Provide 500 therapy sessions to disabled children

We are pleased to share the latest update on our project to provide 500 therapy sessions for children with disabilities at Kyaninga Child Development Centre (KCDC) in Uganda. This report highlights the successful launch of our first-ever Parents Support Group specifically focused on Autism Spectrum Disorder (ASD), which took place in April 2024.

Breaking Down Walls, Building Bridges: Addressing the Challenges of Stigma

The inaugural session of our parent's support group for children with autism was a significant milestone in our ongoing efforts to support children with disabilities and their families. Autism is often misunderstood in Uganda, with widespread stigma and confusion about its nature. Many people mistakenly believe that autism is simply bad behaviour or even a form of madness. This support group was created to combat these misconceptions and provide crucial education and support to parents and caregivers, who commonly feel isolated and lack the support they desperately need. This gathering brought together 11 parents and caregivers, creating a space for open discussion, knowledge sharing, and, most importantly, mutual understanding.

A Multifaceted Approach to Empowering Families

The group addressed several key areas:

• Understanding Autism: The sessions aimed to dispel myths and misconceptions about autism, providing parents with accurate information about the spectrum, its characteristics, and the wide range of experiences children with autism can have. This helps them to recognise it as a neurodevelopmental condition rather than a behavioural problem. 
• Equipping Parents for Success: We discussed practical strategies families can use to support their children's development at home and school. This included exploring therapeutic techniques and behaviour management approaches, all tailored to address the unique needs of children with autism.
• Building a Network of Support: Recognizing the importance of shared experiences, the group emphasized the value of peer support. Parents were enc.ouraged to connect with each other, share resources, and build a network of understanding and empathy. This newfound sense of community empowers families to navigate the challenges they face and celebrate their successes together.
• Fostering Community Inclusion: The group discussed the importance of involving neighbours and community members in supporting children with autism. This could involve educating them about the condition and its impacts and encouraging them to interact positively with the children. By fostering a more inclusive and protective environment in the community, children with autism can feel a greater sense of belonging and acceptance.

Impact and Moving Forward: A Brighter Future for Children with Autism

The feedback from participants was overwhelmingly positive. Parents and caregivers appreciated the opportunity to learn more about autism and to connect with others facing similar challenges. Many expressed a newfound sense of hope and empowerment, knowing they are not alone and that support is available.

Mama Karl shared her experience that "he was so hyperactive ... spoiling sofas, mattresses and mats, throwing clothes into the pit latrine, throwing tantrums for hours. It was too much. But now I have realised a great improvement in his behaviour after following routines and behaviour techniques - he can now follow routines at school by responding to the bell, and he is using short phrases to communicate his needs, which has cut down his tantrums."

Kato's grandmother recognises that "he used to loiter in the village, and people would be scared of him, chasing him away, but now he only visits 2 homes where he realised that the families love him and welcome him." She is now concerned that Kato's father does not accept his parental responsibilities to care for the boy and wonders what she could do. Other parent support group members stated that "if we could get the father here, to a group like this, and get the support we have already received, I believe he would change". The group agreed to encourage this father to attend the next meeting. 

Based on the success of this first session, we plan to hold regular support group meetings for parents and caregivers of children with autism. These sessions will continue to focus on education, practical support strategies, and community engagement. We believe that by empowering families and fostering a supportive community, we can significantly improve the quality of life for children with autism and their families.

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