We are raising funds to provide free treatment to children affected by thalassemia and generate public awareness for the treatment and prevention of this disease. We have established a Thalassemia Unit and a Blood Bank for the free treatment of children affected by this disease. Thalassemia is a fairly expensive disease to treat. Since the patients often fall under the lower income group category, therefore, its treatment poses huge financial threats and psychological stress to them.
Thalassemia is an inherited blood disorder whereby the bone marrow is unable to form sufficient amount of red blood cells, therefore, the affected child needs regular blood transfusions. Nearly 6,000 children are diagnosed with thalassemia major every year in Pakistan, out of which 60% to 70% succumb to Hepatitis B or C and die before reaching 10. This is most common in inter-family marriages (customary in lower-class) and therefore, 90% of such children belong to low-income group families.
Al-Mustafa Welfare Society established a blood bank and a dedicated Thalassemia Unit in 2008. Currently, we have 200 registered patients who are given complete free treatment (under the supervision of a consultant haematologist), including blood transfusion, iron chelation therapy, medicines and monthly laboratory examinations for proper evaluation of the state of the disease. Our goal is to raise enough funds for provision of screened blood and blood transfusion for 200 children for 1 year.
This project not only relieves the suffering of affected children but we are also generating public awareness for the treatment and prevention of this deadly disease by arranging seminars, walks and different community events. Our Chairman, Dr. Haji Muhammad Hanif Tayyab also takes religious scholars on board to join hands for the same cause and encourages people and the government to facilitate pre-emptive measures (thalassemia screening before marriage) for the detection of the causative gene.
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