Do Just One Thing for Children's Palliative Care

by International Children's Palliative Care Network
Play Video
Do Just One Thing for Children's Palliative Care
Do Just One Thing for Children's Palliative Care
Do Just One Thing for Children's Palliative Care
Do Just One Thing for Children's Palliative Care
Do Just One Thing for Children's Palliative Care
Do Just One Thing for Children's Palliative Care
Do Just One Thing for Children's Palliative Care
Do Just One Thing for Children's Palliative Care
Do Just One Thing for Children's Palliative Care
Do Just One Thing for Children's Palliative Care
Do Just One Thing for Children's Palliative Care
Do Just One Thing for Children's Palliative Care
Do Just One Thing for Children's Palliative Care
Do Just One Thing for Children's Palliative Care
Do Just One Thing for Children's Palliative Care
Do Just One Thing for Children's Palliative Care
Do Just One Thing for Children's Palliative Care

We get it. It's really hard to think about children who die. And nobody wants to think of children dying in distress and in pain. If it is difficult for us to think about, just imagine how hard it is for the millions of children diagnosed with a life shortening illnesses, and for their families.

Most medical professionals go into the practice of medicine wanting to cure diseases and restore their patients to health, particularly those who care for children. Because children should have a long and healthy life to look forward to.

Fortunately, there are those who understand that for some children a shortened life may be inevitible, but there is still a great deal that can be done to ensure that their short lives are as good as possible. That they are not only given the medicines needed to control pain and other distressing symptoms, but that their social and spiritual needs are met, their hopes and fears are acknowledged and addressed and that their familes are supported. 

These are the compassionate and dedicated medical prossionals we work with and train. They know that while they may not be able to change the ultimate outcome of the illness in the future, they can affect the child's present. They want to learn about the very best kinds of pain and symptom control in children, about talking to children about what is important to them, what concerns them, as well as addressing the difficult topics that most avoid. And they want to know how best to support the family, both before and after the child dies. 

The ICPCN is the only international children's palliative care network providing face to face and free online training for doctors, nurses, social workers, psychologists, pharmacists and all other members of the multidisiciplinary team caring for children with life-limiting and life-threatening illlnesses. Through our courses we have already trained thousands of professionals who are making a difference in children's lives every day. 

As I write this, one of our team is in India, where she will be assessing existing children's palliative care services and providing training to people caring for children with palliative care needs. Our Chief Executive has recently returned from Sudan, where she participated in face to face training for doctors and nurses on children's palliative care and our Education Officer has announced that two of our free online courses are now available in Czech, with Hindi and Vietnamese translations in progress. With your help, we won't stop doing what we do until every child needing palliative care can access it!

We have almost raised $1000 towards our $13000 goal! As we head deeper into the new year, would you consider doing 'Just One [more] Thing for Children's Palliative Care' by making another donation to our campaign? We are grateful for every penny and would be delighted if you would consider a small monthly amount. Just $10 allows ICPCN to provide training materials on children’s palliative care for one health professional and $50 would pay for one doctor or nurse to attend a 5 day course on children’s palliative care. 

21 million children are counting on us. Can we count on you?

Links:

Share on Twitter Share on Facebook
Trainees in Prague with their certificates
Trainees in Prague with their certificates

A few weeks ago I was privileged to travel to Prague, in the Czech Republic, to participate in the presentation of the ICPCN 'Training of Trainers' week-long course to a group of 10 participants, mostly medical professionals. 

ICPCN had provided training in the basic principles of children's palliative care to these same people earlier in the year and were now sharing with them the tools to take this knowledge and start training others withn their beautiful country. They had formed the Working Group on Children's Palliative Care in the Czech Republic and had been putting their knowledge and skills to use in their various institutions. (The pink pigs in the photo represent the mascot of this working group!)

In the many years I've been involved in teaching and in training, I doubt I have ever witnessed a more passionate and determined group of people to not only provide palliative care to children in the Czech Republic, but to ensure the development of services throughout their country, with the full support of the Czech Society for Palliative Medicine. 

The positive energy in the room and with which they tackled every discussion, task and assignment was tangible. I am convinced that the development of children's palliative care is in excellent hands and look forward to seeing the fruits of our training increase in the years to come. 

The Czech Republic is just one of the countries that ICPCN has worked in this past year, providing training, presenting on children's pallaitive care and giving strategic support for service development. We have also been active in Lesotho, Malaysia, Indonesia, Rwanda, Singapore, South Africa, Swaziland, the United Kingdom, Ukraine, United Arab Emirates and Uganda, amongst others.

