By Robbie Middleton | Padrinos Department
Casa Jackson does so much more than just help children to recover from malnutrition. When a child come to us we have a responsibility to them and their general wellbeing, and we do what we can to take care of them.
One such child who is currently a patient in Casa Jackson is 5-year-old María*. María arrived at Casa Jackson on the 2nd of June along with her mother and younger sister. Both were severely malnourished, with María also showing signs of marasmus. So far, María has gained 4 lbs. 8 oz. or 15% of her initial weight.
María lives in San Juan Sacatepéquez with her mother, sister, grandmother, aunts, uncles and cousins. Their house is made of cement blocks, wood and sheet metal. María, her mother and sister share a bed in the single room they have. It is filled with just a small wardrobe, with no other possessions. María’s father does not support the family, despite there being an order from the judge for him to do so.
During María’s time here we have tried to make her stay as enjoyable as possible. As she is currently our oldest Casa Jackson patient, we looked into ways to keep her occupied and interested. María has started attending our Clases de Reforzamiento in our Centro Soñador, working with our teachers to learn letters, numbers, colours and other useful skills to prepare her for next year when she will start at school.
Whilst her sister was able to go home after 1 month and 24 days, María’s needs are much more complex and she is still currently a patient, having been with us for 5 months and 12 days. After María was examined by our paediatricians we decided that it was necessary to do some further tests. We were able to diagnose María with Marfan Syndrome, something that affects between 1 in 5000 and 1 in 10,000 children. Marfan Syndrome affects connective tissue and those with the condition are generally taller and thinner. It can also cause complications and problems with vision and the cardiovascular system.
In María’s case, both her eyesight and her heart have complications that need intervention. Her eyesight is extremely poor and so we had to order and buy special glasses from Spain to match her prescription. María was delighted to receive her new glasses, having chosen the design and colour herself, and proudly shows them off to the new volunteers who arrive at Casa Jackson.
María’s heart also has complications. Our paediatricians are extremely worried that María could have an aortic aneurysm or aortic dissection in the future, something that could be fatal. We have investigated the possibility of heart surgery for María to prevent this from happening. Normally, doctors wait until children are 8 years old to perform the surgery, but our paediatricians and consulting doctors have told us that María’s need is a lot more urgent. If you would like to donate to potentially help María receive heart surgery in the future, please click the link below.
María is almost ready to go home with her family, but we will not stop supporting her. Our Padrinos department has already made the hour-long drive to visit María’s family and discuss plans for next year where we would like to see María enrolled in school. We have also set the groundwork for future medical interventions for when María needs an operation on her heart.
The GOD’S CHILD Project has been working for 30 years to break the chains of poverty through education, housing, nutrition and healthcare. Please click the link below to donate to support us in our ongoing mission.
By Robbie Middleton | Padrinos Department
By Robbie Middleton | Padrinos Department
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