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Support Children with Rare Hip Disease

by Legg Calve Perthes Foundation
Support Children with Rare Hip Disease
Support Children with Rare Hip Disease
Support Children with Rare Hip Disease
Support Children with Rare Hip Disease
Support Children with Rare Hip Disease
Support Children with Rare Hip Disease
Support Children with Rare Hip Disease
Support Children with Rare Hip Disease
Support Children with Rare Hip Disease
Support Children with Rare Hip Disease
Support Children with Rare Hip Disease
Support Children with Rare Hip Disease

Summary

Nearly 40% of rare disease families borrow money to pay medical bills. Legg Calve Perthes, a rare childhood disease, is triggered by a loss of blood supply to the hip, and produces a painful limp and chronic inflammation in the joint. Many children require surgery and equipment in order to heal. As adults, they are prone to degenerative osteoarthritis. Chronic pain, potentially lasting from childhood into adulthood.

$15,000
total goal
$1,750
remaining
68
donors
1
monthly donor
2
fundraisers
1
year

Challenge

It's been over 100 years since we've known about Legg Calve Perthes disease, but still lack answers and a cure. A worldwide problem, yet there is little awareness or financial aid to assist children. Perthes is a long and painful process. Many families face the expense of surgeries, equipment, & travel for treatment. The challenge is to bridge the gap between the lack of funding for research, while aiding impacted families. Both are critically important. With your help, we can change lives.

Solution

Starting in late 2017, Perthes.org was created to provide education, annual conference, and a patient registry for future research. The life cycle to Perthes is long; finding a diagnosis, doctors' appointments, surgical costs, expensive medical equipment, pain management, & physical therapy over many years can be costly. This project will fund the 2019 Assistance program for 10 families who apply and qualify.

Long-Term Impact

In our lifetime, we would like to see a cure for Perthes Disease. Every child should be able to feel the joy of running and jumping without consequence or pain. While we have our eyes on a cure, it will require time and resources. In the meantime, our goal is to help alleviate the burden and cost of managing a rare disease. Consider opening the door for families who need equipment for their children, while laying the groundwork to help develop a cure.

Resources

https:/​/​perthes.org/​
2nd Annual Parents and Perthes Family Conference
Perthes Surgeons Answer Questions from Families
Research Partner:International Perthes Study Group
Perthes 101: Learn More

Organization Information

Legg Calve Perthes Foundation

Location: Haymarket, VA - USA
Website:
Facebook: Facebook Page
Twitter: @lcperthes
Project Leader:
Colleen Rathgeber
Haymarket, VA United States
$13,250 raised of $15,000 goal
 
97 donations
$1,750 to go
Donate Now
$10
USD
Education. Your donation also provides for printing costs of pamphlets and other educational materials for in-person events such as the Perthes Family Conference, Rare Disease and Orthopedic events.
$25
USD
Web hosting. The Perthes.org site provides the international Perthes community free educational resources and tips. Keep these services free to the community by supporting operational costs of Perthes
$50
USD
Adaptive Costs. Give a child the ability to stay active! Your donation gives wheelchairs, adaptive toilets, crutches, and other items to children so they can maintain their independence
$75
USD
Travel Costs. Your donation helps families afford travel expenses associated with Perthes care. Some families have to travel hundreds of miles to see a specialist several times a year.
$125
USD
Volunteer Costs. Reward a hard working volunteer by gifting attendance to an educational workshop. Awarded annually.
$250
USD
Keep a child moving! Staying active during Perthes treatment is crucial but most children can't continue their favorite activities or sports. Give a child a scholarship to attend swim lessons
$500
USD
Give a child the gift of education. After missing a significant amount of school for treatment, many children find that they struggle to keep up with their peers academically. Give a child a tutor!
$1,000
USD
Research Grant. Change the way Perthes is diagnosed or treated for the next generation! Every year Perthes.org supports researchers in the field of Perthes disease.
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