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The Genius of Caring

by Mirabel Pictures / WeOwnTV
The Genius of Caring
The Genius of Caring
The Genius of Caring
The Genius of Caring
The Genius of Caring
The Genius of Caring
The Genius of Caring
The Genius of Caring
The Genius of Caring
The Genius of Caring
The Genius of Caring
The Genius of Caring
The Genius of Caring

Dear Global Giving supporters,

We are so grateful for this wonderful community. In this report we wanted to share a few ways The Genius of Caring has grown and evolved over the years due to your on going support. In the face of what can be a very isolating experience, we are extremely proud that our work continues to provide a space for caregivers and their loved ones to share their experiences and create a meaningful community. 

In 2019, we have been committed to profiling the tireless and compassionate work of caregivers though our documentary portrait series and also be able to offer support through community screening and discussion events and our ever expanding social network. today, we have over 350 profiles on the GeniusOfCaring.org website and over 5500 social media followers. 
Individual caregivers, who have participated in our community events, or contributed to our website and via social media channels, have told us how much they appreciate this welcoming and supportive space to share. If you have supported this project and not yet visited our sites, please come and revisit the website, check us out on Facebook or Twitter - we have quite an active and supportive group and would love to have you join us. And please share with people who you think might be interested and join us.
With deepest gratitude,
Kamaria Moore
Kamaria Moore

Happy Summer GlobalGiving community!

June is Alzheimer's & Brain Awareness Month. In spirit of the month, we'd like to share our documentary portrait of Ed & Pam White from our Genius of Caring interactive project (& of course the Genius of Marain documentary). This is the first of five chapters. We also wanted to highlight Kamaria and Mary Moore's portrait whcih was added to the site in 2017. Kamaria is caring for her mother who was diagnosed with early onset Alzheimer's at the age of 58. You can view the entire interactive experience and contributions from our community at www.geniusofcaring.org.

We launched the site and initiative in sync with the broadcast of the Genius of Marain on POV. We are incredibly proud of this project and continue to work on it to this day, adding documentary portraits of amazing caregigers around the country and facilitating important discussions for families affected by Alzheimer's and other caregiving intensive diseases.

We want to say thank you to our partners and funders - National Endowment for the Arts, The Fledgling Fund, Points North Institute, Home Instead Senior Care and the Family Caregiver Alliance and to so many of you who have supported this project over the years!

In the spirit of growing this community PLEASE SHARE this project with 3 to 4 friends or anyone in your circle who might find it meaningful.With much appreciation!The Genius of Caring Team

Pam & Ed White
Pam & Ed White

Links:

Dear GlobalGiving Community,

We want to thank all of you, our community of support, for your generosity, love and kindness. Due to your ongoing support, we have been able to continue to serve caregivers through our work. 

In this report, we want to share some news about our latest project Heaven Through the Backdoor. The film tells the story of a woman, Yolanda Shae, grappling with the most universal, philosophical questions about what it means to fully live and what it means to die. Yolanda, or Yo as she was affectionatly known, was a dear friend of Anna, the film’s director. Here is a statement from Anna:

"In 2013, I lost one of my closest friends. Her name was Yo (Yolanda Shae). We filmed with her during the last two years of her life. Our 15-year friendship transcended our 48-year age difference and laid a solid foundation of trust for this project. Yo was many things: a great-grandmother, career weed dealer, intellectual, psychic, hostess, tyrant - and, above all, a captivating storyteller. Our project juxtaposes vivid interpretations of Yo’s stories with intimate observational footage. Yo’s stories, which span eight decades and five continents, are presented virtually uncut to honor her “performance.” Our artistic interpretation, however, is indulgent. To bring her memories and stories to life, we use varied techniques including intricately built sets, animal actors, puppetry and an archive of family photos and artwork."

Family Caregiver Alliance, who we've partnered with for The Genius of Caring, will be our lead partner in organizing our outreach efforts for Heaven Through the Backdoor. We are also thrilled to report that we have recieved support from the SF Film Foundation, the Sundance Institute and the Creative Work Fund.  We also have been selected for a project space residency at the Headlands Center for the Arts in the Fall of 2019. Our project includes a feature length documentary film airing on television and in theaters, along with the exhibition of our built sets in public spaces, museums and galleries. To further envelope our audiences in the multifaceted and sensory experience of Yo’s world, we plan to create listening stations along the exterior walls of the house. By putting on headphones and peering through windows, audiences experience a version of of reality that mingles scale, memories and reinterpretations of material things. The locations we where display the work will also become gathering places for community members to interact with the material and with each other, bringing a vital social element to how the work is experienced. We have had two events already, they were inspiring  and creatively generative.

Looking forward to sharing more as the project develops!