In addition, our free online courses on children's palliative care provide a most valuable resource allowing those unable to participate in our face-to-face training courses the opportunity to improve their knowledge and skills in children's palliative care. With 7 courses presently available in 7 languages, we will soon launch courses in Hindi, Vietnamese and Czech, all endorsed by the University of South Wales. These can be found at www.elearnicpcn.org 

We are enormously grateful to you for donating to this important work because we know it is making a difference in the lives of thousands of children, touched by the people we train.

If you are willing to do Just One Thing for Children's Palliative Care as the new year approaches, will you consider another donation or even a monthly donation of as little as $5 to the ICPCN to support us in our mission to ensure all children who need pallaitive care, receive it?

Trainees in Lesotho with thier certificates
Trainees in Lesotho with thier certificates

Links:

Share on Twitter Share on Facebook
Professionals trained in CPC in Uganda in August
Professionals trained in CPC in Uganda in August

Are their days when you wonder if the work you do and the money you donate makes any difference at all? There are so many children out there with so many different needs. It is often really difficult to come to terms with all the suffering and pain experienced by children, who are entirely innocent and undeserving of any of it, and then to decide how we can each help in our own way to reduce this suffering.

At ICPCN we have carried out research to estimate just how many children there are whose lives are affected by serious and life threatening illnesses, rare diseases and genetic conditions that mean their lives are not only difficult, but a lot shorter than normal. Most of these children won't live to experience adulthood and, just like a dragonfly or a butterfly, their time on earth is fleeting. And far too often, their suffering is great.

It's not a small number. We believe there are over 21 million of these children.

ICPCN envisions a world where every child needing palliative care will receive it but that is an overwhelming number of children for us to reach. We cannot do it alone. That is where you have come to our aid in reaching these children, by doing 'Just One Thing' to make a difference. You donated to our campaign so that we can continue to do our important work and for that we are so very grateful. 

Just what is it that ICPCN does to make a difference in children's lives? Firstly we connect the global community of people and organisations who work in the field of children's palliative care. The doctors, nurses, psychologists, social workers, pharmacists, teachers, therapists, dieticians and many others who spend their days improving the lives of these beautiful but fragile butterflies. We allow them to talk to each other, to share their victories, their research, the lessons they have learned. And then we advocate for these children at every level - from local government all the way to the World Health Assembly. ICPCN is there, reminding decision makers that these children's lives matter. Their lives  may be short, but they matter as much as any other child's life and they particularly deserve to have as good a quality of life as possible.

ICPCN also leads and participates in important research that will inform the optimal care of these children and we offer strategic support and mentoring for the development of children's palliative care services.  

But most importantly, we provide free and easily accessible training and education for those who care for these children. We provide online learning on children's palliative care in 8 languages and, when we have the funds, we travel to countries where there is no expertise in children's palliative care and provide vital training to all members of the multi-disciplinary team. These are the people who do make a difference in the lives of thousands of children with shortened and difficult lives.

This year alone ICPCN has provided training to 12 people in Prague, 30 people in Lesotho and 22 more in Uganda. And to date our e-learning modules have been undertaken by 1,800 people in 120 countries. How many children's lives will all these people touch? We hope it is many thousands and that these people will in turn train others in a wonderful ripple effect.

Is that enough to reach 21 million children? The answer is no - not yet. Our reach is growing daily but we cannot do this alone. We need your assistance, and your continued support. Please consider another once off donation to this campaign or, even better, commit to provide ICPCN with a small monthly donation (as little as $8) so that we can keep doing what we do.  

If you donate to ICPCN, we promise your money will make a difference in thousands of children's lives. 

ICPCN Trains 12 professionals in Prague
ICPCN Trains 12 professionals in Prague

Links:

Share on Twitter Share on Facebook
ICPCN Training in Namibia
ICPCN Training in Namibia

The ICPCN has a mission to achieve the best quality of life and care for children and young people with life-limiting conditions, their families and carers worldwide and a vision of a world where every child and young person with life-limiting or life-threatening conditions and their families can receive the best quality of life and care regardless of which country they live in. 

Our recently published research revealed there are 21 million children in the world today with palliative care needs, 8 million of which need specialised palliative care. But barely 5% of these 21 million children are accessing services. Many lower and lower middle income countries offer either no children's palliative care, or services that are localised and provide care to a limited number of children.

How then do we achieve this seeming 'mission impossible'? How do we realise our vision of a world where the quality of life of these 21 million children is improved, where they and their families are expertly and holistically supported through the course of their illness and, where needed, their deaths? We are convinced that the only way we are going to reach these children is by educating the people who care for them. 

