disability Rights Guatemala Project #23705

Early Intervention for Children in Guatemala

by Asociacion de Padres y Amigos de Personas con Discapacidad de Santiago Atitlan

Project Report | Feb 7, 2017
One of our progress, Edson.

By Francisco Sojuel | Director

With pleasure we share with you the results of our program during the year 2016.

At the end we managed to attend 37 children and 30 girls in the program that they come from different communities of Santiago Atitlán, which is a community with 98% of the indigenous population; to provide good care our teachers must speak the local Mayan language.

All the children received at least one visit a week from some of the three teachers. Each child has a work plan developed by a multidisciplinary team, teachers teach the parents to carry out activities to comply with the plan.

This plan involves other professionals according to the needs of each child. One case is that of Edson Anthony who was referred by a hospital to be able to follow up for presenting Nephrotic Syndrome and Hypertrophic Cardiomyopathy.

"My development was normal, I talked, I walked, but one day my parents because of family problems, they could not continue my treatment because of the cost of it. One day I became seriously ill so I was transferred to one of the largest hospitals in the country. I was hospitalized for more than two months and there I was diagnosed with Cerebral Atrophy because of Arterial Hypertension, and Convulsive Syndrome.

My parents take me to my medical checkup, every three months I travel to the city for my checkups with the cardiologist, neurologist, endocrinologist, and nephrologist, it is very tiring to be traveling, what I don't like is that sometimes I get blood tests because it hurts a lot.

My mom always takes me to my appointments, I attend physiotherapy once a week, I am also receiving psychomotricity and one of my teacher visits me once a week to my home.

I like to play with toys, listen to music and draw with bright colors. I am a very smiling and happy child with my parents and sisters. "

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Nov 15, 2016
Second report ADISA

By Francisco Sojuel | Director y Fundador ADISA

Diego

Early intervention for 50 children in Guatemala.

Our program in early stimulation continues growing; our coverage reaches to more communities.

Currently we are taking care of 27 boys and 36 girls under six years old. Once a week they receive visits in their homes where their parents receive orientation, in the last quarter from July to September this year, 684 visits have taken place, many of these visits happen in our facilities in order to receive therapies, such as physiotherapy among others.

All our children have an intervention plan that includes medical follow up which specialists from Guatemala City carry out most of the times.

We also work once a month with groups of parents where they share experiences, preoccupations and they also have fun, there is an organized group of parents with children with brain paralysis, Down syndrome and also other group that presents different disabilities, these group activities help a lot specially to the parents because they share experiences between themselves about how to support their children.

The story of Diego is an example of self-improvement, he is a naught and playful kid, and very curious. He was born with Down syndrome, when he was 4 months old his mother took him to ADISA for an evaluation, she was worried because he could not close his mouth properly and could not hold his neck. He begins the early stimulation program where he receives home visits, physical therapy and medical follow-up with a pediatrician that asked him for an echocardiogram. This year he travelled to the city for a medical check with the cardiologist who said that his heart works very well, his family is very happy for this.

This year he will turn 4 years old, he visits the pediatrician every month, he is in the health program and the early stimulation program, his family is helped with medicine when he gets sick, his teacher goes to his home to work with him, he receives therapy with a dog called Mo’os, he loves to feed him, pet him and hug him, Diego has become a lot better.

Thanks to your support we can improve the life quality of children with disability in ADISA.

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Aug 18, 2016
Keila's learning sessions

By Francisco Sojuel | Director

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