Thanks,


Banker, Anna and Team

Anna inside the set of Yo
Anna inside the set of Yo's house
Interior of the set of Yo
Interior of the set of Yo's house

Dear GlobalGiving Community,

We want to thank all of you, our community of support, for your generosity, love and kindness. Due to your ongoing support, we have been able to continue to serve caregivers through our work. The Genius of Caring campaign is designed to support caregivers and the loved ones of those affected by caregiving intensive diseases. For healthcare professionals, students, and others, the project also offers a uniquely intimate glimpse into the caregiving experience and creates an intimate portrait of a community connected through compassion.

In the face of what can be a very isolating experience, we are extremely proud that our work continues to provide a space for caregivers and their loved ones to share their experiences and create a meaningful community. Individual caregivers, who have participated in our community events, or contributed to our website and via social media channels, have told us how much they appreciate this welcoming and supportive space to share.

We now have over 350 stories contributed to our Care Gallery. We are connected to more than 5500 social media followers and post daily, interacting personally with this community. 

PROJECT UPDATE: Dolores & Chuck

We are excited to share that we are in the final stages of editing our latest portrait of Dolores and Chuck. Dolores and Chuck were a warm, giving, loving couple that had been together for 36 years. We began filming with them last year just before Chuck passed away from late stage Lewy Body dementia. We have continued to film with Dolores through the process of mourning her loss. She is a brave compassionate and generous soul who tells it like it is. In the later stages of Chuck’s disease and since he passed, Dolores has been very committed to helping other family caregivers. She is active in support groups and knows first hand how candidly sharing her experience has the power to help others. We feel honored to have met both Dolores and Chuck and look forward to sharing their story.

When the film is completed, we will present both a stand alone short documentary film that will be screened at community events and in festivals as well as a chaptered interactive story that will be added to the PORTRAITS page of The Genius of Caring website.

Here is a message from Dolores:

"My husband Chuck, the love of my life, passed away on March 12, 2017. During the last two or three weeks of his life, he had a difficult time swallowing liquids and solid foods. The swallow specialist changed his diet to thicken fluids and puréed food, but also told me this issue would increase to the point where he would stop eating and taking fluids.

After that conversation, I reached out to hospice. Another layer of care was comforting to me, but it only lasted for nine days. My heart is broken, my life without him seems surreal. For those caregivers out there, enjoy every moment your loved one shares with you!"

We wish you and your loved ones Happy Holidays!

With gratitude,

Banker White

The Genius of Caring project is supported in part by an award from the National Endowment for the Arts, Art Works and through the generous support of these organizations and individuals: Sundance Institute, The Fledgling Fund, Home Instead Senior Care, SFFILM, Ray and Dagmar Dolby Family Fund, PSW Family Foundation, Abigail Disney, McCance Foundation and private donors.

Dolores and Chuck
Dolores and Chuck
Chuck and Dolores
Chuck and Dolores
Pam White and Devon White Angelini
Pam White and Devon White Angelini

Happy Autumn to our wonderful GlobalGiving community! 

September is World Alzheimer's Month and we have been busy with community screenings of The Genius of Marian.

This past month, Susan Rowlett, Program Director, Dementia Care Services from Massachussetts General Hospital hosted a screening of The Genius of Marian in the Boston area. My sister, Devon White Angelini and Dr. Brent Forester, Chief, Division of Geriatric Psychiatry from McLean Hospital facilitiated a Q&A after the screening. Over 60 caregivers and medical professionals filled the room and engaged in lively discussion about Alzheimer's and caregiving. Many were quite moved by the film and appreciated the candor discussion after.

We are also thrilled to share that Devon and Susan are in the beginning stages of designing a Mindfulness for Caregivers workshop that will be beneficial to both the caregiver and the person living with Alzheimer's. The workshop will be a retreat for caregivers and focus on mindfulness practices for caregivers. 

Thank you so much for your generosity, love and kindness. Due to your ongoing support we are able to continue to serve caregivers through The Genius of Caring site. Individuals who have created profiles and shared their stories have told us how much they appreciate the space to share stories of their loved one with others and feel a sense of community and less isolation. We are grateful our work has provided a space for caregivers and their loved ones to share their experiences. 

In deep appreciation,

Banker

"The Genius of Marian and The Genius of Caring have been huge factors in giving me courage to speak up. By speaking out we change the perception of Alzheimer's and support caregivers.”

Jean Lee, author jeanllee.blogspot.com

 

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Organization Information

Mirabel Pictures / WeOwnTV

Location: San Francisco, CA - USA
Website:
Facebook: Facebook Page
Twitter: @WeOwnTV
Project Leader:
Banker White
San Francisco, CA United States

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