By Julie Hutchison | President, Co-Founder and Chelsea's Mother
As we celebrate what would have been Chelsea's 26th Birthday, we are proud to announce that to date, in 2018 alone, we have had the privilege of providing 102 life-saving movement monitors. We could not do this without you. This brings our overall total to 612 since 2011.
"A few weeks ago, we received our SAMi Alert monitor. A huge thanks to the help your foundation provided. I wanted to take a moment to thank you again for helping us to secure this monitor. We knew this monitor could help us gain the peace of mind we were so desperate for but until we started using it, we didn’t know how much this would change our lives. Our daughter has really been struggling with gaining control of her seizures. She has Lennox Gastaut Syndrome and her seizures are frustratingly resistant to treatment. The first week we had the monitor, it recorded a very scary seizure episode that we were able to then take to our daughter’s neurologist and show her. She was extremely impressed with the monitor itself and I told her all about Chelsea and the amazing foundation started in her honor. This monitor not only helps us to sleep better at night, it also helps us dial in our daughter's epilepsy treatment program because instead of describing a seizure episode, I’m able to show her neurologist exactly what is happening. This has been so life changing for us."
Enjoy the faces of some of our most recent recipients. Epilepsy affects anyone at any time. Epilepsy affects over 3 million Americans of all ages - more then multiple sclerosis, cerebral palsy, muscular dystrophy and Parkinson's disease combined. Almost 500 new cases of epilepsy are diagnosed every day and it is estimated that up to 50,000 Americans die from seizures and seizure-related causes every year in the United States, yet most don't even know they are at risk.
Here are links to the different monitoring devices that we assist with.
Thank you again for your continued support.
Links:
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