The Road to Hope program has transformed the lives of 112 children from 67 families in 36 districts of Uganda, with social services and resources to improve the quality of life. These are families with persons living with severe health-related suffering due to life-threatening illnesses, where primary caregivers are children below 18 years. The program offers access to palliative care for the ill, psychosocial support, basic needs for the entire family, and educational support for the children.
The Uganda National Household Survey Report 2023/2024 indicates that youth-led and child-headed homes make up 33.7% of the country's 10.7 million households, where parents are severely ill and need palliative care, and children are often the primary caregivers. With no money, the child quits school to earn a living while caring for the dying parent. These children are vulnerable to deprivation of parental love, psychosocial support, various abuse, lack of education, healthcare & food insecurity.
The Road to Hope program supports child caregivers to continue education as they care for their sick parents. It also provides psychosocial support and works with extended family after the death of a parent/s. Extended family is often unable to provide the minimum food, clothing and schooling for the orphaned children. This has been worsened by the pandemic. Additional funds from this project will support families with basic needs and strengthen the network of support between the RTH families.
This holistic approach to supporting child caregivers currently benefits 112 children and 67 families. PCAU works with parents/guardians, their communities, and the palliative care nurses in those communities to support the children. It DOES take a village! Additional children will join the program, giving them a chance at education, healthcare, psychological support, and an opportunity for a dignified life as they become more resilient and self-reliant in the future.
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