We hope you are safe and healthy during this time of global crisis. As we continue to navigate these extraordinary times, we rely on community and each other now more than ever. While we are at home, practicing social/physical distancing we wanted to share some things we can all do to take care of ourselves and our loved ones.
Although caregiving can be challenging, some caregivers have gotten creative: A woman in Florida who took a job as a dishwasher so she could spend time with her husband. In Newsweek, a mother of four shares her experience caring for her mother with Alzheimer's and bringing multiple generations together.
Here are a few resources we have found to be helpful:
For people living with dementia, increased confusion is often the first symptom of any illness. If a person living with dementia shows rapidly increased confusion, contact your health care provider for advice.
People living with dementia may need extra and/or written reminders and support to remember important hygienic practices from one day to the next.
Ask your pharmacist or doctor about filling prescriptions for a greater number of days to reduce trips to the pharmacy.
Think ahead and make alternative plans for the person with dementia should adult daycare, respite, etc. be modified or canceled in response to COVID-19.
Think ahead and make alternative plans for care management if the primary caregiver should become sick.
Also, here's a couple of articles from AARP and Elder Care Alliance with some great ideas of navigating taking care of oneself and loved ones.
We want to thank all of you, our community of support, for your generosity, love, and kindness. Due to your ongoing support, we have been able to continue to serve caregivers through our work. So many people have been reaching out to us this holiday season to thank our family and our team here at the Genius of Caring for the support and validation they have felt through watching The Genius of Marian and other projects we have produced. It was a reminder of how much my mother's spirit is still driving this project. She was a gifted social worker and an amazing listener. She helped people believe in themselves and cultivated strong and supportive community networks and friendships. I am so proud of what we have been able to accomplish as a community and I am excited to continue to grow and learn into 2020 and beyond.
Our team will soon be releasing an additional portrait to the site, Chuck and Dolores English who we have introduced to you in previous reports. As you may remember Dolores and Chuck were a warm, giving, loving couple that had been together for 36 years. Chuck passed away from late-stage Lewy Body dementia. Dolores has been very committed to helping other family caregivers and believes her and Chuck's portrait can help others. We feel honored to have met them and look forward to sharing their story.
We wish you and your loved ones Happy Holidays!
The Genius of Caring is designed to support caregivers and to provide students, healthcare professionals, and others with a glimpse into the caregiving experience. We seek to feature a wide range of family caregivers and those living with caregiving intensive diseases.
We are so grateful for this wonderful community. In this report we wanted to share a few ways The Genius of Caring has grown and evolved over the years due to your on going support. In the face of what can be a very isolating experience, we are extremely proud that our work continues to provide a space for caregivers and their loved ones to share their experiences and create a meaningful community.
In 2019, we have been committed to profiling the tireless and compassionate work of caregivers though our documentary portrait series and also be able to offer support through community screening and discussion events and our ever expanding social network. today, we have over 350 profiles on the GeniusOfCaring.org website and over 5500 social media followers.
Individual caregivers, who have participated in our community events, or contributed to our website and via social media channels, have told us how much they appreciate this welcoming and supportive space to share. If you have supported this project and not yet visited our sites, please come and revisit the website, check us out on Facebook or Twitter - we have quite an active and supportive group and would love to have you join us. And please share with people who you think might be interested and join us.
June is Alzheimer's & Brain Awareness Month. In spirit of the month, we'd like to share our documentary portrait of Ed & Pam White from our Genius of Caring interactive project (& of course the Genius of Marain documentary). This is the first of five chapters. We also wanted to highlight Kamaria and Mary Moore's portrait whcih was added to the site in 2017. Kamaria is caring for her mother who was diagnosed with early onset Alzheimer's at the age of 58. You can view the entire interactive experience and contributions from our community at www.geniusofcaring.org.
We launched the site and initiative in sync with the broadcast of the Genius of Marain on POV. We are incredibly proud of this project and continue to work on it to this day, adding documentary portraits of amazing caregigers around the country and facilitating important discussions for families affected by Alzheimer's and other caregiving intensive diseases.
Project Reports on GlobalGiving are posted directly to globalgiving.org by Project Leaders as they are completed, generally every 3-4 months. To protect the integrity of these documents, GlobalGiving does not alter them; therefore you may find some language or formatting issues.
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