Hope you enjoyed the festivities of Ramadan and Eid (the holy month of Muslims followed by the festival of Eid) because the kids at Al-Mustafa Thalassemia Unit really did enjoy this season, along with some birthday parties. All the children were given gifts and new clothes so that they can cherish the festivities of the occasion.
Apart from the fun activities (which are the most important and attractive thing for the children, and it literally makes them look forward to their visits to the hospital) the following is the short summary of treatment and investigations/services provided to children at Al-Mustafa Thalassemia Unit during the past couple of months.
April, 21: 132 sessions
May 21: 129 sessions
June 21: 137 sessions
July 21: 133 sessions
April, 21: 161 Tests Performed
May 21: 158 Tests Performed
June 21: 136 Tests Performed
July 21: 152 Tests Performed
At Al-Mustafa Thalassemia Unit, we provide expert comprehensive care for children and adults suffering from thalassemia. The treatment of thalassemia depends on the type of disorder, it may include:
Blood Transfusion for correction of anaemia, based on severity.
Regular check-ups and continuous monitoring for complications of the disease and the treatment.
Iron chelation therapy, to remove excess iron from the body
Multivitamins, in case of weakness.
Well, this is not it, Al-Mustafa Welfare Society has not limited its services to providing treatment for the suffering children, but a campaign to generate and raise awareness against the disease is also an important part of our fight against this deadly disorder. The Thalassemia Campaign includes the following activities in this regard:
Public Seminars and CMEs regarding Thalassemia awareness
Parents' education regarding the care of the Thalassemic child.
Couple education about prenatal diagnosis.
Bear half of the cost of Chorionic Villus Sampling (CVS) of a couple whose child/children is already suffering from Thalassemia.
We are also working on other blood disorders as well and are working on establishing a Haemophilia setup soon.
Hope you are doing well. The Thalassemia Unit at Al-Mustafa Hospital has been bursting with some good vibes as we have had our anniversary to celebrate with 8 new children who recently got registered and became part of our Thalassemia Family. But first I would like to give you a short summary of our services provided during the past couple of months.
Blood Transfusion Sessions:
December 2020: 135 sessions
January 2021: 123 Sessions
February 2021: 121 Sessions
March 2021: 134 Sessions
Haemoglobin Follow-Up Tests (Laboratory examinations for proper evaluation of the state of Iron levels in the blood)
December 2020: 155 Tests
January 2021: 150 Tests
February 2021: 149 Tests
March 2021: 156 Tests
Apart from the above-mentioned services, all the children are being provided medicines such as Iron Chelation Therapy and supplements on regular basis as per their needs, assessed and prescribed by our Haematologist. We also provide other necessary treatments to our children for illnesses apart from Thalassemia because the immunity of these children becomes so weak and they catch other infections easily.
The Thalassemia Unit of Al-Mustafa Hospital functions as a family, not only are we together in the battle against this disease but we also believe in celebrating different events just like a healthy family does, and what could be more important and the happiest occasion than the Anniversary of our very own Thalassemia Unit. A happy child is a healthy child and what else can we want more than, for our children to be happy and healthy, therefore, every year the anniversary day is a grand celebration, the children are mostly taken to a restaurant or an amusement park, but due to Covid, this year we kept the party a little low profile (just the party, not the spirits!).
We really wish and hope that all of you could join us in person during these happy times very soon, but for now, we are sharing some pictures with you which saved a few of these happy moments.
We will stay connected and keep sending you new updates and once again, thank you for all the support and love.
Much has been changed after the Covid crisis across the Globe, but the lives of children suffering from thalassemia are pretty much the same. Their visits to the Hospital are as frequent as they used to be before "The Covid" and so is their determination to fight with the disease.
Please find below a short summary of services provided by Al-Mustafa's Thalassemia Unit in the past four months.
Blood Transfusion Sessions were provided 382 times.
Laboratory examinations for proper evaluation of the state of disease were done 503 times
X-ray imaging was done for 5 children.
Ultrasound and ECHO were performed for 4 children
Apart from the above-mentioned services, all the children are being provided medicines such as Iron Chelation Therapy and supplements on regular basis as per their needs assessed and prescribed by our Haematologist. We also provide other necessary treatments to our children for illnesses apart from Thalassemia because the immunity of these children become so weak and they catch other infections easily.
As you are aware that the children suffering from thalassemia require frequent blood transfusions. To cater to the needs of our children, the team of Al-Mustafa's Blood Bank organizes different blood donation camps. The collected blood is then thoroughly screened and utilized for the Free Blood Transfusion of Thalassemic Children. In the past three months i-e August, September and October, we have organized 5 blood donation camps and have collected blood from 175 blood donors/volunteers. Also, we have received blood donations from 110 volunteers at our Hospital.
Life at Al-Mustafa's Thalassemia Unit is not as muted as it seems. We believe that a happy child is a healthy child, therefore, apart from the fun with playing toys and games during their routine visits to the Hospital, we also arrange different Events for our children, to keep them engaged, excited and happy. We have had 5 events during the last three months, including Independence Day Celebrations, Defence Day Celebrations, 2 Birthday Parties and a Gift distribution Ceremony among the children.
And all of this has only been made possible with your kind and generous support for which we are truly thankful to you.
Look at the determination in these children's eyes, such warriors they are, eager to defeat thalassemia amid yet another frightening pandemic.
Dear Donors, I hope this update finds you and your family in good health. Thank you for your generous support to our very first project on GlobalGiving. As you are aware that these few months have been very challenging for everyone out there due to the outbreak of Coronavirus and so has been the case with our organisation, we have faced many problems during the past few months, especially in arranging blood donations for the children suffering from thalassemia as they need a blood transfusion as often as twice weekly. Thanks to the efforts of our Blood Bank Team and all the volunteers who worked tirelessly and took part in special blood donation campaigns which were launched to encourage people to donate blood for the children suffering from thalassemia. Due to their efforts, the children didn't have to suffer from blood deficiency.
Due to the weaker immunity of the body (as a consequence of thalassemia and its repercussions, the affected children are especially prone to catch and suffer from disease easily). This was and still is an alarming situation and our doctors, nurses and the entire team made special efforts and followed all the SOPs to make sure that the treatment is provided in the safest environment to these little vulnerable patients.
The treatment for thalassemia requires the children to stay in bed/stretcher for a prolonged period, both at the time of blood transfusion and during parenteral iron chelation sessions (there are two types of iron chelation therapy, one is oral and the other is parenteral i-e given through needles. We provide both therapies to the children according to the treatment requirement). We also make efforts to turn these long boring hours into something interesting, which also serves to make these innocent angels forget about their pain. You can even spot the kids playing their favourite games during their routine hospital visits.
All these efforts were made possible with your support. We hope that you will continue to support us in this mission and will continue to be the hope of these little angels.
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