Just one healthcare professional trained in children's palliative care can positively affect the lives of 300 hundred or more children each year as well as the members of these children's families.

ICPCN has provided free face to face and e-learning training to around 3,000 people in over 120 countries, potentially touching the lives of more than a million children. It's a start but we know we need to do better than this.  

Education can bring palliative care to every corner of the globe which is why the ICPCN has a strong focus on providing training of children's palliative care in the form of courses, workshops, master classes, confrences and seminars and on developing and improving our free online e-learning courses.  

Will you continue to partner with us in this endeavour? Every dollar, pound, euro, rand, peso, shilling, rupee, krone, dinar, or whatever currency you use, that you donate to this project will help us to extend and expand our training of health care professionals in children's pallaitive care.

A doctor we trained in Nambia  once told us, "Working with children with cancer has opened my eyes to the need for palliative care in Namibia. This workshop is a prayer answered. My fears and lack of confidence to address issues that are sensitive have been addressed. I hope to do better at work and to continue growing in knowledge." 

We are so grateful for each donation already received. We are indebted to you and want you to know that you are helping ICPCN make our vision a reality.

Please would you consider another once off donation or even better a small, monthly donation to this ICPCN cause - even as little as $5? Many small donations could make one enormous difference in the lives of the 21 million children who are the reason for our organisation's very existence.

Healthcare workers trained by ICPCN in Kampala
Healthcare workers trained by ICPCN in Kampala
ICPCN E-learning trainees in The Netherlands
ICPCN E-learning trainees in The Netherlands
ICPCN supported masterclass in Bangladesh
ICPCN supported masterclass in Bangladesh

Links:

Share on Twitter Share on Facebook
Health Care professionals from Lesotho
Health Care professionals from Lesotho

Last year we launched a campaign to ask people around the world to do 'Just One Thing' for children's palliative care. You responded. You generously donated towards the ICPCN's ongoing Education & Training programme and we are most grateful.

Despite a slow start, we have set ourselves a target of US $13,000 for this GlobalGiving Campaign and hope that we can achieve this by the end of the year. We believe strongly that the more health professionals we can reach and train in the principles of children's palliative care, the more children and families get to experience the comfort and support that palliative care provides.

Last month the ICPCN, in partnership with the Lesotho Ministry of Health provided the first ever week-long training of 30 health care professionals in the principles of children's pallaitive care. The training took place in Maseru and was attended by medical doctors, nurses, pharmacists, social workers, priests, a dietician, an occupatonal therapist and a Traditional Healer. Lesotho has no existing children's palliative care services, despite the identification of a great need based on the incidence of childhood cancers and HIV infection. Further 'Training of Trainers' education will be provided by ICPCN in June this year. 

ICPCN has been asked to provide similar training in Rwanda, Prague and Iran over the coming months. As the only international organisation responding to so many requests for training and the only organisation providing free online training in 8 languages we greatly appreciate any and all assistance we receive to finance the costs of such projects. We are particularly grateful to those of you who have committed to a monthly contribution.

Thank you for your continued support and for being prepared to make a difference in the lives of children you will most likely never meet. 

Yours most sincerely

Sue Boucher

Links:

Share on Twitter Share on Facebook
 

About Project Reports

Project Reports on GlobalGiving are posted directly to globalgiving.org by Project Leaders as they are completed, generally every 3-4 months. To protect the integrity of these documents, GlobalGiving does not alter them; therefore you may find some language or formatting issues.

If you donate to this project or have donated to this project, you will get an e-mail when this project posts a report. You can also subscribe for reports via e-mail without donating.

Get Reports via Email

We'll only email you new reports and updates about this project.

Organization Information

International Children's Palliative Care Network

Location: Bristol - United Kingdom
Website:
Facebook: Facebook Page
Twitter: @iCPCN
Project Leader:
Sue Boucher
Bristol, South West England United Kingdom

Funded Project!

Combined with other sources of funding, this project raised enough money to fund the outlined activities and is no longer accepting donations.
   

Still want to help?

Support another project run by International Children's Palliative Care Network that needs your help, such as:

Find a Project

Learn more about GlobalGiving

Teenage Science Students
Vetting +
Due Diligence

Snorkeler
Our
Impact

Woman Holding a Gift Card
Give
Gift Cards

Young Girl with a Bicycle
GlobalGiving
Guarantee

Sign up for the GlobalGiving Newsletter

WARNING: Javascript is currently disabled or is not available in your browser. GlobalGiving makes extensive use of Javascript and will not function properly with Javascript disabled. Please enable Javascript and refresh this page.