By Julie Hutchison | President, Co-Founder and Chelsea's Mother
It is time for another update from The Chelsea Hutchison Foundation on this project. I can't tell you how much we appreciate your support of our work and you are truly making a difference in the lives of those who struggle. We receive 10-15 requests a week for help and the support we receive from you helps us keep up with requests. We currently have 25 requests in hand.
To date, we have provided over 330 life-saving movement monitors. The photo shown is that of a SAMiAlert monitor in place. Should this child experience unusual movement or a seizure during the night, the camera will record the episode and alarm this parents. You can't even believe the peace this brings to a Mother, Father or caregiver. It is hard to keep up with the requests. We work tiredlessly to be able to support these families. The stories we hear and the feedback we receive is amazing!
"The Chelsea Hutchison Foundation has made a great impact on our life. By providing a sleep moment monitor for my son, it has given my son more independence. They are dedicated to raising awareness . Through the foundation we were given the opportunity to go Disneyland during the Epilepsy Awareness Day. We met so many people and now have life long friends all thanks to CHF." April L.
"This organization helped fund our SAMi alert system for my daughter with intractable epilepsy. We couldn't afford a system like this without this wonderful organization! After getting the system I was able to notify her doctor she was having hour long seizures during her sleep. Without this system we would have never known! Thanks so much Chelsea foundation!" anonymous
"The Chelsea Hutchison Foundation has been wonderful with helping on advice for our son (9). They also were amazing with working a way for us to receive a SAMi video monitor. This has been an extreme help, not only did they assist with our costs involved, but more importantly helped with peace of mind and as parents we are able to sleep better at night, in the event our son has a seizure. We are greatful for their assistance in memory of their daughter. Thankful for all they do! Annmarie L.
"This is a family-based foundation that was created after the loss of a beautiful girl (their daughter) named Chelsea. They have made it their mission and Chelsea's legacy to ensure no more lives are lost to SUDEP. During the time when I had recently given up my full-time employment (and bread-winner role in my household which made the medical bills that much more overwhelming) to care for our infant daughter with epilepsy, The Chelsea Hutchison Foundation subsidized the cost of Emfit, a movement monitor to detect seizures during my daughter's sleep. This not only took away from some financial stress, but provided an invaluable gift of peace of mind so I was able to sleep at night once again." Juliann B.
February 8, 2016 was International Epilepsy Awareness Day and in honor of this date, we have been featuring individuals who have epilepsy and their journies. Click here to read what this is like for some very special people!
We have some exciting events coming up. Fly Me to the Moon is May 7th in Lone Tree, CO - our 7th Annual Spring Gala. The 1st Annual Epilepsy Awareness Day at Elitch Gardens is June 4, 2016 in Denver, CO. This event was inspired by Epilepsy Awareness Day at Disnleyland which takes place in November in Anaheim, CA. Our hope is to be able to send families to participate in both events this year. Details are coming together for our 7th Annual STOMP Out Epilepsy and SUDEP Awareness Walk/Run this September. It is possible that we will have orchestrated STOMPS in 12 different locations across the United States. We'd love to see you at any of these events!
Here are links to a few smaller projects we have on GlobalGiving that we thought you might be interested in.
A Seizure Response Service Dog for Zarek
A Seizure Response Service Dog for Chelsi
A Seizure Response Service Dog for Chelsea
Thank you again for your continued support.
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