Disability Rights Guatemala Project #23705

Early Intervention for Children in Guatemala

by Asociacion de Padres y Amigos de Personas con Discapacidad de Santiago Atitlan

Project Report | Dec 28, 2021
Early Intervention for Children in Guatemala 4th Q

By Mauricio Mogollon | Development Officer

El año 2021 finaliza atendiendo a 10 niñas y 28 niños, con un total de 37 participantes en el programa. Este último mes se sumaron 3 niños, quienes tuvieron su primera evaluación y entrevista con los padres, se les dio la introducción de las actividades del programa y los objetivos del programa de Estimulación Temprana.

En este último trimestre se realizaron 137 terapias, de las cuales 46 fueron visitas domiciliarias y 91 fueron atendidas a Adisa. Durante este tiempo también se fueron realizando diferentes actividades, entre las más significativas para el programa de Estimulación Temprana fueron los talleres para padres, los dos temas más importantes fueron: Estimulación Temprana y Aceptación y Resiliencia.

El primer tema era necesario, ya que hay familias de recién llegados que solo sabían a grandes rasgos lo que es la estimulación temprana, ni habían tenido convivencia con el resto de familias, es decir, no conocían a otras familias que participaban en nuestra. programa, en este primer taller conocieron en profundidad cuál es el trabajo de la EO, los objetivos y sobre todo la importancia de la implicación de los padres.

The second topic was perhaps the most important, as previously said there are new families, it was necessary for us to know the experiences, obstacles and achievements that each family has had to live from the first contact with adisa or from the diagnosis of their son and daughter, since in Santiago Atitlan myths are followed that often blame the mother of the child. That is why it was important to talk about acceptance and resilience. It was satisfying to see the families who have been there for years, sharing their own experiences and how they have faced the various obstacles in life.

These workshops help parents to take responsibility and commitment to their sons and daughters, regarding the work that is done with children. For us, the therapies we provide, teamwork with families, are satisfactory, but above all, it is satisfactory when the family manages to empower itself and help more families in need, this not only helps resilience but also the good development of the boys and girls who have some deficiency.

FABIANA LIFE STORY

Fabiana was born in the 8^th month of gestation, where her birth was attended by a midwife. Several months went by, but, at the age of 6 months, Fabiana´s parents realized that certain facial features could indicate she was going through some type of “illness” so they reached the national hospital where a specialist determined that Fabiana suffered a condition called Treacher Collins syndrome. This syndrome affects facial structures primarily, and can also cause a psychomotor retardation.

After her parents found out about her diagnose, they reached ADISA for help. Since then, ADISA has followed up with Fabiana´s case and has also helped her parents with mental health support to help them get a better understanding about therapies that Fabiana would need to take for her to live her best life possible by developing abilities and skills according to her age.

Physical and early stimulation then start once a week with the accompaniment of her mother so that she can understand and let her know the process, the special cares, the most frequent obstacles and the best procedures to affront these last.

Los padres de Fabiana siempre han estado dispuestos a apoyar a su hijo. Siempre están presentes en las citas de pediatra y audiometristas técnicos. Además, los padres de Fabiana asisten y continúan el proceso con sus terapias, asisten a las reuniones y talleres familiares que organiza ADISA.

Ha sido un proceso largo pero reconfortante y su familia está muy agradecida por el apoyo que ADISA le ha brindado a Fabiana. Este 2021 cerramos el año con 20 meses de servicios de atención para Fabiana y ella está cerca de caminar sola sin ayuda.

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Aug 18, 2021
Early Intervention for Children in Guatemala 2nd R

By Mauricio Mogollon | Organizational Development officer

Adisagt earlyintervention Guatemala inclusion

During the second quarter of 2021, our early intervention program integrated a new children participant. About 40 children (14 girls and 26 boys) between 1 to 6 years old are working in pairs mode, involving their parents to see how the activity is carried out and learning how they can help their children at home. This program works very well when children and parents work in groups, because that stimulate the social interaction and contribute to increase their abilities, gives them meaningful learning and they feel more confident.

All the therapies have been developed with appropriate measures to prevent contagion of COVID 19 in our offices and home visits with families. ADISAs staff is prepared to disinfect all material to be used in each therapy and the families are helping whit measures of prevention as well. Before and after of every therapy all the materials are disinfected, our staff wash their hands very often, everyone is using mask (staff, children, parents…) during therapy and visits.

In June 2021, a new occupational therapist volunteer joined our team and currently, she is giving service whit some activities to increase independence of our participants, also she gives advices to parents and ADISAs team to develop activities whit clear objectives. Now she is helping our early intervention program working whit 7 children that requires specific and prioritized attention in occupational activities to live a better life.

PEDRITO life story

Pedrito was born on January 19, 2021, at the time of delivery, the doctor saw the absence of amniotic fluid, so the delivery became an emergency and Pedrito was born by cesarean section. At delivery, the doctor saw in Pedrito some physical characteristics, after the complete evaluation Pedrito was diagnosed whit Down’s Syndrome.

Pedrito’s family did not kwon about the meaning of that diagnosis, but they always wanted to support him. In April, some friends told Pedrito’s mother about ADISA and she came to ask about what she can do to help her son. Our therapist begun to work whit Pedrito and his family. Now the family feels more secure about the Pedrito’s future, all of them are very proactive and responsible whit all activities planned, always attending therapies and doing all the activities at home recommended by our therapist.

Currently Pedrito holds his head, his muscles are stronger, and now he can sit whit some support materials. Pedrito and his family are so excited about his evolving abilities and are very enthusiastic to continue whit the therapies.

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Apr 26, 2021
Early Intervention for Children in Guatemala Janua

By Mauricio Mogollon | Development Officer

Since last quarter of 2020 ADISA in it’s early intervention program started to work with it’s participants in groups modality. A specific prioritized group of 40 children (22 girls and 18 boys) were attended directly according with their conditions and special needs. The main objective were strenght their social relationship, and to strenght relations between mothers and their children.

In this new year 2021 during the fisrt quarter, two new groups of mothers and their children started working in ADISA. They are learning how to work with their children in home, they are also learning the objective of each therapy and exercises developed with their children. Therapist Johana is using a teaching and local materials and local equipment to teach all this activities.

ADISA with it’s early intervention program started coordination with a national program from education ministry CREI (Inclusive Education Resources Center). CREI is supporting our activities within their facilities to work with mother´s groups. One teacher and two volunteers from CREI are participating and learning developed activities with children and mothers in order to implement those activities in their program. CREI will support mothers groups with workshops in different topics with the main objective to strenght early childhood.

Children participating in our program are receiving a better services to improve their conditions. All this new strategies are aim to create sustainability in program activities.

During this new quarter we are glad to inform that 11 children were discharged from the program (7 girls and 4 boys) whom on regards wiht their assesments reached their skills and abilities according wiht their development scale. Besides of that, we are very excited to include a new 8 boys and 3 girls in our program.

ADISA continue with all measures to prevent contagion of COVID 19 in it’s facilities and home visits with families. All materials are been disinfected after each therapy. ADISA’s staff is prepared to disinfect all materials to be used in therapys and the families are also prepared and supporting staff with measures of prevention. Everyone is using mask, staff, children, families during therapys and visits.

With your support to our program ADISA have now new materials like sensory toys and other special materials to give a better service to children. During this quarter 196 therapies were delivered to 127 boys and 69 girls.

Life Story: Anita

We would like to share with all of you the Anita life. Anita was born in April 2016, actually now that we are writing about her, she’s in her birthday party number 5. Anita’s mother was infected of chinkunguya when she was in her third month of pregnancy. 15 days after Anita’s birth, her parents realized that Anita didn’t follow objects, persons or lights with her eyes. Anita’s parents attended to a doctor and they started with different tests….. the diagnosis… congenital microphthalgya, bilateral blindness.

Anita is now attending to ADISA participating in our early intervention and program and . Anita starts to developed her autonomy. Now, she walks alone in familiar places, she likes deep stimulations, repets all that she hear, her family is working a lot to learn on how to help and rase Anita. The family is learnign exercises and activities to implement with Anita in their home. The family is very grateful with ADISA and therapiest to support Anita. According with developed plan for Anita there are many other activities to implement with her to strength her abilities and skills so she can have a better life with autonomy. Therapiests Johana and Jenny are so excited to support and help Anita with her progress.

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